Small Vent
I have severe chronic migraines that at times give me so much vertigo that I can't walk independently, and I often vomit. Today I went completely blind temporarily.. it really scared me.
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@idiosyncrasy-system
Small Vent
I have severe chronic migraines that at times give me so much vertigo that I can't walk independently, and I often vomit. Today I went completely blind temporarily.. it really scared me.
public service announcement
My Mistake
I made a mistake in insinuating that memory loss must equal trauma. I apologize to anyone that statement hurt.
I do stand by some things though.
If you experience memory loss or severe dissociation as a system you must be honest and open with your system and always seek to understand yourself better. I'm not advocating for digging for trauma, but I am advocating for not getting stuck in a label so much that if a headmate is reaching out, or if memories appear on their own, that you push them down or ignore them. If you experience memory loss, severe dissociation, or life inhibiting issues, you should have a care team. I take the stance that the vast majority of people, mentally ill or not, can greatly benefit from therapy. But having a therapist is especially important if you are experiencing disordered symptoms. Not because I think there's one true method to healing, but because therapy and psychiatric care in general has tons of different methods and individualized paths to treatment. Even if these coping skills currently benefit you, minor changes in life structure can result in serious distress very quickly. It's for this reason I'm being directive on this. I cannot in good conscience spread the idea that it's a good idea for anyone to go without help for symptoms which the majority of the time become distressing. My system was extremely high functioning for years but many of us, even during that time, could have benefited from having an objective view into our lives, and a support team for when things got rough. Additionally, some of these symptoms can be similar to physical illnesses and putting in the work to have a care team you trust ahead of time means that if other concerning symptoms appear, or your system falls on hardship, you won't have to go through the issues of finding good doctors/therapists at a time when you really need help, and are more vulnerable.
Hot Take
It is fucking DANGEROUS to de-medicalize severe dissociation, to de-medicalize memory loss, to de-medicalize life inhibiting issues with multiplicity. It is DANGEROUS. Life or death dangerous. If you are spreading the nonsense that you shouldn’t have a care team, a therapist, a primary care ect while experiencing these things you are endangering yourself, and others. There are people who have been HURT by this. It might take some time to find a therapist with helpful outside perspective. It might be a traumatizing process. And even once you find your team, therapy is HARD. That’s because it assists as opposed to replaces work you do on your own.
I 110% support every individuals’ right to express what life feels like to them on any platform they please, but if you have a medical issue please God do not sit and suffer, and do not encourage others to do the same!!
I’m not sure why you tagged me here? I’m not against people who are dangers to themselves getting medical help. We function just fine, even if we have memory gaps. We’ve had the same job for 6 years, we cook, clean, and dress ourselves. Honestly, depression has been more of a roadblock to wellness than anything else has, but we’re getting through that.
But yeah, throughout all this, sometimes we dissociate - last time it happened was when Fred and George took the front entirely alone, and they did great as far as I can tell. They started journaling to each other/us, so we’re at least able to keep track of important things, they’re getting us to be social, we’re eating better and going out more, putting in more effort at work, and picking up new hobbies. I get for real excited when they come to the front now, even if I know it’ll be a fog for me later, because I trust them and I appreciate what they’re doing.
Just because we have memory gaps between us doesn’t make any of that dangerous or life-threatening. All of those things are positive things, and they happen because we let ourselves be separate, functional people with different strengths. Not every system functions the same way when faced with the same issue. We don’t have DID because none of this causes distress or impairment in daily life, and it wasn’t (to our knowledge) caused by trauma. People who are in distress, who are in danger, need all the help they can safely get, but deciding that everyone who experiences one thing (in this case dissociation) is automatically in danger and needs to be medicated and/or dragged through a traumatizing process is a bit absurd, and detracting from the people who actually need and want help.
