The Life Of ME

Living with ME/CFS, keen on advocacy and awareness and funding research.

[boolbaga]

[nntf]

my child: why is my cousin rose named rose

me: bc ur auntie really loves roses

my child: what about me?

me: be quiet may 12th 2017

[myalgicencephalomyelitiscfstom]

I’m one of the #millionsmissing a normal life due to #MyalgicEncephalomyelitis Read my story (2015) from Irish Independent here: http://www.independent.ie/life/health-wellbeing/health-features/no-one-chooses-to-have-me-everything-changed-when-i-became-ill-34153140.html Photo was taken by Rachel Lynch at #MillionsMissingDublin protest today. Tomorrow (May 12) is international ME/CFS awareness day.

[millionsmissingprotester-blog]

Missing from farming my Great Grandfather’s property in the Swan Valley in Western Australia so now we need to sell it.

#MillionsMissing

[millionsmissingprotester-blog]

Missing from being able to take the bin up the road to be collected and then having a problem with overflowing rubbish

#MillionsMissing

[simeyss]

Australians with ME/CFS are missing. 

[nntf]

Stand with me to support the Australian #MillionsMissing with ME/CFS and make an invisible illness visible. Join us http://thndr.me/wJIhbs

[nntf]

#May12th International ME/CFS Awareness Day. Join us for what's on around Australia. May12th.org.au #MECFS http://thndr.me/FlIamn

[may12thaustralia]

Social media image for #May12th

[nntf]

#May12th

[simeyss]

Australians with ME/CFS are part of the #millionsmissing.

Missing from their daily lives

Missing from the NDIS

Missing from research funding

Missing from clinical guidelines 

[myalgicencephalomyelitiscfstom]

[nntf]

Totally me yesterday, my plans and what I ended up doing were totally different. #Spoonie #ME #CFS

[sleeptightwithaknife]

Today I had to sleep after my shower. That really sucked.

[nntf]

Trying to work out if you should make lunch or wash your hair. #Spoonielife

[nntf]

May12th is coming...

Prepare yourself for ME/CFS awareness & advocacy posts!