ME/CFS

Myalgic encephalomyelitis is a serious and complex disease that is defined as a chronic illness that produces profound fatigue making it difficult to do every day tasks.

[me-cfs-syndrome]

To have M.E./CFS is not you being lazy it’s you trying to have a simple get together with your friends and being unable to. It’s not being lazy it’s not being able to do the stuff you love or be apart of your families moments together. Having M.E./CFS is wanting to have a small walk down the street but being forced to come to the realization that you can’t.

Having M.E./CFS is not being lazy. It’s you trying and your body being unable to help you.

[violet-phoenix-nebula]

When someone has a chronic illness or is disabled and can't work, they say a few common things.

It must be nice to sit around all day/sleep all day.

I wish I could sit around all day and not work.

I wish I could sleep all the time.

They don't want to sleep as much as we have to. They'd feel sick and sluggish.

They don't want to sit around the house all day not doing anything. They'd be bored out of their fucking skull.

It's so unbelievably fucking frustrating, but there's a fundamental lack of understanding.

They liken our lives to a vacation, imagining that it's fun and relaxing and we can do whatever fun things we want to all the time.

In reality, it should be likened to an extended hospital stay. You can't do anything and you feel like shit.

[myalgicencephalomyelitiscfstom]

[m-e-and-me]

i talk about medical fatphobia a lot and kinda feel like ranting again. it negatively affects every aspect of the care i seek and receive, yet no one except other fat people speak about it.

it is insidious, it affects everything, fat people die from it. but no one speaks up.

i am mostly housebound, and the time i spend at home, i spend 95% in bed. i live with severe chronic pain and moderate-severe MECFS to name the worst of my conditions. i struggle with walking both due to excruciating pain and due to PEM & crashing from MECFS. i am mostly housebound, and the time i spend at home, i spend 95% in bed.

i use a rollator, but it isn't enough, i need a powerchair. but when i scheduled an appointment with OT i got told that they can clearly see my need for a powerchair, but that they won't prescribe one because "i need all the exercise i can get".

it is torture, it is cruel.

all my health issues have been blamed on my weight, to the point where they will not even examine me. they see that i'm fat and won't bother to even do a physical exam. i get denied treatment, i get denied medications, i get denied lifesaving mobility aids, i get denied healthcare.

i am scared. my pain will remain severe and my MECFS baseline continues to worsen, because of medical fatphobia. and no one talks about it. no one.

LEARN ABOUT MEDICAL FATPHOBIA.

SPEAK UP.

THIS IS ABLUT MEDICAL FATPHOBIA AND FAT DISABLED PEOPLE — DO NOT DERAIL.

[mindflamer]

if i fall into severe me/cfs let it be known it was society's fault. so much of our deterioration could be avoided with proper diagnosis, support, & treatment at lower severity levels. instead they squeeze every last ounce of energy from us until there is literally nothing left.