Potsie Pumpkin

Hello! 30 |She/her| Disabled and chronically ill.

[infectiouspiss]

little miss awful body temperature regulation is taking his hoodie off again

[infectiouspiss]

little miss awful body temperature regulation has put his hoodie back on

[daveagainstthemachine]

disabled clown: oh boy I made it home! As a treat I’ll put on my compression socks and my compression belt and my compression shirt and my compression handkerchief and my compression handkerchief and my compression handkerchief and my compression handkerchief and my

[nimandmossy]

Ok but can we talk about the loneliness that comes with being chronically ill? If you’re not able to work or go to events, there’s so much time spent by yourself.

It feels like Im a zoo animal with no enrichment or friends, just me staring out the glass

[electric-lavender]

Putting on icy hot and then getting under an electric blanket to create a sensation I’m calling ~spicy room temperature~

[potsiepumpkin]

Like, I’m clearly not well.

[potsiepumpkin]

Blood tests came back abnormal, proving that I was right and my family was wrong!

And that I did not, in-fact, just need to change my attitude, think positive and move around more.

[vaticrevelation]

some days I think my pain has grown less

and then other days I’m convinced that it hasn’t grown less, but rather I’ve just grown much more used to it

[swoony-spoonie]

When the brain fog kicks in..

[potsiepumpkin]

I think I found the limit on the amount of medication my doctors can put me on. I can’t stand the side effects anymore.

[autistobrat]

absolutely hate it when I wake up tired like what the fuck did I lie unconscious for

[miinobobeano]

It bothers me so much that the healthcare system relies so much on the patient's ability to advocate for themselves, organize their history, and be so persistent against every medical “professional” who says there’s nothing wrong/they can do. But so many struggle with fatigue, brain fog, and face such ingrained systemic barriers, that the people who need and deserve help and support can’t access it.

I saw something recently that resonated with me: “Access shouldn't depend on who has the energy to fight for it.” And I’ve never agreed with anything more.

[memewhore]

[ihavenohotcocoa]

babe are you okay you reblogged got that fog in me 11 times

[catgirlanarchist]

wait, i did? i don't remember doing that...

[potsiepumpkin]

If I could broadcast this message everywhere I would. This is exactly what is happening.

[fibro-memes]

[themysticmango23]

Chronic illness is so isolating because I am curled under a pile of blankets trying to sleep while my body kills me and my family is laughing in the living room and I can hear it through the walls but I cannot reach them

[lupusbaby]

When you’re chronically ill or disabled, a short task also requires an allotted recovery time or flare time. I can vacuum my bedroom in 10 minutes with difficulty, but then I need 2 more hours to rest because I exerted myself. I might even need an entire day to recover from a more difficult task. So a 10-minute task now becomes 2+ hours, and an hour task becomes a day. So when I ask someone else to do a task I can technically physically handle, it’s because they can do it in minutes and I need hours.

[lostlegendaerie]

my ape brain when it gets dark at 4:45pm