I think memory loss is pretty concerning, and I worry about encouraging the idea that you shouldn’t have that sort of thing evaluated/treated. Can you honestly say that if you could maintain your separation but keep your memories you wouldn’t like to move towards that? Having a therapist to help with that seems like an important thing. Perhaps I’m not empathizing appropriately because my memory loss affects me detrimentally, but that level of dissociation is severe. Dissociation, the freeze response to terror. It’s not exactly healthy to be experiencing that so severely…
I’m all for finding ways to share memories as needed, and that’s one of the things we started working on together during the times we can co-front. It’s not always so divided; sometimes we can front together, and there’s no memory loss at all. Sometimes we can sit down and work out memories by talking to each other, even if they’re patchy, but that can be uncomfortable and cause migraines. We’re just not that bothered if we can’t remember what someone did at work, for example, as long as they went to work and didn’t do something stupid, yknow? I don’t care what Yong Soo watched as long as it wasn’t triggering material, or what he ate as long as it wasn’t something that’ll make our body sick. I don’t care if Fred gets drinks with our friends, as long as he doesn’t spend tons of money and overdo it. I see it in some ways as a measure of privacy, which is hard to have when you’re all stuck together like this. I don’t really want anyone else privy to my most personal thoughts either, so I’m kinda glad they can’t remember them.
The cause of the episodes might be the key, here? They’re usually random, and not reactions to fear. Sometimes one of us goes to bed, and by morning someone else is in the front and has no idea how or why. That one happens to me pretty often, actually, and I only know we swapped in the night because I don’t remember going to bed or what the last person did. I just get up, check what day it is (that’s super weird, feeling the passing of time differently), and follow our routine.
One aspect I forgot to mention that’s pretty important: using this separation and each of us having this intense control has been a breakthrough in recovery, particularly from depression. People like me or Yong Soo who have it the worst in a lot of ways can’t just… dig ourselves out, not on our own. Being able to tap out and let someone else take full control is a godsend, whether we remember it or not. We’re all on the same team. If I’m in a depressive episode, and someone like George takes over to do all the things I can’t bring myself to care about, that’s definitely a good thing. Whether or not I can remember what he did is less important than the fact that he did it (and if he keeps writing journal entries to me, then I’ll at least know something).
I think we just experience things differently, and that’s okay! I don’t know what it’s like to have DID, and someone with DID probably can’t fully understand our side. It’s important to share stuff like this to better understand other systems the best we can, find common ground, and learn where boundaries are. One of the ways we cope with memory lapses is having a routine, written down, that everyone knows to follow (go to work, use this name, eat at these times, do these chores, etc) - this is a good tool for systems who can manage it, and completely useless for others who can’t cooperate like that. The kind of coping skills you need might not have any use for us, due to the differences.
The significant distress criteria for DID/OSDD seems pretty subjective.
For Anyone identifying as Endogenic or Quiogenic
If you dissociate and loose memory, you have trauma. If you have a pervasive pattern of spacing out to the point of confusion or not knowing where you are, you likely have trauma (whether you believe it’s the source of your multiplicity or not) and you need therapy.
If you struggle at all with your multiplicity, or it interferes in your life, you need therapy and you need to face your system openly and honestly.
It’s fine to de-medicalize things that aren’t problems or that are only positively affecting your life, but always promote therapy and treatment if it’s affecting your life.
even the tulpamancy guidelines are pretty firm about how their experiences do not and should not cause amnesia, dissociation, identity confusion, or distress. non-disordered plurality of any type should not be causing any of those things. i wouldn’t say it means you absolutely have trauma, but it does mean there is a problem because these things aren’t natural occurring. they are not associated with non-disordered plurality.
a lot of people believe that the distress criteria for did/osdd means you have to be distressed by your multiplicity. that’s not actually true. it just means that you have to be distressed or impaired by any one of the symptoms listed in the criteria. most did/osdd systems are more distressed by their amnesia & dissociation than they are by their alters.
