My Chronic Story

Im a chronic spoonie lesbian living my life in Florida. she/her. POTS, Migraines, an Unknown Neuro-Muscular Disorder and chronic joint pain are just some of the things going on while im waiting to see how the latest round of tests play out. In the meantime, I’ll keep reading, loving and searching the stars. ✨

[void-of-the-odd-deactivated2024]

The name’s Bond.

Dermabond.

[chronicbetween]

At this point should be called permabond. Three weeks post op and no sign of budging🤦🏼‍♀️

[argumate]

the human stress response seems so maladaptive!

[cargopantsman]

To be fair 99% of our evolutionary stress response was meant to deal with far more immediately conclusive scenarios than the tedious bullshit we put up with these days.

[argumate]

very very slow tigers are chasing me

[yellbug]

not to leave a serious comment on a silly post but one of the best pieces of advice I ever got about stress was to SLEEP but secondly, when overwhelmed, lay in a bed and intentionally hold all your muscles clenched. clench EVERYTHING. hold it for a few seconds, then let go. It tricks your animal fight-or-flight monkey brain into thinking it had, and won, a fight, and some of the stress response will leave you

[creekfiend]

#turn a slow tiger into a fast tiger with this fucked up trick

[bpd-hippo]

[palewansickly]

OMG. This. Changes. Everything.

[a-littlebit-ofsunshine-deactiva]

Reblogging for my followers who might have trouble remembering whether or not they’ve taken their medicine!

[nonespark-blog]

OH MY GOD, THIS WILL HELP ME SO MUCH. I GET SO SCARED WHEN I DON’T KNOW IF I JUST TOOK MY MEDS TWICE.

THANK YOU, I’M ABOUT TO CRY.

[backstageleft-deactivated202009]

Let me share with you guys a product that super helps me remember if I took my meds or not (because while the above is great, I still would manage to confuse myself):

They count as soon as you put the top back on. So if I don’t know if I’ve taken my medication for the day, I can check the cap to see how long ago I opened the container! It’s brilliant! 

[rainbowwhimsyart]

JFC THIS IS A GAME CHANGER.

I KNOW THIS IS MY ART BLOG BUT EVERYONE WHO TAKES MEDS SHOULD SEE THIS.

[papi-chulo-bucky]

Don’t forget! ♥️

[rossers-ramblings-deactivated20]

For all my friends who take meds on the regular or anyone in general. A great post.

[chronicbetween]

Hows my appetite you ask?

Well i just had a glass of chocolate milk for dinner AND dessert😏

[chronicbetween]

Hows my appetite you ask?

Well i just had a glass of chocolate milk for dinner AND dessert😏

[chaoticautie]

me: *saying "WHAT?" seven times to someone giving me coherent face-to-face verbal directions*

also me: *hears a faint noise and randomly lifts head like a deer* hey did u guys hear that??? wtf how could you not hear it-

[thebaconsandwichofregret]

Gotta love an ADHD/Autism solidarity post

[justthatpratte-deactivated20251]

[chronicbetween]

If anyone needs a good Hulu show to watch during all the time inside, i suggest the Zoo!! Its really soothing and feels like going to a beautiful zoo and seeing all the animals.

[chronicbetween]

Me: tried to say brain fog

Me: (what I actually said) I have brain frog 🐸.

[chronicbetween]

Me: tried to say brain fog

Me: (what I actually said) I have brain frog 🐸.

[chronicbetween]

Ok, so I just found your blog, and I’m laughing and crying at the same time cause it’s so relatable. There should a crying heart emoji or something, lol.

Haha i can visualize just how that would look!😂Im glad you find my blog relatable, i always try to be real about spoonie life💛

[chronicbetween]

As much as i realize it is unreasonable to think that tests wont show anything if my symptoms arent showing, it’s very frustrating that my hands are numb TODAY and not YESTERDAY when i had the EMG.

[forourtimetoo-deactivated202407]

Hi this is a friendly reminder that if you’re a woman/person with a uterus who has been diagnosed with a bunch of chronic illnesses, you’re not a hypochondriac. You’re not imagining things. You’re not needy. You’re not a drug-seeker. You’re not a wimp. You’re not a stereotypical Victorian swooning invalid.

Chronic illnesses go together. If you have one, you’re more likely to have others. And we don’t really know why because there’s a real lack of substantive research, but that’s not on you. If your doctor, your family, or anyone else makes you feel bad for your number of illnesses/diagnoses, please know that you are in no way to blame for the fact that these illnesses have high rates of comorbidity, or for the fact that our society has absolutely failed us in researching and treating these illnesses.

(This is from an article by Gabrielle Jackson about her new book, Pain & Prejudice)

[chronicbetween]

I genuinely enjoy going to a new dentist and seeing the horrified and dismayed look on their faces when they discover im missing 5 teeth cause GENETICS.

[ehlers-danloscircus]

When you're a spoonie with a body that fails at temperature regulation

Put sweater on - too hot, take sweater off - too cold, put sweater on - too hot, take sweater off - too cold…

[nisaexploresadhd]

As someone with adhd, is it normal for you to have days where you're just filled with RAGE. Like you just get irritated about nothing but also about everything? I was having this kind of day yesterday and I was wondering if it's an adhd thing

Yes, this is a very ADHD thing, Its part of the “lack of emotional regulation”

theres actually quite a lot of studies and info on this part of adhd so have no fear you are not alone

this is a link to ADDitude article that talks about anger and RSD and emotion stuff

this is a link to an article about a 2011 study

this is a link to coping with emotion stuff (i really only skimmed it so i dunno how great a source it is)

I have ADHD and autism and tend to be on the lower range of emotional expressiveness but i have some days where even my cats cuddlyness with frustrate me

[adhd-community]

I’ve been working a lot on identifying my own feelings lately and I often find that my days of RAGE seemingly without cause are often internal restlessness from the hyperactivity portion of my ADHD.

Personally it helps me to be as active as possible (run, dance, tense all my muscles, stretch etc) and continuously try to redirect my attention to something calming outside of my body (audiobook etc). Breathing exercises can also help.

It’s especially important on these days to let the people around you know that you might need a little more space today because you’re feeling out-of-sorts but that it’s not to do with them.

[chronicbetween]

For me when these days hit it’s usually because Im really overwhelmed. Be it emotionally, socially or mentally when i feel pushed over the edge i become really irritable and angry and short tempered with everyone.

When im having one of those days taking a time out for myself and focusing on something that i enjoy (for me its usually reading or listening to loud music) even for just 20 minutes tends to help a lot. I just need one thing to focus on instead of the 20 that are running through my head.

I hope you can find something that works for you nonny✨

[thebibliosphere]

Me, yelling at the robot vacuum: god damn it! who made you, why are you so freakishly strong? What the fuck!

Oppy, turning the corner having ripped the fucking wall vent off the wall in the dining room and merrily trundling on her way:

[thebibliosphere]

A criminal.

[foxoftheasterisk]

whaaaaaat? oppy is shredded! Our Dop wouldn't be able to do that afaik and he's same brand

[thebibliosphere]

I maintain there is something wrong with her because it genuinely seems too powerful for something designed to vacuum a floor. Nothing it safe, the other day she pushed the armchair out of the corner and in front of the TV. It’s like living with a mechanical poltergeist. 

[chronicbetween]

My WallE (same type as Oppy) constantly just knocks things out of the way. Benches? Check. Boxes? Check. Dogs? Check.

Above is the fiend