moominland chronicles Sechszehn: bloody tale of woe continued
Sunday, Monday, Happy Days,
Tuesday, Wednesday, Happy Days,
Thursday, Friday, Happy Days,
The weekend comes, my cycle hums
Happy and free. (Oh Happy Days)
Share them with me.(Oh baby)
Goodbye grey sky, hello blue,
there's nothing can hold me when I hold you.
feels so right you can't be wrong,
rockin' and rollin' all week long.
Groovin' all week with you
It’s Wednesday // now its Sunday (I couldn’t finish this on Wednesday, it was still to close).
First off I’m asking for money, I will go into more depth next week because I’m facing the crisis of what the value of my work really is, for now this is my Crowdfunding campaign:
https://igg.me/at/bocemachtocho/x/19564227
Please support if you can.
Just listen to these, they’re both little slices of genius that deserve your time:
LYDIA LUNCH
Queen of Siam
https://www.discogs.com/Lydia-Lunch-Queen-Of-Siam/release/392276
NICOLAS JAAR
Hardcore Ambient Mix
https://soundcloud.com/otherpeoplerecords/nicolas-jaar-harcore-ambient …
Here’s the recap and then what happened next on my fine romp through the German Health service…
First clot plops out, come into contact with rude receptionists, no one will give me an appointment
Horrible morning cleaning, go to TK and sort my insurance, go to emergency doctor who tells me to go to a gynaecologist
Home all day making work, have a little singsong at night. (national holiday - no doctors open)
Go to job, go to gynaecologist who's not there / will be going on holiday, ring more rude receptionists, fall into the office of a gynaecologists pleading for help, take my pants off, get ultrasound spy dildo inserted up me, bleed all over the doctor. Am told I am pregnant, am told I am not pregnant, am told to go to hospital and go to my insurance. Go to my insurance, get my letter, wander round seemingly abandoned hospital, go home broken.
Oh, ask for help- email my boss / mentor and tell her what’s going on. Email all my clients and cancel all my jobs for the next week.
Wake up and get a taxi to hospital.
Beg to be seen by someone.
Female gynaecologist sees me this time - take my pants off, get ultrasound spy dildo inserted up me and am roughly routed around in with alarming metal objects and no warning that it will hurt or being asked whether I am in pain. Am told it’s not a baby its a polyp, am scheduled for surgery, spend 2 hours filling in forms, waiting, am given appointment for 9.30am Monday morning and turfed out. Leave, realise I can’t get the note from my doctor (they’re all closed) I need before the weekend, go back, cry at admin assistant, have minor breakdown, am settled and sent away.
Sit shakily on bench in small square by U Bahn on the grounds of the hospital, talk to Moon, go home, tuck myself in and bleed.
My mentor says she’ll come to see me at the hospital, what do I like to eat (I have to stay overnight).
Move very little, bleed very much, buy some food.
Much like Saturday but I write and publish my blog.
My mentor asks me what time to come see me.
First wave of friends that read blog get in contact,
“Felice ….. now im sneakily reading your bloody ( literally bloody this time) blog to find out whats actually happening with you. I hope you´re okay!, and if you ever do ask for help I will do my best to help you.”
Get up 6AM, have shower very slowly, am in a lot of pain (its worst in the morning), sit outside my house and wait for Taxi, get taxi, tell the driver I miss free healthcare, he tells me he misses his family in Istanbul. Am deposited outside doctors (to ask for note), wait for 20 mins to get slip of paper and give the receptionist a hug.
Get another uber to Hospital, he leaves me at the gates and I walk to the Frauen Klinik, not sure of where to go I wait at registration then am directed up to my ward and power off with 45 minutes till my surgery, the admin assistant tells me “alles gut”.
Up at station 35, the nurses are friendly, I go to another registration office, back to wait in overcrowded little patient room, fill in a tome of forms in German using the camera on Google Translate to try make sense of them, hand back the forms and slyly observe the small Russian family to my right, the son talks expansively, the mother is softly spread from middle age and fairly tethered to the father, she beckons him to join her but he’s brittle and stands by the window instead, I don’t know what's wrong with her.
30 minutes after my scheduled surgery, 10am, then 45, I am called in to a nurses office where she tell’s me, as if I should know, I’ve been rescheduled for 12:50, she's nice and she tries to speak English, she asks what becomes some kind of pass code,
“Have you eaten on drunk anything today? Do you have any allergies?”
The nurse will take you to your room now, but go back and wait first.
I encounter a gorgeous young elfin nurse and ask if I can go a cigarette on my way to the patient room, where more people are piled in now, she says yes 5 minutes, I promise thats what I’ll do.
Inhale cigarette run back upstairs.
She’s there again, she didn’t know I was scheduled for surgery! Tell them when they take you to your room, just in case.
I stand in the corridor for 20 mins, there is nowhere to sit in the patient room.
A nurse comes and deposits me in my room, it's like places I’ve stayed in generic expansive hotels, a Holiday Inn perhaps, charge my phone, hug my pig because of course I brought him. A nurse enters roughly 30 mins later and tells me to change, its the young elfin nurse, I bundle my things in the cupboard and lock the door, give her the key. Then I change and wait.