no matter what you believe caused your plurality, if you are experiencing any of those things, then i’d really encourage you to seek a professional’s opinion. imho, i’d even encourage anyone who is experiencing plurality at all to check in with a professional just to make sure nothing is up. even if you don’t have trauma or did/osdd, those things listed above are not fun to have and a professional can definitely help you with them. :)
Hot Take
It is fucking DANGEROUS to de-medicalize severe dissociation, to de-medicalize memory loss, to de-medicalize life inhibiting issues with multiplicity. It is DANGEROUS. Life or death dangerous. If you are spreading the nonsense that you shouldn't have a care team, a therapist, a primary care ect while experiencing these things you are endangering yourself, and others. There are people who have been HURT by this. It might take some time to find a therapist with helpful outside perspective. It might be a traumatizing process. And even once you find your team, therapy is HARD. That's because it assists as opposed to replaces work you do on your own.
I 110% support every individuals' right to express what life feels like to them on any platform they please, but if you have a medical issue please God do not sit and suffer, and do not encourage others to do the same!!
I'm not sure why you tagged me here? I'm not against people who are dangers to themselves getting medical help. We function just fine, even if we have memory gaps. We’ve had the same job for 6 years, we cook, clean, and dress ourselves. Honestly, depression has been more of a roadblock to wellness than anything else has, but we’re getting through that.
But yeah, throughout all this, sometimes we dissociate - last time it happened was when Fred and George took the front entirely alone, and they did great as far as I can tell. They started journaling to each other/us, so we’re at least able to keep track of important things, they’re getting us to be social, we’re eating better and going out more, putting in more effort at work, and picking up new hobbies. I get for real excited when they come to the front now, even if I know it’ll be a fog for me later, because I trust them and I appreciate what they’re doing.
Just because we have memory gaps between us doesn’t make any of that dangerous or life-threatening. All of those things are positive things, and they happen because we let ourselves be separate, functional people with different strengths. Not every system functions the same way when faced with the same issue. We don’t have DID because none of this causes distress or impairment in daily life, and it wasn’t (to our knowledge) caused by trauma. People who are in distress, who are in danger, need all the help they can safely get, but deciding that everyone who experiences one thing (in this case dissociation) is automatically in danger and needs to be medicated and/or dragged through a traumatizing process is a bit absurd, and detracting from the people who actually need and want help.
I think memory loss is pretty concerning, and I worry about encouraging the idea that you shouldn't have that sort of thing evaluated/treated. Can you honestly say that if you could maintain your separation but keep your memories you wouldn't like to move towards that? Having a therapist to help with that seems like an important thing. Perhaps I'm not empathizing appropriately because my memory loss affects me detrimentally, but that level of dissociation is severe. Dissociation, the freeze response to terror. It's not exactly healthy to be experiencing that so severely...
The Important Syscourse Conversations
How to acknowledge each other's existence in a validating way, in a way where no one gets hurt. I saw it put really well:
It's just as dangerous to insist that someone does not have trauma and is actually a spiritual system as it is to force pathology on someone.
Things that need medical attention: severe dissociation, memory loss, intrusive thoughts (including exotrauma), PTSD, and anything else that inhibits a systems' ability to live life in a safe and fulfilling way.
Things that don't necessarily need medical attention and could actually use a good community:
Multiplicity itself
The internet is NOT a replacement for an informed outside perspective. A less biased perspective.
I can't begin to explain the billion and one things I learned in the health care system that I never would have understood or realized without help. And at the risk of sounding arrogant, I am an intelligent person who gets crazy deep into research about whatever problem I have at hand. I educate myself thuroughly, and I STILL have learned so much. You can learn more too. You can get HELP too.
The internet may feel like we have the world's knowledge at our fingertips but stop and think about all the millions of people who never use the internet to write down their experiences. The doctors who never publish case studies, or write books to describe things they've learned. The books and experiences that get burried under the infinite mass of web resources. The things that make more sense when spoken as opposed to written. There is so much to learn from other people, damnit. Treatment is good. If it's not working for you find someone who will take a different approach. Whatever you do, just don't encourage people not to seek, or to quit treatment.
