"I'm Dorothy Gale from Kansas"

JVL

if i look back, i am lost
Sade Olutola
🪼
Stranger Things
DEAR READER
let's talk about Bridgerton tea, my ask is open
Acquired Stardust
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@theartofmadeline

oozey mess
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he wasn't even looking at me and he found me
Not today Justin

blake kathryn

titsay
taylor price
Claire Keane
seen from United States
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seen from Chile
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seen from United Kingdom
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@salivation-army
the more I find out about the stuff I'm dealing with (spontaneous CSF leaks/fistulas, particularly in people with EDS,) the more convinced I am that it is one of those things that is not actually rare, but rather one that the medical profession must necessarily frame as "rare" to justify how little time, energy, research, care, etc they are putting into trying to figure it out. if every hospital in the country had one of these machines that can pinpoint the exact location of a CSF fistula and the technology to patch it, I suspect we would find that it's something like... 1 in 100 people. this is why I actually refuse sign on to the whole EDS patients as "zebras" thing. for patients of a certain age, with a certain hormone profile, with certain medical and family histories, with certain phenotypes, with certain reported symptoms? EDS is a really, REALLY safe assumption. particularly given that the alternative "horse" explanation is generally "it's all in your head and nothing is physically wrong with you" which I think is GENUINELY rarely, if ever, true. if EDS patients are zebras, well baby, we're in the Seregeni National Park. 🖕
but because there are like... three of these machines in the entire United States, and very very few experts in a process of diagnosing and patching, we have to all pretend that it's like, suuuuper rare! lol! fuck you. is my opinion. fuck you medical industry. fuck you.
like, 1. EDS is not rare. 2. EDS results in physically weakened tissues, which affects the dura (tissue around the spine) 3. people with EDS are more likely to accrue minute tears in the dura from activities or experiences that would not tear it for someone with functional connective tissue 4. because CSF leaks are generally diagnosed and patched when someone has been through a huge trauma like a car crash or surgery, we just don't have the ability broadly to locate and fix micro tears or fistulas (leaks that open sometimes and close other times) 5. anyone with EDS could have any number of these without knowing because the lack of availability of care means that no one is telling them it is a thing because what is the point, the few centers that diagnose this are already overrun 6. people have something SIGNIFICANTLY wrong with them that impacts all kinds of things in their bodies and causes all manner of disability symptoms that medicine is just going "ehhh" and shrugging about. because it isn't equipped to serve everyone who is experiencing this.
the good news as I hear it from a guy who was trained at the Duke program and who now runs a similar one at Emory, is that a lot of places are in the PROCESS of trying to acquire one of the machines that can pinpoint fistulas, but the machines are large and complex and expensive. so that's slow going most places. again: capitalism directly impacting whether or not anyone gets to know anything about the way their bodies work. its crazy. i found out about this bc my neurologist happens to have helped Duke develop the program they use and has referred a bunch of his migraine patients there because he knows what to look for. if I had not seen a neuro who had that experience they would not have thought to order the correct imaging and would not have referred me out to the CSF department at Duke. so like, I just got randomly lucky.
at some point I'm going to put together a packet of info for people who want to pursue trying to find out if spontaneous CSF leaks/fistulas might be part of what they're dealing with for people who don't randomly get lucky with their neurologists but it's too much work for me to manage right now due to how I don't have any cerebrospinal fluid in my fucking brain
^ the degree to which patients themselves are at the forefront of trying to ensure that everyone with these issues is able to access information and care is truly such a fucking indictment of the medical industry. like. we are significantly disabled by these conditions, we have all manner of medical trauma about the way we have been treated, we have extremely limited energy for doing this work, we are doing it all entirely uncompensated, and we are STILL DOING A BETTER JOB than people who GET PAID TO DO THIS.
its enough to make you absolutely insane if you weren't already absolutely fucking insane. i sometimes see professionals acknowledge this by going "patients are at the forefront!" in a way that is clearly supposed to be like, Recognition of our Hard Work, and its like. i think the words you're looking for are "oh my god I'm so so sorry that you are having to do this, it isn't your job, it's my job" but sure ok.
Fish-shaped interlocking paving stones.
dude, this is really scary, and liminal as well. It's like the bathrooms
Just received a very small batch of ‘Every Pill I Took: 2000 – 2001’ by Michael Lorenzini.
It's perfectly natural for autists to like trains because trains are like our older brothers, to whom we can look up. Trains are big and strong creatures; unstoppable and proud, but they are elegant and logical. Not human but like humanity they are higher than beasts. The train is like a stoic sword hero who does what must be done and whose will must be respected, for his course cannot be altered. A train is an adult man with asperger's who has a job. And he's faster than everybody. I could be like him some day.
This sick bleach shirt I made. Something to showcase my undying love for prehistoric cave art.
Some of the bleach burned thru the shirt bc this was my first time bleaching anything ever, but it kinda adds to it.
there is no greater joy on this earth than Making Lists, Categorizing, & Sorting
oh do I have the game for you
I could . not. put. this down for 48 hours - stayed up too late, had weird dreams about it, woke up early, and played it while I was supposed to be doing other things. the last several dozen items took a lot of googling, which I do not even begrudge it.
