Multi User Body

Diagnosed Dissociative Identity Disorder, Schizoid, C-PTSD + PSTD, probably autistic too tbh. 30's Kiwi trying to flap them wings. About me.

[multiuserbody]

I kind of want to talk about dissociative identity related stuff.

If anyone wants to ask any questions feel free.

I spent a lot of time looking into dissociative identity disorder around the time I got diagnosed. But I always found that just talking to people or listening to systems lived experiences was more helpful for me.

[multiuserbody]

Reminder that you can just cut out the elastic from waistbands. It probably won't be pretty but it doesn't take much skill. You can cut underwire out of bras too.

[plurplex]

It does admittedly annoy me that people believe that viewing yourself as part of a whole and viewing yourself as a person are two completely incompatible beliefs. Like... logically where does that even come from. I'm not less of a person just because I also acknowledge that, because of how our plurality works, I'm part of a whole system.

[multiuserbody]

Going to see if I can slowly learn something new

[multiuserbody]

I think I made a new friend and it's making me pretty emotional

[lifeafterpsychiatry]

You're not preventing harm when you deny people bodily autonomy, you're just causing a different harm

[multiuserbody]

People can accept this fact in other contexts so why is it so different when the medical system is involved

[maemaybe]

People expect monsters.

They want child abusers to be easily identifiable monsters, because the alternative is terrifying.

The alternative, and the reality, is that child abusers look just like everyone else. You can't look at them and know that they are dangerous. They don't have some identifiable devious look in their eyes. They don't all look like creeps.

They are just people. They are parents, grandparents, uncles, aunts, babysitters, family friends, teachers, pastors, priests.

They are people you trust. They are often warm and charming and "good with kids".

If you keep looking for monsters, you're going to keep walking right past them, and that's what they are relying on.

[deitywaylin]

(It's a mug that says "There is no 'I' in 'team'... but there are 6 'I's in 'Dissociative Identity Disorder'.)

[multiuserbody]

There's so much random abbreviations and words that just don't immediately make sense in tags talking about a hyper specific thing that everyone is arguing over (the same handfuls of people in that tag). It almost feels like some people make this sort of thing their hobby. Or twisted tribalism in a way.

Sometimes I pop in on said tags because I want to talk about stuff too but it's all so far gone that it feels like no one wants to talk and everyone wants to yell at each other. Add to that needlessly nonsensical language from earlier and it's just like woah I have no idea what any of this is so I'm not going to bother.

I'd rather try remember how to navigate Inkscape than random stuff that's only useful in the context of people who already have immovable opinions on a topic.

[multiuserbody]

Doctors constantly ignoring my history telling me that it's not an issue that a young person like me should have...

They also completely do not understand how dissociative disorders effect the ability to communicate accurate timelines.

And to top it all off they'll ask shit that's super imprecise in the wording and then be surprised when 2 years later they finally figured out some of the issues that could have been easily resolved if the former issues were addressed and more precise wording was used.

Pro tips. Don't have a uterus. Don't have tits. Don't be autistic. Don't have a dissociative disorder. Bring an advocate in with you.

[multiuserbody]

I did stop randomly passing out after stopping eating gluten but when I tell you I am SO TEMPTED to fuck it all up because I miss my local bakery

I am not lying

Also wondering if this gluten free information is going to be distributed evenly across the brain or if one of us stuck in 2014 is going to continue to get pie and energy drink from the local bakery

[pixierainbows]

April 8th: Do you think, since the time you found out you were autistic, that society's views on autism has gotten worse, better, or about the same? In what ways?

Yes very much and not for better . Not for Pixie and other more disabled autism people . Possibly for better for those more high functioning , but at much too high cost for those more severely disabled autism people ...

The “ conversations “ about autism now mostly centering high functioning low support needs autism people . because . They have many many many more words and much much much louder stronger voices . And . They been devastatingly aggressive about silencing parents , caregivers , doctors , therapists , Teachers , and all other people what care for low functioning high support needs autism children and adults . Autism people what not can communicate anything without help , what are even more language-disabled than Pixie .

So many low functioning high support needs autism people just not able advocate for them self . Pixie think is not very common be low functioning high support needs and still able “ speak up “ about experiences like Pixie can *sometimes* do .

Even when Pixie CAN communicate about experiences that not be common in high functioning low support needs autism people … too too often get harassed , accused of being fake / Just a “ stereotype “ , that experiences not actually possible or real , repeatedly told am wrong about own experiences and am “ bad representation “ . Pixie get silenced just as much as not-autism people what are try to advocate for they low functioning high support needs family members or patients .

It not always been like this . it not need be like this ! Is not competition !!! Is absolutely possible to have conversations about be high functioning low support needs with out punching down on more severe disabled autism people .

Is wonderful that people acknowledge those what are high functioning low support needs autism now . But . It must STOP being done by silencing those more disabled AND their caregivers .

[multiuserbody]

I've really been enjoying magical girl dandelion a lot.

I seem to really like vulnerable characters with op sidekick going through some shit. It's really comforting to me.

[multiuserbody]

I am not diagnosed autistic. Been suspecting it for maybe 5ish years now. Been pretty convinced for the past 2 years. The more time passes the more things happen that makes me certain. The problem with having social issues is that most people will not inform you that there is an issue (often even if it is severe). All the internal stuff is just your normal so you don't tend to notice or know it's abnormal. Because life is difficult for everyone it's easy to assume that many people are also dealing with similar issues to you even if that is not the case. The expectation to struggle through things and figure stuff out for yourself can lead to bad coping mechanisms rather than actually solving any issues. A lot of people will downplay or completely deny autistic experiences which can lead to you questioning your own reality. Well meaning people who are just trying to make a human connection with you will often try to relate to your experiences or aspects of your experiences which can also lead to confusion in some cases. The whole "trying to figure out what is wrong with me" journey is complicated at the best of times but all of this stuff just makes it harder. It makes a lot of sense that there's a lot of people who are late diagnosed with autism as our understanding of the human mind expands. "Fake it til you make it" and other similar sentiments lead to a lot of masking behavior. I doubt that I will ever get a diagnosis myself but the conversations around autism from medical professionals and autistic people speaking about their experiences have been extremely helpful to me.

[birdofmay]

Yes, some autistics definitely have theory of mind, but don't exclude those of us who struggle with it, stop generalising everything.

"Oh shit, I forgot that people can't read my mind again!" -> example of struggling with theory of mind.

"Damn, I forgot that you don't know this, that I have to tell you in order for you to know!" -> example of struggling with theory of mind

"Oh right, I assumed you'd know I moved the keys from the table to the shelf. It just didn't occur to me that I'd have to tell you, somehow I thought you'd just magically know." -> example of struggling with theory of mind

I know these things on an intellectual level because I've been told these things repeatedly. But I need to constantly remind me of that. I need to remind myself to tell people what I think. What I want. That just because I known what happened, they don't automatically also know it. I struggle with theory of mind. The thing that children struggle with at first and then usually develop at a certain age.

I didn't normally develop this ability. Many autistics have developmental delays or developmental disabilities, and theory of mind is just one possible expression of them.

[multiuserbody]

There are so many terms that are undefined and illogical. They sometimes rely on historical context. You're supposed to passively pick up on this stuff. When you are entirely isolated from the outside world for 18 years it makes it extremely hard to navigate these terms. Unfortunately a lot of this issue is within political terms. It makes a lot of conversation awkward because these things will eventually come up and I still get lost with the silly terminology.

[multiuserbody]

People will dead ass say "but people are faking dissociative identity disorder" as if people don't also fake cancer or pregnancies but you don't see those same people treating people with other conditions like they treat people with DID.