Hot Take
It is fucking DANGEROUS to de-medicalize severe dissociation, to de-medicalize memory loss, to de-medicalize life inhibiting issues with multiplicity. It is DANGEROUS. Life or death dangerous. If you are spreading the nonsense that you shouldn't have a care team, a therapist, a primary care ect while experiencing these things you are endangering yourself, and others. There are people who have been HURT by this. It might take some time to find a therapist with helpful outside perspective. It might be a traumatizing process. And even once you find your team, therapy is HARD. That's because it assists as opposed to replaces work you do on your own.
I 110% support every individuals' right to express what life feels like to them on any platform they please, but if you have a medical issue please God do not sit and suffer, and do not encourage others to do the same!!
My Question
How is it that people think Endogenics spread misinformation about DID & OSDD when they don't claim to have those?
I’m going to treat this like a genuine and sincere question, because I hope that it is.
I have personal experience with “endogenic” systems (at the time they called themselves “natural multiples”) spreading misinformation about DID even though they never claimed to have DID.
This was back in the early 2000s and I had recently been diagnosed. At the time I didn’t see any harm in sharing an online space all kinds of systems. I made friends with all sorts of people and looked to them for help in understanding my disorder.
At the time I struggled to tell the difference between a valid psychological source on DID and a casual layman’s guide to “natural multiplicity”. There was so much overlap and sometimes those guides on “multiplicity” included information about DID, as if they were the same thing or as if DID were merely a sub-category of multiplicity. These groups I was in would often point to astraeasweb and dark personalities, two websites that are full of misinformation about DID.
I learned so much wrong information from these sources. The most dangerous thing I was told by people in the natural multiplicity community was that I didn’t need therapy, and worse, that if I did seek therapy my therapist would force me to “kill” my alters through integration. This was especially terrifying to me because at the time we believed our system had a host and I believed that I was one of those alters who would be “killed” to leave the host behind.
A lot of the harmful things I learned from people in the natural multiplicity community didn’t come from big public posts or websites, but from things they said to me in private chats. I had a lot of friends who believed they were naturally multiple. At the time, I was very much in denial about my trauma even though other parts of my system remembered. Sometimes I would tell my friends that I didn’t think I’d experienced any trauma, and my friends were so quick to tell me that this was evidence that I was really a natural multiple, that I didn’t need therapy, and that I was like them.
My friends who were natural multiples also encouraged my delusions. At the time I was pretty invested in some unhealthy coping mechanisms. I had read things on those natural multiplicity websites about how alters could come from past lives or alternative realities, and the idea that I had formed through some mystical source rather than through trauma was so appealing to me. I wanted so badly to distance myself from my trauma. I latched on to the idea that I had come from a past life and been reincarnated into this body by mistake. My friends encouraged this delusion, dragging me deeper and deeper into it, detaching me farther from reality.
All of this harmed me so much. I was completely disengaged from real life. I couldn’t work. I couldn’t go to school. I couldn’t function. I quit therapy. I let my denial rip our system apart until it was so bad that my denial took over the entire system.
So yeah... Endogenics don’t need to claim to have DID to hurt people with DID. Their presence in DID spaces is harmful because they claim to be having similar experiences when they aren’t. Whatever natural plurals or endogenics are experiencing, it has nothing to do with DID and it should not be compared.
I hope it’s okay to add my story on here, because tumblr was the place that effected me. I’ve never told this story before. I feel like I’m far enough in recovery to be able to speak about it now, though.
TW for spiritual abuse & unreality
Several years ago I moved away from my hometown. I was no longer in school, I was no longer around as many triggers, I was no longer near as many horrible people. It was then when, seemingly all of a sudden, the dissociative symptoms swamped me.