In comes another nurse, high cheekbones and a wide smile, I climb into bed but manage to get her to listen to me when I say I’ve had a cigarette, a gasp, she calls down to surgery, a moment where I’m not sure if they’ll operate, but its ok and off we go. I am wheeled to the lift, she touches my shoulder often, she's forgotten all her notes and runs back to the room leaving me lying by the lift, she comes back, still no notes, they’re under my pillow. We continue.
It's like a hospital drama from first person perspective, I’m scared, I’ve never been wheeled around in a bed before, the viewpoint is totally new and robs you of all your independence, I am just a body, unable to move, looking up at the people that flash in and out on my journey down to surgery.
“Have you eaten anything today? Do you have any allergies?” Repeated over and over again, I tell my surgeon I’m not sure sure how much I love Berlin after the last week, I tell the man that doesn’t introduce himself to me and has a strange smile on his face that makes me feel uncomfortable, that I’ve lived here for 6 months, I repeat “No I’ve not eaten anything, No I don’t have any allergies, I’m wheeled next to the operating table, my clothes are removed, a drip is stuck inside me and I’m given a mask, I precariously climb onto the table and then nothing….
I wake up blearily, to be told there was no polyp, its low estrogen, blinking, moments of consciousness, they explain what’s wrong me, or not in this case because they don’t know, there was a lot of blood, I feel like it’s my fault. I ask for the blood clots they’re removed, because I want to see them, but they’re never brought to me.
My nurse takes me back to my room, there’s another woman there now, I’m so frustrated that after an hour or so of sleep I stubbornly dress and go for a smoke, despite the head nurse on the ward saying “if you pass out, I’m not coming down to collect you.”
Then back up, more sleep, my rose quartz angel (mentor, but this is her true form) comes to visit, she brings lilies and salted chocolate, I tell her they didn’t find anything, I am still bleeding, now in my hospital pants rather than my own knickers. She leaves when the nurses bring in dinner, 2 slices of stale bread, 2 slices of plastic cheese, 4 patties of butter, cheese, to be honest I’m not sure. I eat them but am glad I have the chocolate to.
I’m still high on the drugs they’ve given me, I buzz up and down for cigarettes and feel strangely lucid, I text and read the books the rose quartz angel brought me, I try and pretend to myself that it’s all ok now.
My roommate is Russian, she speaks in German or Russian on her phone constantly, but she does not understand English, so we don’t talk. At 21:30 the head nurse administers pain killers and offers to freshen my back “no thanks” then my roommate turns off her light, so I do the same.
But I can’t sleep, so I just toss and turn, 2 hours or so later I wake and patter off to the kitchen to look for food, I’m starving, I find a container of muesli and some milk, I sneakily pour it in a cup alongside a cup of soup, then I craftily return to my room feeling like I’ve subverted the system somehow. The water isn’t hot enough for the cup of soup to melt so there’s fatty globs of it still in the cup, I eat everything anyway, in the dark, then I try to sleep. Another few hours and I manage some shut eye, my body is craving touch from another though, it’s desperately shouting at me.
Good Omens is funny isn’t it?
Eartheater has played and is now probably at some hedonistic afterparty.
My roommate wakes before me, but I’m half awake, people come in and out (nurses to attend to her requests), she talks on the phone, at 9:00 they wheel in breakfast, 2 slices of stale bread, a piece of plastic cheese and more patties of butter, plus some questionable conserves.
A doctor comes in whilst breakfast is still at my side table,
“So you can go whenever you want, we told you what's wrong with you right?”
“When I was high on the drugs you’d given me yes.”
“It’s a hormonal imbalance, you need to go see your gynaecologist so they can give you the IUD.”
There was no polyp, or alien baby, but I wasn’t conscious so how do I know.
I pack up and exit like a rockstar, but maybe the kind of rockstar your dad becomes at a disco after a few beers rather than Iggy Pop. Before I exit the hospital completely I go see the admin team about my insurance one last time, to ask if I have to call my insurance, because apparently this little hospital holiday will likely cost up to 30k, the woman tells me its ok and I give her a big hug, lilies still in hand, then I dance down to the street, I must still be high on drugs.
i sidestep to the office of the woman I cried at on Friday, because it wasn't her fault so I drew her my lilies to say sorry, she doesn’t have her flowery crocs on today but she's still oddly special and her eyes are crystalline as I run off.
I go home on the U Bahn, via the gynaecologists I’ve now crashed into 3 times this week, but my welcome isn’t so warm this time. I need to see the doctor, maybe not today but this week, I hand them my referral note and my operation notes, she goes to talk to him. I get the impression I’m becoming an annoyance now, as if this is all my fault.
“He can see you in 10 days”
“I haven’t stopped bleeding, I need it to be sooner than that.”
She is still kind faced as she ponders this, “ok Thursday morning 8:30?”
“Thats my birthday but yes.”
I finally get home after making some heady announcements via email and facebook that all is right with the world again (drugs still? Who knows).