and then. My partner started it. And the SAME THING happened to him.
surprisingly compelling. start when you have free time. like, yanno, a snow day.
oh my god, if you are the kind of person who gets sucked into logic puzzles, do not click that link if you have to do anything/go to sleep in the next couple hours
I was disappointed there weren't more levels, so I made them! The creator's code was under CC Share Alike, so I moved a copy to my website, rustled up 40 new categories, and added buttons so you can generate smaller puzzles!
Check it out! More levels!
Cathedral Gorge State Park
Apparently someone got their car stuck on the light rail tracks at Mt. Baker. For those unfamiliar this is 35 feet up in the air
Fun fact! this is likely due to racism. Not the drivers, to be clear, but this is a not-entirely-unsurprising result of systemic racism in the greater Seattle area and the influence it has on infrastructure spending.
I'm a huge proponent of public transit, rail in specific, and I'm very glad that the greater Seattle area is finally starting to see some solid light rail infrastructure sprouting up in the form of the 1 and 2 lines, but that in no way stops me from critiquing the decisions made in planning and implementation.
Light Rail, in it's colloquial form here in the US, is basically always a compromise solution. It's cheaper than subways, can make good use of existing right-of-way around freeways, and can function as a kind of low-capacity commuter rail in the subways while behaving more like a tram or streetcar in downtown areas. It is crucially, however, not a streetcar, nor is it a commuter rail. Streetcars make frequent stops and are optimized for dense areas with lots of traffic. Commuter rails are larger and stop lest frequently, optimized for bringing suburban residents into city centers. Commuter rail should, however, be independent of street traffic so it can travel at higher speeds. For this reason, most of the Link light rail system in seattle is actually not at-grade (street level), but on either elevated or sub-grade track. Downtown, the lightrail actually functions as a low-capacity low-frequency subway system in what used to be the bus tunnel (we don't have time, but yes it was stupid). Everywhere else, it's up on elevated tracks that largely follow the freeway system.
There are three stations, all immediately south of that Mount Baker elevated station, where the Link actually runs at-grade. These stations run through the historic low income immigrant neighborhoods of southeast seattle. Here, the trains are forced to stop at red lights, interact with crossing and left-turning traffic, and even cross through terrifyingly narrow pedestrian islands. They could have built elevated track here, as they did everywhere else, but they didn't. they didn't want to spend the money. I have personally watched light rail cars carrying hundreds of people have to wait two full minutes for cars turning left in front of them, delaying trains so like, 5 people could drive there. Once it reaches the end of this low income immigrant-dominant neighborhood, however, the Link returns to it's above-grade status, with Mount Baker being the first elevated stop. You want to know how this woman, who claims she was misdirected by her GPS, probably ended up here? I would bet anything she tried to make a turn at the intersection just before the stop and got confused. The intersection, for reference, looks like this:
I'm not saying it's an easy mistake to make, but given the number of people who drive through here every day, it's honestly not that surprising that someone, especially someone who is from out of town, or someone who is used to shared streetcar lanes, would eventually make this mistake. When you're dealing with a city of hundreds of thousands of people, it's only a matter of time before a mistake like this happens. but it is only possible for it to happen because of the decisions made in the planning process, and one of those decisions was "we can save money if we make everything worse in that part of town where all the foreign poors live", and so they built the thing at-grade, instead of keeping it elevated like everywhere else.
and yes, those tracks are in the middle of a four lane road, and no, there is no way to get to any of the at-grade stations without crossing at least two lanes of traffic on a very busy avenue. and those tiny little pedestrian islands are not only terrifying to walk on, but a man in a wheelchair was clipped by a passing train car a while back because his chair didn't really fit through the tight turns well and one of his feet was sticking slightly out when the train passed by. This is not a problem at like, any other stops in the Link system. Just here. Just in this neighborhood. And it's a fucking disgrace.
not only was the section of the 1 line built at grade for the purpose of cutting costs, it was directly appealed by a citizens initiative. The Save Our Valley movement (SOV), after not being taken seriously by Sound Transit, sued for race based discrimination and an unfair distribution of public works funding resulting in discriminatory safety hazards, which were argued to be at odds with protections provided by the Civil Rights Act. And guess what. the claims were dismissed anyways. the court dismissed them on grounds that congress could ONLY regulate "intentional discrimination" per the civil rights act and was not authorized to regulate "discriminatory effects", that while the at-grade construction of the light rail line would likely have a disproportionate effect on the minority-dominant area of Rainier Valley, there wasn't any grounds that it was done with racial intent. which, given that the ONLY reason the claims were dismissed was that the discrimination argued couldnt be proven to be intentional, is, ironically, pretty clear evidence of intentional race based discrimination when Sound Transit went ahead with the at grade construction of the Rainier Valley section of Line 1 anyways
オオヨシキリ
Rodney Wood
Inamorata’s Memory
remember when we could get mexidol on amazon. lmao
it's about being an instrument of truth by your own will. the guy who ingested helicobacter pylori to establish a clear causal link between it and the formation of gastric ulcers understood this too
has everyone seen the website that gives you a rothko for your local weather?
Honestly it does feel like it.