Nothing was real. I had voices and people in my head, who had always been there, but I never realized it until that moment. I couldn’t understand that anything happening to me was actually real. I remember back when I was in my hometown, I thought the world was a game. But even as I was trying to bring myself back to reality, I just could not. Maybe the world was actually a game, I thought to myself.
I became convinced the world was a simulation, or a dream, or a game; what it was changed a lot, but it was always not real. It was like a veil covered everyone else’s eyes and I was the only one who could see this. I was the only one who could see how not real the world was.
My abuser had a habit of telling me I wasn’t human. I was something else. It was always spiritual or supernatural in some way. So, even though I don’t remember how I found them, it makes sense to me that I would turn to spiritual forums and communities for answers.
I went to these communities for help with my dissociative symptoms and they just reaffirmed that these symptoms were actually spiritual. The people in my head? They were actually aliens and spirits possessing me. The voices I heard? They were actually beings from another dimension communicating telepathically with me. The reason I felt like everything was unreal? That was because everything was actually unreal and I’m just special enough to see it. Therapists couldn’t be trusted with this knowledge, they told me. You can only trust the community.
I believed it! I was a child desperately trying to figure out why I was experiencing these things and that was the only answer I could find. Adults were telling me those things, and obviously I trusted them because adults knew what’s best for me.
I was a child being told by adults that I wasn’t mentally ill- I was their chosen one, I was an indigo child, I was psychic, I was an alien-human hybrid, I was a starseed, I was possessed. I passed around from community to community who kept telling me that they had explanations for what I was experiencing and I was diving deeper and deeper into delusion.
That stuff kind of fucks up your head a bit.
Flash forward to a few years to when I’m on tumblr and I hear about "systems” for the first time from a mutual. There I was, hearing about something very similar to what I experienced...but it wasn’t aliens or spirits or whatever. I decided to give it a google search.
I found astraeasweb.
I learned about systems and multiplicity through astraeasweb. I was so relieved. Of course what I was experiencing was spiritual! It said so right there on astraeasweb. But maybe what I was experiencing wasn’t aliens or spirits...but instead I was experiencing a system. However, I was convinced that whatever I was communicating with in my head was from a different dimension, it wasn’t something from this world. I must be a gateway system, I thought to myself!
Then I stumbled across something called DID on astraeasweb. I read through their articles on it. I did experience feelings of unreality and amnesia, I realized. So maybe I had this DID, too...?
A DID gateway system.
I thought it was possible because astraeasweb talked about DID as if it was the same thing as every other “multiplicity type.” Because everybody on tumblr talked about DID as if it was just a sub-type of multiplicity.
I found system advice blogs on tumblr to help me out. All of them talked about DID and gateway systems and multiplicity like they were on the same spectrum. I vividly remember asking one advice blog (it was called something like multiplicityfaq) if a gateway system could also be DID? And they told me YES! Ofc they can! They told me that ALL my alters could actually be people I’m communicating with from different dimensions. Because, and I quote them, “Why not? Anything can happen in multiplicity!”
I believed it. Spiritual people on the internet knew everything, after all. I didn’t need to seek therapy or help, because this was the answer.
I started using those multiplicity terms I found in their glossaries. I started marking off which of my alters were walk ins, which ones were fusions (like in steven universe); using all the terms so nicely given to me from these multiplicity websites and blogs. And I continued as a happy little DID gateway system with walk ins and fusions, all while never knowing that these things do not actually occur in DID.
I believed all of these things occurred in DID until someone said it wasn’t possible.
I still remember it. It was a syscourse blog and all they had said was something like “walk ins are not possible in DID. Here’s a link to did-research.” I remember feeling a surge of panic. It wasn’t possible? But I thought I had DID and walk ins! I clicked on the link, because I wanted to know more. I read everything.
My entire world was flipped upside down. Everything suddenly made more sense then it ever had. It all made sense when I learned about DID from an actual informative source on DID. Not some random tumblr blogs, not some anti-psyche websites.
