I’m both pro herbal medicine and pro vaccination because you can treat burns with aloe vera juice and sore throats with lavender infused honey but you can’t rid a country of polio with plants.
This is my daughter, Dessie. She is eight years old. In May of 2016, she was diagnosed with Chronic Kidney Disease, Stage Four.Her kidney f
This is the October 2018 edition of this post, and hopefully the final version.
Dessie is now ten years old. Yay!! For the last two years, she’s held steady at 22% total kidney function, in Stage Four Chronic Kidney Disease. At her last nephrologist visit, her creatinine has gone up. She says she’s tired all the time.
We think she’s tipping over to Stage 5 CKD/End Stage Renal Disease. Her next visit to the nephrologist is in December, and I’m expecting to get the diagnosis then. If not, great! But I’m not hopeful.
I think we’ll need to make another trip to Seattle Chikdren’s Hospital then, so they can run their own labs and make her active on the deceased donor transplant list. Normally, I’ve been told by them, once a child is active on the last, they typically receive a donor kidney within six months to a year. So I think 2019 will be her year of the transplant. Possibly dialysis before then — I know her local nephrologist wants to avoid it if we can.
The transplant itself requires we stay in Seattle for three to four months, with frequent follow ups afterwards. (First every month, then every two months, then every three months.). Each trip by car takes 6.5-8 hours each way, and usually two tanks of gas. Special Mobilty Services can help with gas, and lodging, if we can give them two weeks notice.
The transplant will be a journey in every sense of the word. I would love it if this could be fully funded before then.
If you have a spare kidney and want to try to be her living donor, here’s the Donors need to between 21-45, in reasonably good health, and O+ blood type. No smoking or drinking alcohol, not even occasionally. If this is something you’re interested, please contact the University of Washington’s living donor program at 206-598-3627, and mention you’re interested in donating to Dessie McAdams. That begins the process.
I’m a single mom, with three kids. To deal with my hideous finances which have put us in the negative regularly since May of 2017, to get us back on our feet, we are moving in with my mother for at least the next year. Perhaps longer; she hasn’t put a deadline on it. I think I’m going to have to declare bankruptcy to get our from under, which will tank my already bad credit score. So I’m not sure of our prospects afterwards; if I could, I’d rather buy a place than rent, but even renting will be hard, with bad credit and high rents.
In the most immediate future, we need about $300-500 through October to either rent a dumpster or hire a junk hauling service to clear out the backyard, garage, and basement. There’s a lot of heavy stuff my mom and I can’t handle.
This move to my mom’s also gets us away from my ex and his family, and Imbin the process of getting the parenting agreement modified to supervised visitation. He molested Dessie, by her account, sometime while we were married, around when she was 4-5. (I reported it to CPS and the police as soon as I learned of this, but as it was some years after it occurred, there was no evidence and they did nothing).
He’s also verbally and emotionally abused all of us.
His family may decide to bring in a lawyer for him with the requested change in parenting plan; I don’t know.
I guess what I’m saying is, once we move we’ll be doing better than we have in a long while. But help is still needed. A miracle, even, if it could be so, to get us through her transplant and from there to a safe place to live independently. Please get this fully funded (or more) as soon as possible, if it can be done.
If you don’t want to use the GoFundMe, that’s fine. We also have
½/19 update: again, she’s now consistently below 19% total kidney function, so low officially in CKD Stage 5/End Stage Renal Disease.
Her doctor and I have contacted her transplant team at Seattle Children’s Hospital to get her on active status on they’re deceased donor list. They are supposed to get back to me on Monday. Once she’s active, we could get the kidney call any time.
Have you ever been listening to Rainymood and thought, “Yeah, this is good … but it would be nice if I could customize the sound more, or if there was a little more choice.
Let me introduce you to MyNoise.
MyNoise is a customizable sounscape looper with so many options, even within each soundscape. So say, for instance, you really love rain sounds when you write or study or relax. Anything. I know I’m a big fan of rain sounds. They have a page for that.
But say you like really high, pattery rain, and LOTS of low thunder. Here’s where MyNoise really stands out: you can customize that. See those sliders with all the cute colors? That is your equalizer. You can adjust the levels based on what you want to hear more and less of. Here’s how it looks when you want high, pattery rain and low, rumbly thunder:
But say rain isn’t really your jam. Say you want something a little more ambient, a little more background noise-y. Something with people. Well, they have customizable coffee house chatter that even has the levels listed for things like “kitchen,” “babble,” and “table”:
Or say you miss the ocean.
Or say you miss your cat.
Or say you miss your spaceship.
Or say you miss the dungeon where you and your team of scalawag adventurers used to explore and face off against, say, dragons. In the dungeon.
This site is seriously so helpful, and those are just a fraction of every kind of sounscape the site has to offer. The best part is that if you want to layer it with music (for instance, I’ll layer a playlist + rain + coffee shop if the scene I’m writing takes place in a coffee shop), you can adjust the master volume, meaning all of your layers stay at their respective volumes, just louder or quieter.
one of the least helpful things ive been told as a neurodivergent person is “don’t half ass things”
if you can quarter ass something, do it! if all you can do is clean a corner of your room, or only read one of the two assigned chapters, or write the heading for your resume, or put all the papers for taxes in a pile, do it! if today isn’t a whole ass day, take pride in the portion of ass that you were capable of
don’t let neurotypicals work ethic define how you did today
totally, if you can pick your laundry up off the floor and put it in a basket today, it will be so much easier to put it in the machine and wash it tomorrow. If you can stack the dishes now, it will be easier to wash them later.
Half assing as a first stepping stone is so good, it is much better than not being able to do anything because “if you can’t do it properly, why do it at all”.
Do what you can today, to make life easier tomorrow.
This is so important, because half ass is better than zero ass and when you half ass something twice it’s done, so who gives a fuck if you quarter ass something four days in a row, at least by day 4 it’s done rather than no assing it and it never being completed
the “___ change my mind” guy sitting at a desk is Steven Crowder who is literally a deep conservative “comedian” and the biggest transphobe of 2018 so can we NOT use that meme anymore thanks. he literally calls trans people tr**** in some of his videos and refers to caitlyn jenner (I may not like her but Christ) as a transgender f@scist because she transitioned and refers to her transitioning as “going full #sjw.” this meme is cancelled and not funny. use google if you don’t believe me. bye
yeah actually i did some research (googling. i googled) and this is what the the original image was: (as opposed to what i first saw it as and what other might have, and had assumed that was the real one)
yousharknotpass
germansingergirl
2087
jacobvanloon
titsay
dailybridgerton
ellievsbear
areudirty
