Idiopathic Intracranial Hypertension & Me

A blog about living with (not dying from) IIH. I was diagnosed in August of 2013, and it's been a crazy ride. I'm hoping to cast a light on this disease so that others can find a place of hope and not be in fear of the pain that there can be.

[daftpatience]

drinking water when I have a headache should give instant relief. it should go away. what's even the point of drinking water if it can't do that

[sentientsky]

on lurching towards the breaking point

The X-Files (01x17) // tumblr user @/inkskinned // Haruki Murakami, Norwegian Wood

[fibro-memes]

[were--ralph]

PSA: Paypal on some more shady shit

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tag an artist save a life etc

[creations-by-chaosfay]

Sharing here because I know many of you use PayPal.

[drumcorpshero]

Spoopy Season Safety

[massacre-girlypop]

Oh my god reblog to save a me thank you

[cotardkindrome1999]

Reblogging even though it's way past Halloween bc this is an important reminder!

[suotar]

Stay away from anything with charcoal during this season if you are on ANY medication!!!

[derinthescarletpescatarian]

If you are on ORAL medication, do not have it in your digestive tract at the same time as activated charcoal. Activated charcoal won't affect injections or gels or implants. It won't affect medication you take at 6am if you drink it at 6pm. It binds to molecules it comes into contact with, so don't let those molecules be in your medication.

[introvertedx10]

[earhartsease]

a red light lights up on your car's dashboard and underneath the light it says CAR

[just-french-me-up]

Are you alright, honey? You've barely put your blorbo in situations

[nealashitposts]

Okay but back when I could afford a therapy my psychiatrist asked if I had written any fanfiction or planned any out in my head, and I was "nah, not really." And she nodded and looked down at her notes and was like "so how do you feel about possibly trying Zoloft?"

I started laughing and she was like "I know it sounds funny but it's been six months without you engaging in your favorite hobby and that's a sign the depression is getting to a point where we might why try some treatments with meds in addition to therapy."

So like. yeah.

[ruffboi-mags]

So, babe, ARE you okay? You've barely put your blorbo in situations

[reikacchan]

don't give up

[mornington-the-crescent]

[sizzlingsandwichperfection-blog]

I had a weird year. My brother got cancer. I worked for several months as unexpected CEO. Our community took on large corporations to expand access to TB care. Weird.

But maybe the weirdest part of this very weird year: Rediscovering tumblr, and finding the experience lovely and funny and just altogether surprising.

So thanks for letting this unpaid intern hang around. I've got a simple pitch for you, and a thank you:

At http://good.store, we make awesome products--from soap to coffee to socks Hank designed during chemo--and then donate 100% of the profit to charities working to expand access to healthcare. This silly idea has raised over $6,000,000 in the last two years.

So as thanks for a surprisingly delightful time on tumblr this year, I want to offer you a 25% discount on anything at good store. Just click this link right here, or else use the code TUMBLRTHANKS at checkout We've got great gifts, great subscriptions, and much more. Code will be good until Monday. Thanks.

[astraltrickster]

If you ask for accommodations for a common disability then you're treated as just a whiny exaggerator, immediately assumed to be demanding special treatment for something that everyone manages to get by with just fine and you have no excuse, severity levels? What are those? And how do we know you're not just exaggerating?

If you ask for accommodations for a "rare" (medically and somewhat reliably colloquially defined as something that <1% of people have) disability, well, you have to understand, that's sooooo rare, you just can't expect us to anticipate that need, you know, even if it is shared with dozens of others and statistically something that ~3 people in a room of 500 will have, and, well, do you really have it in the first place? Like it's super rare, after all, what are the odds that it would be you of all people? Sounds more likely that you're just making it up for special treatment and/or internet clout.

This is, in some ways, especially true in disabled spaces, because oftentimes the ugliest biases are the ones someone assumes they can't possibly have.

In fact, depending on the microcosm you're asking in, you can get dismissed both ways, over the same disability - sometimes even in the same conversation!

[lilaeleaf]

Some poor suffering gobs!!

[inloveforevr-deactivated2025041]

[millenniallust4death]

I’m paying to force seven thousand strangers to see a photo of my late husband having fun with his dog. Tumblr Blaze is totally worth it. XD

[millenniallust4death]

Thank-you to all of my new Internet stranger friends for being so gracious about having my post shoved onto your dashboards. I loved reading all of your kind tags and comments! Both Martin and Bosco have been gone for several years now but for 24 hours, they felt very present in my life. I greatly appreciate this gift. ❤️

[psycorax]

Reblog to have your dashboard be visited by the spirit of joy that death can end but not erase.

[neckspike-deactivated20240222]

Paid for seven thousand, the other 100k was free

[thedankmemes]

[catchymemes]

[catchymemes]

[gffa]

“Am I in the middle of an anti-social mental cycle where I have no spoons for interaction with other humans or have I just hit a really good run of fic that’s kept me curled up in bed for all my free time for like a week now?”  Who knows!  Not me!