It finally dawned on me that DID was actually a mental illness. It wasn’t just “multiplicity.”
Everything. The trauma, the dissociation, the amnesia, my journal entries, my alters who were so desperately trying to hide the trauma from me, the trauma itself- it was real. This was the first time I was being told it was real. And that my problems weren’t spiritual. They were psychological and it made sense. REALITY made sense. Everything I was going through made sense. I felt like the veil I originally thought was over everyone else’s eyes was actually only on mine, and it was finally being ripped off.
I finally sought help. I went to a psychiatrist, I was evaluated, I was finally getting the help I needed and talking to my professionals about my symptoms and opening up about the trauma.
Unfortunately, the years I was spiritually abused and the year I first found out about systems on tumblr had been completely repressed by my DID. I had this gap in my memory that took place over several RECENT years, which was distressing. For the longest time, I could not remember why or what took place then, until years later into my recovery.
I was pissed off at tumblr. I was pissed off at the endogenic community for not having any nuances, boundaries, or anything like that one fucking syscourse post I saw that could've rescued me from a whole extra year of harm. Instead, it just hurt me more.
Recovering from all of that was harder than recovering from some of my childhood trauma. But I’m so happy to say I am doing a lot better.
I do apologize to the people I’ve distressed in the past through pointless things like “Endos aren’t real. Here’s a link to did-research.” I understand better now that not everyone was in the same shoes as me when I first got introduced to the endogenic community. I know there are genuinely people out there involved in that community who don’t have DID or OSDD. I know they wouldn’t react like how I did to someone saying “Walk ins aren’t real. Here’s a link to did-research.”
As much as I’ve harped on their community for not giving any nuances on DID/OSDD vs endogenic things, I need to preach what I fucking speak and give them the nuance they need too. Because it’s a mixed bag on tumblr. There’s gonna be people like me, people who aren’t like me, and everything in between. Fighting doesn’t help, communication does.
That’s why I think boundaries and nuances are so important. There were none when I first joined tumblr. There were literally like 3 blogs who talked about these issues and that was it. Tumblr is so much better now but it’s not perfect. We need communication, because even tho this is just a stupid blogging website, these things do effect people’s lives. It effected mine, and dingo’s above, and so many more people. Obviously, don’t interact with the people who are mean and want a fight but god PLEASE listen to the people who are actually trying to communicate their needs.
When I was first introduced to multiplicity, the thing I needed the most was boundaries and distinction between what was mental illness and what was not...and I didn’t get that. I want anyone in the future, whether they’re in my shoes or not, to be able to have that nuance. Because if we have those boundaries, then we won’t have confusion, or fighting, or people getting hurt because nobody knows what each other is talking about.
It is bad. It is harmful. But it can absolutely be fixed.
For Anyone identifying as Endogenic or Quiogenic
If you dissociate and loose memory, you have trauma. If you have a pervasive pattern of spacing out to the point of confusion or not knowing where you are, you likely have trauma (whether you believe it's the source of your multiplicity or not) and you need therapy.
If you struggle at all with your multiplicity, or it interferes in your life, you need therapy and you need to face your system openly and honestly.
It's fine to de-medicalize things that aren't problems or that are only positively affecting your life, but always promote therapy and treatment if it's affecting your life.
My Question
How is it that people think Endogenics spread misinformation about DID & OSDD when they don't claim to have those?
I’m going to treat this like a genuine and sincere question, because I hope that it is.
I have personal experience with “endogenic” systems (at the time they called themselves “natural multiples”) spreading misinformation about DID even though they never claimed to have DID.
This was back in the early 2000s and I had recently been diagnosed. At the time I didn’t see any harm in sharing an online space all kinds of systems. I made friends with all sorts of people and looked to them for help in understanding my disorder.
