Not The Crohnly One

Just a girl trying to thrive with Crohn's disease.

[snorlax-and-co]

[goldpixy-deactivated20230510]

please stop asking me how i'm doing, idk i'm ignoring it

[abutterflyobsession]

me: I will do things when I am less tired

me: *never becomes less tired*

me: oh no

[thatwritergirlsblog]

I have never seen anything more accurate in my life

[chronicallyinvisible]

i’m so sorry you all have to deal with everything that accompanies chronic illness…pain, medication, stigma, judgement, exhaustion, emotional distress, depression, ostracisation, isolation, misunderstanding, doctors appointments, constant interruptions, diet changes, general frustration and anger. chronic illness is never just chronic illness, it comes hand in hand with a thousand other things, and sometimes those other things are what become unbearable

[i-cannot-live-without-coffee]

Worse than the diarrhea, worse than the cramps, worse than the brain fog, worse than the loss of appetite, worse than the fatigue, worse than the arthritis, and worse than the skin problems is the knowledge that I may have to put up with this disease for 70 more years.

[notthecrohnlyone]

THIS.

[positivity-in-pain]

🎩🔮

[notthecrohnlyone]

I went to a Harry Potter party at the weekend.

I danced all night like I was a normal 25 year old and not a chronically ill one!

... well... I danced till 10.30, but you know what I mean.

[owlet]

just wanted to make a quick announcement that if you’re an able-bodied person who uses the handicap stall when all the other stalls are available, i hate you! i hate you on a very personal level!

[notthecrohnlyone]

Don’t be so quick to judge! I look able-bodied, but I have bowel disease which is why I sometimes need to use a disabled toilet.

[positivity-in-pain]

😂😭😂

[positivity-in-pain]

Mine is Disappeared.

[notthecrohnlyone]

[l0ckscreen]

some day

[notthecrohnlyone]

Quick Update

Hello all! Sorry, I know I’ve been on the quiet side again.

It’s taken me a few days after my Humira injection to stop being in pain, and now I’m just very tired. I’m having to limit what I do, but seeing as I only have a week of my six weeks off work left, I’m trying to get out and do things.

Last week I went for some countryside walks, some coastal walks, and to the Imperial War Museum at Duxford.

This week I’ll be going to the beach, going to IWM Duxford again (we’re members), and going to a Horticultural show as I’ve entered a photography and poetry competition there.

Thank you for being patient with me!

[notthecrohnlyone]

I've been having a few problems since I was switched to a cheaper medication (Imraldi) a few weeks ago. Having had the worst week and a half ever, I've been bombarding my nurse with phone calls. 

I got a call today to say my test results are not only showing a rise in inflammatory markers (meaning I'm having a Crohn's flare), but that I'm also showing signs of an allergic reaction to Imraldi 🤦‍♀️

Changing back to Humira, hopefully they'll learn and stop trying to change my meds!

I also have a 24 hour blood pressure monitor on today, which is making me grumpy. It goes off every half an hour and is painful. Here’s a pic of me with it on.

[imightjustbegone-deactivated201]

@ august please be a little gentle with me I’m so tired

[notthecrohnlyone]

Hey I got new filters and I’m pretty excited by that!

[notthecrohnlyone]

My body is a traitorous bitch

[notthecrohnlyone]

Made it to my friend’s wedding yesterday, but has to leave at 8pm because of my Crohn’s.

I’m trying very hard today not to feel down about it, as I saw the ceremony which is the important part. No point in thinking about something I can’t change.

Anyway, here’s a picture of me before the wedding.