Margo

I have no other discernible traits except that i post about disability and pain. also send me dog pics

[themadcapmathematician]

I love virtual doctor visits, like very cool of doctors to finally admit that 1) clearing your schedule to physically go to the doctors office and spend an hour and a half there for 15 min of your doctor's time and 25% of their attention was never necessary actually and 2) that 90% of the time their job could be done by a discord call with your friend, an open browser tab of web md, and a grocery store pharmacy aisle

🏥 *~ doctor apologists dni ~* 🏥

[sweetschizo-deactivated20190808]

Hey if you’re schizophrenic/psychotic I just want you to know that you’re a wonderful person and that you deserve so much better than the demonization, marginalization and stigmatization you face in this society.

[sweetschizo-deactivated20190808]

Please consider reblogging this/other positivity posts for schizophrenic/psychotic people every once in a while. If you have more than 100 followers, odds are that a couple of them experiences psychosis and that they rarely see positivity posts for people with their symptoms.

[kazooie]

Here's something interesting about chronic pain. Sometimes I don't actually realise I'm in pain, instead it manifests differently, like I'll become very upset suddenly, or feel nauseous, or get restless leg sensations through my whole body(often the left side)..

..and that my friends is what psychosomatic means! It's when your body realises just pain doesn't get your attention anymore, so it manifests in different ways to tell you something is wrong. Yes, technically it's in your head, because your head is telling you something is wrong with your body.

Anyway I just started crying out of the blue so I laid down and now it's turned into my usual pain, because I knew something was up. Weird stuff.

[nobodysflower]

here is your gentle reminder that there are dandelions growing through cracks in the sidewalk. there is a fence lizard on the porch who is growing a new tail. there are trees growing through an abandoned house, branches tearing through the ceiling, ferns carpeting the floor. there is life pushing forward, pushing through. 

[margomoment]

Hey Margo! A while back you commented on a post of mine about cataplexy (or, in my case, not cataplexy). I was just wondering if you've learned anything? I've met so few people with the same experiences, I just wanted to stay connected. I hope you are doing well!!

Hi!!! yes! it was not cataplexy apparently. the internist said i was just depressed (i’m not). We’re looking at maybe nerve compression? i have sciatica and chronic carpal tunnel syndrome and probably loose joints so my best guess is sometimes my spine fucks up and my body goes limp until it fixes itself? I’ve met a few people on here and tiktok that. have the same experience and no one knows what it is!!!!’

[sighing-cypress]

I’m really tired

[autistic-crows]

that fibro feel

leg: has an itch

me: scratches leg to relieve the itch

leg: is now in horrific crippling pain for two hours

me: ????

[margomoment]

wait this is a fibro thing? not normal???? maybe i do actually have fibro. too bad dr won’t diagnose me until they’ve done every expensive test under the ducking sun

[sotosummarize]

Me talking to myself throughout the day.

[everylittlethingtheydoispainful]

chronic illness is saying “eughughuhuhggg I’m somehow faking all my symptoms I’m such a bad person” as you’re literally alone in a room in the fetal position trying to cope with all of your pain

[disabledprincesses]

“You literally cant walk because your knees are swollen and you hunch over at the SMELL of a trigger food”

“Yea but….what if i just thought I was sick…and through the power of brain…somehow created sickness in my body???!??”

“……that would still mean you’re sick even if it was”

“….shit”

[margomoment]

GAHHH MEEEE terrible evil feedback loop

[radical-eve]

[gridbugged-deactivated20200707]

Source (x) (x)

[missreaddevil]

I want one.

[shinvermouthea]

thought that said angels, which is objectively cooler

[moonlace]

This post went from cyberpunk dystopia to fantasy revolution real quick

[fuzzymiraclebanana]

Holy shit take a look at some of the other things on that page that people have made. If the face bedazzling, the specific clothing patterns, the projector that gives you multifaces (like that one keanu reeves movie), or the other crazy masks aren’t a sign of a growing cyberpunk distopia era I don’t know what is.

I wish we didn’t have to live in any dystopian future but I would rather us slowly grow into a cyberpunk one rather than the shitty one we currently have…

[shieldmaiden19]

Do you realize how important this is though?! Like, the society-wide social upheaval happening in Sudan, Hong Kong, Lebanon, and Iraq will happen in the US. Not ‘might’ - WILL. And all of us will have to make a choice between sitting out or risking our lives against our government. These designers are giving current and future protestors the protections necessary to fight for their rights without governments annihilating their families and their lives and that’s amazing.

