[multiplesclerosisbarbie-blog]

i have an awful headache that is concentrated around my left eye and my vision is kind of wonky, like every time i look in a different direction too quickly i get a quick flash of dizziness/unsteadiness, i’m so fucking itchy bc of this stupid rash & i’m so tired all day every day haha i hate this

[multiplesclerosisbarbie-blog]

should i stop taking my tecfidera until this all gets sorted out? tbh my actual MS relapses were bad but that weren’t THAT bad and now i’m like sitting here worried that i have PML and i’m gonna die bc of this stupid medicine :) :) :)

[combatknife]

I’m losing my mind

[multiplesclerosisbarbie-blog]

things have gone to hell a little bit. i have this awful itching rash sprinkled all over me & my regular dr thinks it has something to do with the tecfidera - either a delayed side effect (i’ve been on it for 2.5 months!) or my white blood count is low & letting simple viruses take over my entire body lmao. but my neurologist still hasn’t gotten me the paperwork I need to get my wbc blood test bc he’s a fucking idiot. and i keep getting really stiff legs/bad leg cramps that tighten up my muscles so much it’s hard to walk for literally days afterward without being in extreme pain. i’m just really over it (it = everything). i feel like poop. 

[sweetpeachkween]

Used, but in excellent shape- only missing the tube grate, which has never been a problem for me. No scratches, dents or otherwise cosmetic damage to the tolex save for a 1/2 " notch in the bottom board (pictured above.) The tubes are less than a year old- there's a slight interior blemish on the...

Someone buy this beast & get it out of my house tbh. Sells for $899.99 on the Peavey website, we’re selling it used for $300. Picked up in early 2014 from our local music shop, it’s had two owners and has been excellently taken care of. It was serviced in February 2015 by Hi on Fi’s Mike Finck, a nationally recognized master service technician. Tubes are less than a year old. 

[aqeu-deactivated20171207]

@ bernie supporters: if hillary wins the primaries, vote for hillary.

@ hillary supporters: if bernie wins the primaries, vote for bernie.

either of them are so much better than anyone on the republican side and don’t refuse to vote just because your fav didn’t win

[arudetrans]

Literally

[wtddty]

Sometimes, you'll want to punish your body for punishing you.

You’ll want to skip medications or go for a run or not eat as often/much/little/etc as you should. And you’ll sit in the pain and suffering just to make your body hurt as much as you do mentally. But take a deep breath, and know that it doesn’t help. You’ll do it two or three or ten times before it truly sinks in, but remember, it doesn’t help.

[chronicallykiri]

Things nobody tells you when  you have a chronic illness

[multiplesclerosisbarbie-blog]

need to remind myself of this when i think ‘fuck it i already have ms a cigarette couldnt possibly make my life worse lol’ 

[multiplesclerosisbarbie-blog]

me: i desperately long for friendship and closeness

logic: interact with ppl

me: wtf the fuck

[multiplesclerosisbarbie-blog]

idk if im like crazy or what but heat does not bother me at all ms-wise. cold, however, drives me bonkers. my muscles get all tense and jumpy and cramped up and i get soooo sleepy and it’s just the exact opposite of how i want to feel ??? i’ve literally been taking scorching hot showers like 2x a day for the past few days because the chills i get have been so f**king annoying, and cut waaaaaayyyy down on my productivity bc who wants to be productive when you feel like shit!! has anyone ever heard of cold being the temperature that affects (effects? which one is it? idk) their MS symptoms? or am i just seriously nuts and way lazier than i thought

[multiplesclerosisbarbie-blog]

hey i like your blog :) do you have any tats?

go away

[multiplesclerosisbarbie-blog]

baby boomers: high school is the best time of your life!

generation x: college is the best time of your life!

millennials: *high pitched screaming into the void*

[multiplesclerosisbarbie-blog]

me watching the food network: His risotto is undercooked, isn't it? Oh, the poor, poor, fool. He should have never attempted a seafood risotto in this round. Tsk tsk Jeremy. If only you had gotten it onto the stove a little bit earlier. Now look what you've done. The judges will be most displeased.

me irl: mum how does the microwave work again

[sweetpeachkween]

Lmao my dad just exclaimed to my entire Facebook friends list the details of my personal medical diagnosis …. Like……. Where is ur tact? How is that okay to do?? (Its not, dad)

[multiplesclerosisbarbie-blog]

& then he wrote ‘oh i didn’t know it was a privacy issue.’ like, it’s not that it’s a ‘privacy’ issue, it’s a ‘it’s MY fucking issue & MY issue to share, NOT YOURS, issue.’ If i didn’t explicitly tell you that you could speak publicly abt it, how about u just don’t? 

[multiplesclerosisbarbie-blog]

at least if my brain atrophies because of multiple sclerosis i won’t remember all the super embarrassing things i’ve done in the past. 

[mustbelieveinme]

Happy MS Awareness

[nlo-ms-blog]

Curious about ‘Spoon Theory’? Check out our infographic to learn all about it!   

[sherpawhale]

Here’s to the people suffering from conditions that primarily affect women and people designated female at birth. There probably could have been a cure or more effective and humane treatment discovered 80 years ago, but sexism happened and people threw up their hands and said “what do  ¯\_(ツ)_/¯.”

Keep fighting the good fight for awareness and recognition. Your struggle matters and is deserving of more than a brush-off of “that’s how life is.”