Just WAIT until you talk to the husband....
Patients with dementia can be tough.  Youâve got all their ordered treatments and all the standard nursing care aside from the constant battle to keep them calm and in their bed.  But this patient was intubated and sedated.  Easy patient, I was toldâŠ.âas long as the husband doesnât call.â Â
The husband called about twenty minutes into my shift. Â I had just left my other very unstable patientâs room. Â I gave the standard nurse âWhy Canât Patientâs Families Wait Until Iâve Actually Seen The Patient To Ask For An Updateâ eye roll and answered the phone. Â
I canât remember most of the conversation.  I couldnât even make sense of most of it, it wasâŠdemented.  Hereâs a little snippet:
âWhen you talk to her, does she understand what youâre saying?â
âI canât say, sir. Â We need to keep her very heavily sedated right now becasue of the condition her lungs are in. Â Itâs very difficult to keep her breathing in sync with the ventilator when we turn down her sedation, so the doctorâs have ordered us not to do that right now.â
âYeah, but youâre a nurse, right. Â You went to school for this. Â YOU CAN JUST TELL.â
âSo when she wakes up, sheâll be able to understand and talk to me just like she used to?â
âHonestly sir, we canât tell right now. Â She wasnât breathing for quite a while before help got to her. Â She could have brain damage as a result, but we wonât know until we can wake her up.â
âThen do that. She canât breathe with all the stuff in her mouth.â
âWe canât safely do that right now because her lungs are too filled with fluid.â
âDoes she feel like she canât breath?â
âShe is heavily sedated right now, she doesnât feel much of anything, Iâm sure.â
âWell I canât talk to her, butâŠâ
âThatâs RIDICULOUS. Â Arenât you a real nurse?? YOU should be able to tell!â
âIâm sorry sir, we canât answer that either way right now. Â I really wish I could tell you more..â
âBUT YOUâRE A NURSE. You must not be one of the smarter ones if you canât even tell.â
This conversation went on for a long time.  Many nurses passed by me with sympathetic looks, knowing who i was talking to.  I vaguely remembered a term from nursing schoolâŠ.âperseveranceâ, was it?  When a person with neuro issues gets stuck on a particular subject and canât get past it.
Heâs railing nowâŠabout how we donât tell him anything, and weâre liars, and why canât we just do our jobs. Â
My other patient needs attention.  Hypotensive, tachycardic, looking very pale and shocky.  I need to get off the phone with thisâŠ..(insert synonym for crazy here) man and take care of it, but I canât seem to get a word in. Â
Until he stops, abruptly. Â
THANK GOD, maybe he tired himself out. Â Or forgot what we were talking about. Whatever, I need to get off this call. Â I have no time for this nonsense.Â
âWeâve been married 49 years.â
I know this is true because the offgoing nurse told me that the patientâs son told her his parents were going to celebrate their fiftieth anniversary this year. The son is unable to bring his Dad, who lives an hour away, to the hospital to visit his Mom, for various reasons.
âI really donât know what to do here without her. Â I donât think weâve been apart for a day since we got married.â
The shame hits. Â At what point did I forget that I was talking to a human being who is living though a nightmare? Â Who may not even have the capacity to process what heâs being told? Â
âThis has to be so hard. With her so ill, and not being able to visit.â
âI want you to know we are doing everything we can to get her better and back home to you. Â Okay?â
I make sure he has everything he needs, since the son is unable to help much right now. Â He has Meals on Wheels, a neighbor who checks in. The callâs over.Â
I run around doing all the things I need to do for my sicker patient. Call the NP, pressors, STAT labs, blood transfusion. Â
When I finally make it into her room, I know I look at her differently than I would have if I hadnât spoken to her husband. Â She not an elderly septic lady on the vent who may be brain dead, not anymore. Â Sheâs somebodyâs sweetheart. Â
The guy has dementia, sure. Â But he cleared my thoughts up.