What a difference a little time can make......
Last year this time I was defeated, I had lost hope and given up the will to fight. But I am renewed, refreshed and determined to not only survive but to LIVE !!! Alhamdulilah for everything.
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What a difference a little time can make......
Last year this time I was defeated, I had lost hope and given up the will to fight. But I am renewed, refreshed and determined to not only survive but to LIVE !!! Alhamdulilah for everything.
I think that there should be a body swap day for any chronically ill patient who has ever been doubted by am ableist asshole. Then those who have been told to “just push past it” can watch as the ignorant jerks have a lovely time, “getting over it”.
The MD I saw last month looked over my records for about 10 min, then looked me in the eye and said.... " This is out of my depth " Now while I appreciate her honesty, I don't think I should have to pay for that office visit. lol
Coffee Free Day was a success. Although I kinda hate to admit it. lol
Coffee free day
As Salaam Alaikum Up getting ready for work, feeling pretty good. Gonna try out a theory and avoid coffee today. See if it makes a difference in how fatigued I feel later in the day. Have a great day !!!
The hardest part of this horrible auto-immune nightmare is dealing with the loss of the person you used to be. I handle my pain, I deal with being exhausted 95% of the time. I take zillions of pills that don’t make me feel any better. All I want is to be Gina again. This almost bald, forgetful, weak, tired, achy bone, burning muscle, girl who looks back at me from the mirror is not me. This disease is killing me slowly. I have finally come to realize it won’t stop until it takes every piece of me.
Alhamdulilah, I'm home from work. Super tired today.
Had a pretty bad night last night, fell asleep terrified that I would wake up feeling as bad or worse. Then like magic, I wake up feeling almost normal. Cherish the good days people !!! ( hopefully this feeling lasts all day) lol
Sick and Tired
Give yourself a high-five if you’re healthy. Sit out in the sunshine or flex your fingers or eat something you really love without vomiting and appreciate how in the space of one blood test your whole life could change; forever and expensively and frustratingly and frighteningly.Â
wants my hair now and I’m too weak to fight her for it.
#mylife
My life
My face hurts
….. no seriously, the right side of my face and scalp feel like they are on fire. My eye even hurts, and after struggling for hours to fall asleep I finally succeed only to have oomf call to tell me about a random guy ?!? Really WTF ??