Yes it’s dystopic. Reality is too - suck it up. And let’s take these tools and get to fucking protesting

[margomoment]

Is this a scanner darkly??? idk i never finished the book

[margomoment]

long time no post but howdy my harm ocd is rapidly changing into relationship ocd with harm subpoints and i’m crying in my bedroom because my boyfriend hasn’t opened my message for 17 minutes and 34 seconds

[nondualreality]

“For every minute you are angry you lose sixty seconds of happiness.”

— More life quotes here

[thedreamerandthedream]

But… if you’re angry… and that makes you loose happiness… because you’re not happy… but the happiness you lost makes you angry… so that makes you loose more happiness… are you just perpetually angry? Or does the happiness you lost count as the 60 seconds your angry in the first place? So you’re really not loosing anything but your original anger?

🤔

[margomoment]

that’s opportunity cost babeyyy you’re not losing happiness ur just missing out on it

[margomoment]

hey guys this is a dog i work with. please love him.

[blossomaes]

is it reasonable to go to bed before 9 pm!???

[chronickrunk]

laughs in chronically ill

[margomoment]

i’ve been staying up until 10 or 11 for a few weeks now and it works out great except for the fact that i need a 2-4 hour nap every day and feel awful

[afewregretsmaybe]

[positivity-in-pain]

exactly.

[randomslasher]

YES.

I remember lying in a hospital bed the first time I hurt my back badly, in tears, waiting for my MRI slides to come back, and saying to my dad, “But what if they don’t find anything?” I was only 20, but I already understood something fundamental about our system: it is ready, willing, and primed to disbelieve people who say they hurt or feel wrong. It wasn’t like those TV shows where the doctors vowed to get to the bottom of whatever obscure disease or ailment was causing so much pain and hurt; it was “we already hold you under the highest suspicion for daring to be young and in pain, and we’re going to assume you’re full of shit until there is indisputable evidence to the contrary, but we are not going to go out of our way to find that evidence because your insurance will only cover the most basic of tests, so your choices are continue to suffer or shoulder the crippling medical expense of the extra tests yourself.” 

When the surgeon came in and gave me his speech about having assumed there was a mix-up in the slides because there was “no way” a back as bad on film as mine belonged to someone my age, I was terrified, sure, but I was also relieved, because ten minutes prior to that, the nurses had brought in a PCA morphine pump. Prior to that, the on-call doctor assigned to my case had refused to give me anything for pain, condemning me (without even seeing me) on the grounds of my youth and my complaint, even though my primary doctor had direct-admitted me for the express purpose of pain control. When they rolled that pump in, the only thing they said was, “We got your MRI slides. They’ve referred you to the surgeon. He’ll be in shortly.” 

I didn’t know what was wrong, but I knew something had to be. They’d found something. Which, no, wasn’t good, but it meant 1) I was finally, finally getting pain relief, and 2) they would start taking me seriously and work to figure out what was wrong.

No, I don’t want to have chronic back pain. No, it hasn’t been fun, or exciting, or made me feel “special” to be disabled. Mostly it sucks that I can’t do the things I want to do. 

But what sucks worse, and what happens to so many people in chronic pain and illness, is the cause of their pain and illness isn’t immediately obvious, so they’re told they’re imagining it. They’re told it’s all in their heads, because the “tests are normal.” It gets to the point where you start to question your own sanity. You start to disbelieve the signs of your own body. You start to wonder if maybe they’re right, and you ARE just imagining it, even when you’re doubled over in pain, weeping and gasping because it hurts so much and you just want to know why. 

So yeah. Fuck this idea of “we want to be sick.” We don’t want to be sick; we are sick and we want to know why and what to do about it.

[tanishasoldaccount]

It’s literally like if your house is flooding, so you call a plumber, and they come to your house, see all the flooding and all the damage the water is doing to your house, but when they check all the pipes - all the pipes are fine. There are no leaks anywhere.

So even though there’s water everywhere and it’s getting in your way of living your life, doing permanent damage to your house - there’s no broken or damaged pipes. So hey. The plumber can’t help you. Sorry.

Try mopping it up.

[lifewithchronicpain-original]

Honestly finding out my mri showed degenerative disk disease I was elated because now I had proof for the pain I was being told couldn’t be that bad.

[septic-dr-schneep]

My life is “Are my symptoms the normal chronic illness symptoms, a fresh flareup, a side effect of my medication or am I catching a virus?” The Game™

[margomoment]

don’t forget the mensturation expansion pack featuring amazing add ons like “is this normal pain or period pain” and “do i need to vomit from cramps or from stomach problems?” (currently available on the uterus console only)