MarieEveM @marieevem - Tumblr Blog

Posts

surrah698

Yep, that's about right! 😆😅

audhdmemes44

Whenever I attempt to express myself, it gets misunderstood.

Whenever I stop attempting, it gets misunderstood.

justsomerandomgay

something that isn’t talked about enough with chronic illness is knowing that going to your appointments and doing your exercises and all that will help but being in too much pain or too fatigued to go, so your just stuck in this constant cycle of knowing what you need to do to get better but not being able to do it because your sick

auti-starshine

I hate waking up in a lot of pain because I did one (1) activity yesterday. Like wow I went to Goodwill to get clothes and now I must suffer. Thanks body 😭👍

marieevem

True.

Day # 2159 on Sertraline;

Stressfully Entering a new journey as Sertraline slowly becomes Duloxetine or “when you have to leave a drug that worked well for you for years because another one might best suit your new condition”.

#sertraline #duloxetine #antidepressants #chronic pain #fibromyalgia

lupusbaby

Any other dynamically disabled people feel this like,, pressure to get better?

I go to my doctor next week and I have to tell them I still feel like shit every day, but I have such an urge to lie because I feel like I should be better by now. I’m on all the medications, my bloodwork is perfect, there’s not even any disease activity on my labs. But I still feel like shit.

I almost feel this sense of guilt, or like I’m “milking it”, or exaggerating my condition. I get so scared my doctor will think the same.

chronicsymptomsyndrome

I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:

Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself through if you were to “tough it out.”

If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.

If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.

If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.

You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?

Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes

It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once

You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.

Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3

fadingwonderlandkryptonite

Something I want able bodied people to understand is that I don't want a diagnosis cause I wanna be sick so bad; I want a diagnosis because there is already something wrong with my body but I don't know what the fuck it is.

vensv

pills aren’t enough i need to destroy something

fromhersoul

Adult friendships be like “I miss you bro, let's hang out in November"

rachdam

Sometimes people seem a tad bit anti-recovery and it is kinda disheartening. Like. When I first started taking my meds I had questions, so I looked them up. Yk how many horror stories I saw while simply looking for the answer to my question? Too many. They say that you shouldn't look up your medicine online, but I think it's very sad that it's that way.

I get it, everyone is different and many people can and will have bad experiences with certain meds. That is okay! It's okay to talk about your experiences on it!! That's not the issue. I take issue with people who come online and say that all medicine will take away your personality and turn you into a shell of a human and how horrible all medicine can be. Again, it's okay to talk about your personal experience with a certain medicine. But to generalize? To frighten? To discourage people from seeking medical help that they may need? That's not okay.

Like I'm on zoloft and I've seen so many people talk about how horrible it is and how it's a shitty medicine for ANYONE to take. But it's working great for me!! I'm not perfect, but I feel the best I have in a while because I am on it! It may not be for everyone, but it is certainly for some people and I don't think there's any harm in checking it out!

The issue I've noticed the most is that some people don't want to talk to their doctors about it? Like I've seen people on zoloft who are MISERABLE and go "yeah you just get used to it 😋". Bro are you okay??? You shouldn't have to "get used" to feeling like shit on your meds. It's one thing to get through the side effects of getting on the med, but to continuously live feeling awful due to it? That's not okay. Nor should you tell others that THEY should have to put up w it. Medicine is supposed to make you better, not worse.

I guess I want more positivity. More people talking about how medicine has helped rather than hindered. Instead of scaring people to the point where they don't wanna give ANY medicine a chance, talk about the risks while also acknowledging the benefits of it.