young mouse

be strong. be brave.   a past vs. present photographic journey of the life of oscar, our young mouse.

[myyoungmouse]

Noah. . #inmemoriam #epilepsywarrior #scn2a #scn2awareness

[myyoungmouse]

January 1, 2018. . New year, new look. Vision / feeding therapy combo. . Nyack, NY. . #cvi #corticalvisualimpairment #visionquest #visiontherapy #sensoryplay #sensoryexploration #mamamama #epilepsywarrior #scn2a #scn2awareness #disabilityawareness

[myyoungmouse]

January 1, 2018. . New year, new look. Vision / feeding therapy combo. . Nyack, NY. . #cvi #corticalvisualimpairment #visionquest #visiontherapy #sensoryplay #sensoryexploration #mamamama #epilepsywarrior #scn2a #scn2awareness #disabilityawareness

[myyoungmouse]

December 30, 2017. . When Oscar goes on a #visionquest he does better if he can hold hands. . #visiontherapy #cvi #corticalvisualimpairment #epilepsywarrior #scn2a #scn2awareness #disabilityawareness

[myyoungmouse]

December 25, 2017. . Last Christmas night Oscar had 24 seizures after our families left. Today he woke up in Christmas jammies, got a ball pit, met Santa, ate out of a light-up bowl, and had several upgrades to Little Room. Merry Christmas, Oscar. I wish I could give you the world, but today was a start. I love you. . Nyack, NY. . #myyoungmouse #mamamama #dadabeard #epilepsywarrior #scn2a #scn2awareness #disabilityawareness #sensoryplay #sensoryplaytime #sensoryexploration #corticalvisualimpairment #cvi #visionquest

[myyoungmouse]

The holidays aren't merry and bright for everyone. Take time to acknowledge and not ignore people's pain; they'll thank you for it. . Repost @bymariandrew . #borrowedwords

[myyoungmouse]

December 23, 2017. . Nyack, NY. . #sensoryexploration #visionquest #mamamama #disabilityawareness #epilepsywarrior #scn2awareness

[myyoungmouse]

December 20, 2017. . #visionquest with moon and tassel. . Nyack, NY. . #visiontherapy #teacherofthevisuallyimpaired #sensoryexploration #sensoryplay #epilepsywarrior #disabilityawareness #scn2a #scn2awareness #specialneedsparenting

[myyoungmouse]

December 16, 2017. . Tree lighting. . Nyack, NY. . #corticalvisualimpairment #cvi #sensoryexploration #scn2a #scn2awareness #disabilityawareness #specialneedsparenting

[myyoungmouse]

Leo. . #inmemoriam #epilepsywarrior #scn2a

[myyoungmouse]

December 14, 2016 / December 14, 2017. . Tonight marks one year since we came home together as a family. The first of many milestones to follow. These are not the milestones charted by doctors or laid out in parenting books. Our milestones are ours alone. Every day is a milestone for our family. I love you, boys. (Also, sometimes we celebrate with matching undergarments.) . Nyack, NY. . #myyoungmouse #mamamama #dadabeard #pastvspresent #nicustrong #epilepsywarrior #scn2a #scn2awareness #disabilityawareness #specialneedsparenting

[myyoungmouse]

December 12, 2017. . At less than a month old, we were told Oscar may never smile. We've been lucky enough to have had 200 days of them. It is the greatest gift of my life. Happy Hanukkah, mouse. . #myyoungmouse #dadabeard #epilepsywarrior #scn2a #scn2awareness #disabilityawareness #specialneedsparenting

[myyoungmouse]

December 9, 2017. . Mouse is hunkered down under an @cynicalsunshine quilt and humidifier mist fighting the first cold of the season while the first snows fall.

[myyoungmouse]

December 7, 2017. . Oscar, 14 months, gets five tooths brushed. . #myyoungmouse #monthbymonth #epilepsywarrior #scn2a #scn2awareness #disabilityawareness #specialneedsparenting

[myyoungmouse]

December 6, 2017. . This little Matzo ball is all smiles after pulling out his g-tube button while mama was on a conference call, giving nana quite a fright. . #tubiebaby #tubie #disabilityawareness #specialneedsparenting

[myyoungmouse]

Empathy is not a character flaw.

[myyoungmouse]

December 1, 2017. . Oscar, 60 weeks, gives 'em the horn like Dada. . #myyoungmouse #weekbyweek #epilepsywarrior #scn2a #scn2awareness #disabilityawareness #specialneedsparenting #sensoryplay