My rose quartz angel brings me a ton of leafy greens, soups, nuts, tea, yoghurt, chocolate, the care package from heaven and she sits in my little yellow kitchen briefly not drinking her tea.
“So did they take hormonal tests if they think its hormones?
I don’t think you should go back to this doctor, I think you need a second opinion and I think he’s a tool, get some more contacts and I’ll do a call round for you tomorrow, see what I can find.”
She had botched surgery before she moved to Berlin, there’s a hole in her mouth now, she called and emailed surgeons all over the world to consult with. She sat opposite a friend of the surgeons, another surgeon, who told her that her investigation could ruin his friends reputation, he didn’t give his opinion.
After she leaves I’m thrown back in to a land of exasperated worry, I trawl the internet to find more English speaking gynaecologists, I phone the doctor that discharged me, who is not happy to hear from me and through gritted teeth tells me there are no hormone tests, any medical professional would just know that it was an imbalance.
I go to bed worried, the bleeding is getting heavier again.
After a very goog nights rest I receive a call from my rose quartz angel, shes got me an appointment way out at templehof in 2 hours. I dress and get ready slowly, all the connections are seamless, I feel like my angel is with me, I get to the doctors in good time.
Walking through the leafy grounds of the hospital with crisp autumn sun shimmering through the leaves that are a spectrum of warm colours. Not in a panic because my rose quartz angel has sent me a map as well. I walk in exactly on time, have a little tussle with the receptionist about my insurance card, am seated, wait on a white wicker chair reading Alan Watts. The waiting room is airy and feminine, the staff wear pink t-shirts and German pop echoes out from the speaker just to my right above me, I pour myself water and have a little cup of tea.
When my doctor comes out I look at her for 5 minutes before registering she's asking for my name.
Then I repeat my bloody tale of woe to her.
She doesn’t want to just bung me up with an IUD, it will cost me 300euros to do so (or there around) and it won’t solve the problem. She wants to have a look in my uterus as well, so I climb on to her chair and have the spy dildo inserted up me for the 3rd time in the last 7 days, but shes gentle, she tells me it might hurt and to let her know if I’m in pain.
“Well they did a good job of cleaning you out at least because there’s nothing in there now.”
Clothes back on, my ovaries look fine, she’s going to check with her senior doctor to see what he thinks.
I’m back in the waiting room, then in her office.
“So, pills to clot the blood and stop you bleeding. You don’t have to go on the pill, what do you think?”
“I think I want to cover all my bases.”
“Great, me to.
Once the bleeding has stopped call us, then we can do a smear test and try to find out whats going on.”
I walk out to a really beautiful autumn day, the kind that framed your first weeks back at school or college, when everything was so fresh and exciting. Whilst I wait for my pills I have coffee and cake at a small cafe that serves the passion cake my mum makes, its the only place I’ve ever found that does so and I’ll be back there again next week.
The bear messages me that the doctor agree’s he's showing symptoms of chlamydia, he's been given antibiotics and I should go ASAP (but no test results as of yet).
“I’ll talk to my gyno next week, its my birthday today and I’m sick of clinics and hospitals this week.”
STI tests are not covered on my insurance.
Ok, no more days need to be charted now, the bleeding is nearly stopped I’ll be back to leafy Templehof at the earliest convenient time next week.
If it is an STI after all this let me just quickly cite what would of happened had I been in the UK with the NHS:
I would of gone to the sex health centre at Homerton Hospital, the same time I went to the emergency doctors on my first visit, around 3 months ago. But I would have had the whole spectrum of tests, rather than just doing 3, because I couldn’t afford the chlamydia test and it would cost 300euro if it came back positive anyway.
A week later I would of received an automated message telling me if I had chlamydia, I would of gone to collect my antibiotics and nothing more would of come of this.
It would of cost the NHS at least a 10th of what its costing my health insurance provider in Germany, because it would of been solved, no carousel of ultrasound spy dildos. No being wheeled down to surgery.
I’m not saying it is Chlamydia, it could be hormones, it could be cancer (but lets brush that one aside), but if it is Chlamydia then this glaring discrepancy of costs and stress is almost mind boggling, all because I would of had access to free testing and treatment.
Anyway I’m done for now, though will update again next week, hopefully in less detail as I’m hoping now I have a diligent and thoughtful doctor I’ll be able to start getting better, and as I say the bleeding has nearly stopped.
My birthday was fantastic, I got to lie on the floor of Saal 1 at Funkhaus and let sound wash over me, bless the folk at Monom, I’m off to Treptower now to see friends I haven’t seen in a while then to a dance studio I’m renting, to sing my heart out in peace. It’s another beautiful day and I’m really looking forward to seeing these friends, I’ve missed them.
But just before I round out this tale of madness for now, I want to say that during the course of the week so many people have been in touch from Berlin and from home to offer support and anything else they can do, it’s really a beautiful thing, there are so many fantastic people in this world and I’m so grateful, thank you. I put all my dirty laundry on display, I don’t really know why, but I get so much from doing it and I don’t think I’ll be stopping anytime soon.