At the time I struggled to tell the difference between a valid psychological source on DID and a casual layman’s guide to “natural multiplicity”. There was so much overlap and sometimes those guides on “multiplicity” included information about DID, as if they were the same thing or as if DID were merely a sub-category of multiplicity. These groups I was in would often point to astraeasweb and dark personalities, two websites that are full of misinformation about DID.
I learned so much wrong information from these sources. The most dangerous thing I was told by people in the natural multiplicity community was that I didn’t need therapy, and worse, that if I did seek therapy my therapist would force me to “kill” my alters through integration. This was especially terrifying to me because at the time we believed our system had a host and I believed that I was one of those alters who would be “killed” to leave the host behind.
A lot of the harmful things I learned from people in the natural multiplicity community didn’t come from big public posts or websites, but from things they said to me in private chats. I had a lot of friends who believed they were naturally multiple. At the time, I was very much in denial about my trauma even though other parts of my system remembered. Sometimes I would tell my friends that I didn’t think I’d experienced any trauma, and my friends were so quick to tell me that this was evidence that I was really a natural multiple, that I didn’t need therapy, and that I was like them.
My friends who were natural multiples also encouraged my delusions. At the time I was pretty invested in some unhealthy coping mechanisms. I had read things on those natural multiplicity websites about how alters could come from past lives or alternative realities, and the idea that I had formed through some mystical source rather than through trauma was so appealing to me. I wanted so badly to distance myself from my trauma. I latched on to the idea that I had come from a past life and been reincarnated into this body by mistake. My friends encouraged this delusion, dragging me deeper and deeper into it, detaching me farther from reality.
All of this harmed me so much. I was completely disengaged from real life. I couldn’t work. I couldn’t go to school. I couldn’t function. I quit therapy. I let my denial rip our system apart until it was so bad that my denial took over the entire system.
So yeah... Endogenics don’t need to claim to have DID to hurt people with DID. Their presence in DID spaces is harmful because they claim to be having similar experiences when they aren’t. Whatever natural plurals or endogenics are experiencing, it has nothing to do with DID and it should not be compared.
This is an amazing and thoughtful post that I think is important for any Endogenic system to see. The experience of multiplicity is so inherently different that advice should never overlap. While I still believe Endogenics have a place on Tumblr, I really agree with the message of this post and think it should be highlighted.
PSA: just because you can’t see a person’s disability doesn’t mean they don’t need their service dog, handicap tag or other assistive devices.
PSA 2: a person having an assistive device does not give you permission to ask what’s “wrong” with them
I'm so used to it I just list off one of my physical disabilities in vague terms. I guess it's hard for people to realize why medical information is private if they don't have issues.
This is one of the best interactions I’ve ever had.
Two school age kids: “Oh look at the big white puppy!”
Their mother: “Come here, let me explain something to you. That dog is a Service Dog. Whenever you see a dog in a store like this you can’t distract it cause it’s working.”
Two kids: “What do you mean he’s working?”
Mom: “He helps that girl. You know how at school your teacher tells you to be quiet so you don’t get distracted doing your work? It’s the same thing with that dog. You can’t distract him.”
Two kids: “What does he help her with?”
Mom: “That’s her business. Your business is to not distract him so he can work.”
If children can understand so can you.
What are people's expectations from service dogs??
I was in a public place and my service dog rolled onto his side and stretched his legs for a moment before rolling back onto his stomach and this guy looked at his vest (which says service dog in training) and said "Apparently very early in training." With a chuckle and I was a bit offended. But I just said "Yeah, 5 months."
Is it wrong that I feel offended?? Im sure he didn't mean anything by it but I feel like he demeaned 5 months of arduous training that have my SD performing medical alert, medication reminders, panic intervention, DPT, and mobility support. Yeah he stretched, but I wasn't even aware I'm supposed to be training him not to do that in the first place?? I wasn't asking him to tuck because there was plenty of space where we were, and he'd been doing a down and stay for an hour, so I understand the need to stretch out for a sec 🙄
They may be medical equipment but they're not robots.