☆ mackenna ☆

any pronouns//artist//musician

[no-good-username]

Paramore grad cap💪

The jump I took between barely listening to paramore in grades 9 and 10, FULLY INDULGING in my 2nd half of grade 11 after a heartbreak, and dressing up as Hayley for halloween and putting my favourite song/album on my grad cap is insane lmao

[iero]

HAYLEY WILLIAMS Minneapolis, MN | x

[no-good-username]

"be gay, do crime" bro what about be gay, do good

[no-good-username]

The only way I know how to refer to the mix of my leftist lifestyle/music/ideals and my connection w/ small rurual towns and folk/old country music is "folk punk" but that's something else entirely that has little to no connection to what I'm talking about or experiencing

I'd call it "bush punk" because my family always referred to their hometowns and hunting grounds as "going in the bush" but that also feels like I'm sending a completely different message than what I'm intending (I am queer but like we're talking about TOTALLY different shrubs here)

[strryspace]

i keep forgetting 2010 babies are only two years after me. its a jumpscare every time i see one of you on the internet its like seeing a five year old

[riotverse]

i watched good will hunting on the plane yesterday and i can confirm it changed my life im such a sucker for indie movies that make it big (and also anything robin williams is in)

[ilikereadingsometimes123]

what if I go see about a girl. and what if that girl is ME. what if i choose myself.

[drst]

Heads up my trans and queer friends, do not participate in this study. Spread the word to stay away;

Skeet from Alejandra Caraballo that says: If you see this, don't participate. It's a rigged study by Lisa Littman and unethical researcher J. Michael Bailey meant to undermine access to care. Spread the word.

[science-hoes]

Anyways

[no-good-username]

After being a Directioner and a Harry girl since kindergarten

Having HS albums drop both the year that I graduated grade 8 AND the year that I graduate highschool is actually crazy work

[shamebats]

[no-good-username]

Everyone talks about the "lesbian homoerotic friendship of doom" but nobody talks about being the 3rd wheel in the fallout having to watch everyone post vauge instagram notes about eachother knowing full well this whole mess could be solved by them just sitting down and talking for an hour or so but nobody wants to

and this all happens during senior year exams where everybody is busy with everything all the time....

also new pfp what's up lmao

[glitchdollmemoria]

oh hey btw, apparently tumblr mobile now has an option to report ads for having flashing lights, if you click the three dots in the top right corner it should show up. not sure how long thats been there but i dont remember it being there at least a few months back, i would venture to guess it came with the recent update but shrug. fucking ridiculous that they cant just not put flashing ads in our faces in the first place, but at least this is an option.

people who dont have issues with flashing lights are allowed and encouraged to reblog

[potsiepumpkin]

Useful information

[positivelyqueer]

hi, you there who are or are thinking about spending all day in bed, it’s okay, I’m not telling you to get up. I’d just like to do a quick check in to make sure you’ve got everything you need to be comfortable and safe.

Have you gotten up to take any meds you need?

Do you need to open or close your windows or curtains/blinds to make your environment nicer? (Fresh air, keep the cold out, sunlight/darkness)

Do you have a water bottle or a glass of water easily accessible? (Can also be juice, cordial, a meal replacement drink or anything else)

Do you have any over the counter or prescription as required meds you might need, like painkillers or anti nausea meds?

Is your phone or laptop charged?

Are you wearing comfortable clothing?

Do you have enough blankets/pillows to be warm and comfortable?

Do you have any snacks like fruit or chips or muesli bars in case you can’t get up to make a meal?

Are you able to change positions in bed (or sit up if you’re able)?

Do you have any regulation tools like fidgets, ear plugs, or journaling/art books or low energy hobbies you might want?

Are you being gentle and patient with yourself and your body today?

Thanks for doing this check in with me. I like to have some of these things prepared on my nightstand, or all together in the same space in my room so I don’t have to do as much work on low energy days. It can also help to have someone else prepare or get these things for you if you’re unable. Hope you have an uncomplicated day.

[sidras-tak]

Accessibility takes too goddamn fucking long.

My brother was paralyzed in October 2023. We got him home from the hospital (in Texas, when we live in Iowa) in a clunky old hospital chair. He hated it. He was scared and angry and in pain and his life had just changed forever and he couldn’t do anything for himself in that wheelchair. His first goal (aside from learning how to transfer) was to get a wheelchair. My family was lucky enough to afford one so we thought it would be easy enough. Nope.

We couldn’t buy him a wheelchair. He needed a prescription. For a wheelchair. A doctor had to examine him and declare him in need of a wheelchair. It wasn’t good enough that he had scans and tests showing tumors cutting off his spinal cord. He needed his primary care doctor to examine him during a physical and write a prescription. He was making 2-4 transfers a day, tops. He had no energy to get to a doctor. Home health was in and out every day. He had no time to get to a doctor. He didn’t get a prescription for almost a month. Then it had to go through insurance.

We asked if we could skip insurance and just buy a wheelchair for him. Nope. They wouldn’t sell us one, not even at full sticker price. It needed to be approved by Medicare. We ordered a wheelchair, a nice one, a good shade of green, sporty, small. It would let him move around the house. He would be able to cook, to reach drawers and get stuff from the fridge and brush his teeth and put his contacts in at a sink. We were told it would take awhile, maybe two months. Silently we all hoped he would be around to see two more months.

He went on hospice care on a Saturday in March. On Monday, I was calling his friends to come see him before he died. I got a call on his phone. It was the wheelchair company. They were about to order his wheelchair, she said, but there was an issue with insurance— had he stopped being covered by Medicare? Well, yes. When he started hospice care, he got kicked off Medicare. The very nice woman I talked to told me to call her if he resumed Medicare coverage so she could order his wheelchair. He died less than 12 hours later.

We ordered that chair for him in early December. Medicare didn’t approve the order until March. He was dead before they got around to it. He wanted that fucking wheelchair so badly. The only reason he had any semblance of independence and any quality of life for the last five months of his life was because the wheelchair company lent him an old beater chair, a very used model of the chair he ordered. If I could go back and change one thing about his end-of-life, I would get him his dream wheelchair. He told me again and again he couldn’t wait to get it, so that he could feel like a person again. He made the best of what he had with that old beater chair, but it still makes me mad to this day. He was paralyzed. He needed a chair that afforded him dignity. We had the money for it. And yet, we were left waiting for five months, for a chair that wouldn’t even get ordered until the day he died.

[myalgicencephalomyelitiscfstom]

Pre-chopped fruits and veggies make it possible for so many people with various disabilities to prepare healthy meals and maintain their energy.