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hello vonnie
dirt enthusiast
almost home
pixel skylines
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Today's Document
NASA
trying on a metaphor
Love Begins
izzy's playlists!
PUT YOUR BEARD IN MY MOUTH
Jules of Nature
@theartofmadeline
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Sade Olutola
KIROKAZE
TVSTRANGERTHINGS
Xuebing Du
#extradirty
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@skeleticcs
Hey y’all, new old tumblr user here (this is a side blog so my rants and shit don’t get annoying on main)
Mainly I talk about being disabled/queer, my certifications: I have Tourette’s, autism, and PANS. Obviously I’m gay exactly how I don’t know, and I’m somewhere under the genderfluid umbrella. Gender, who’s that? I don’t know.
My important posts:
What’s PANDAS/PANS?
Tics/Tourette’s FAQ’s
Seizure types
Will probably update this later whenever I think of new stuff to add
stood up in the shower today because i thought "you know what?? maybe i am faking this". nope nope nopity nope whoopsies that was a bad decision, restart body, error: stupid arse decision *siren wailing in distance*
Yah there are hyperfixations and special interests you can't stop talking about but do you have those interests where you kinda absent-mindedly keep engaging with from time to time and you keep thinking it's a casual interest but suddenly you look back and you have been consistently into it for like 10 years and you're like "woah!! I guess I am into it quite a lot!"
I hate when people use the phrase “never worked a day in their life” as basically another way of saying “this person is privileged/lazy” bc guess who else can potentially fit the description of having never worked?
I’ll give you a hint, it’s the same marginalized group that’s been begging society to let them survive and to quit touching their mobility aids since probably biblical times.
I'm kinda fed up with people saying that adhd and autism are "superpowers".
I can't do my homework because of executive disfunction and you tell me to be glad because I'm "special"? fuck you.
Both disorders can have their upsides. But as a person who can barely manage to get up and go to school every day it hurts to see people spread shit like that.
I'm sure that they don't mean harm but still.
Sometimes I open my mouth to start talking and then I realise that no-one is going to be interested in what I have to say
So I just stay quiet instead
being aroace and disabled is just like. okay this thing considered a marker of adulthood and maturity is something I straight-up don't want. this marker of adulthood is something I probably only want because of internalized ableism and other societal ills, and seriously going after it would probably hurt me. this marker of adulthood is something I do kind of want, but probably can't achieve. society is hostile to me for not being independent (physical needs). society is hostile me for being the wrong kind of independent (non-partnering).
being aroace and disabled is having to invent my own ways of feeling like an actual human person who exists in a community, because the default ways that society offers to feel this way sure aren't designed for people like me.
me: "oh yeah my pain/joints aren't THAT bad really like it's not bad at all"
also me, constantly: "ow" "ah, ouch" "oh fuck- ow-" "owww" "*gasp of Sudden Pain*"
10 Tips for people with klazomania (screaming tics)
1, and this is one that has changed my life: if you have very frequent shouting/screaming tics, DO VOCAL WARMUPS! I used to consistently lose my voice at the end of every day before I started doing this. There are plenty of short and simple warmup tutorials online- find one that works for you!
2, if you live in an apartment building, make sure to tell your neighbors. You don't need to explicitly tell them you have TS, but make sure they know you make loud sounds frequently so they're not concerned. Putting a sign on your door also works. Remember: in the USA it is illegal for landlords to evict someone solely because of a disability.
3, if you're heading off to college and plan on living in a dormitory you might want to request not having a roommate. If you are already diagnosed with a tic disorder, it should be easy to do this through your college's disability services office. If you would like to have a roommate make sure they understand your tics.
4, if you are planning on going out (to a restaurant, theme park, museum, etc.) you might want to call the staff of the location to inform them you have tics a few days before. I usually call ahead to restaurants to let them know about my klazomania and coprolalia tics and I've found that doing so makes it easier for both parties.
5, going off of 4, if you're going to a theme park or large museum and plan to suppress at least part of the time, get a map and mark off secluded places where you can safely let your tics out.
6, if you'd like you can bring a stuffed animal out in public with you: both for emotional support and to muffle the sound of loud tics.
7, if you're a middle or high school student, email your teachers to let them know about your tics. If you have moderate/severe tics it was very important to me that I gave a presentation to each of my classes at the beginning of each semester to teach them about my TS. Another accommodation that I got in high school was being allowed to zoom into my classes instead of attending in person: So on bad tic days I would stay home, and my teachers would broadcast the class over zoom for me.
8, drink lots of water and purchase a humidifier if possible. At the end of a long day drinking fluid and being in a more humid environment will help to soothe your voice. Herbal tea with honey or mild broths can also help soothe your voice!
9, have a good network of friends who understand and support you. This is no easy feat and can take years but it will have a huge impact on your quality of life. Join a support group (IRL or online) to talk to other people with tics who understand what you're going through, and find people who share your hobbies and interests!
10, remember that your tics don't define who you are! It is not your fault that you have tics, and you are not doing them on purpose. Don't feel guilty for something you have no control over. You deserve to live a happy and fulfilling life just like anyone else!
An increasing problem with fat liberation is ableism.
"All bodies are good bodies! All that matters is that you are healthy! UwU"
Some people are not healthy. Some people can't be healthy. Ill health is not a moral failure.
"A good body is one that works for you! *Describes an able-bodied person.*"
Not all disabled people are unhealthy and their bodies may not work in the way you expect of a healthy body.
Weight does not and should not equal value and neither should ability.
Disabilities can directly and indirectly affect weight. Your ableism hurts disabled people regardless of what they weigh but it is especially harmful to fat disabled people. You are telling them that they are bad fat people for being chronically ill or otherwise not abled-bodied. You are telling them they have no place in fat liberation. And you are telling all disabled people that they have no place in body positivity or neutrality.
[And to the folks who think hating fat people is a personality, your anti-fat movement is aggressively ableist. You are not winning because ableism is common everywhere.]
And autism and ADHD aren't inherently any easier to live with than diagnoses like schizophrenia or BPD just because people memeify them on social media!
How to not derail a physically disabled person's post -guide for abled neurodivergents
Hey this is a huge problem and a ton of my and other peoples posts about physical disabilities have been getting overrun with comments making it about mental illness and completely derailing the post.
Here's some things to think about before adding a comment/reply onto a physically disabled person's post:
Is the person talking about disabilities in general? Or are they only talking about physical disabilities?
Do they say specifically that neurodivergent people are welcome to comment? Or do they have a banner or tag that says DO NOT DERAIL
Check the comments and reblogs that are currently there. Are they already overrun with people making the same points you are? Are physically disabled voices getting drowned out?
Is the post tagged with cripplepunk only? (Aka not neuropunk or madpunk)
What is your addition adding to the conversation? How is it related to the original post? Is it shifting the conversation or generalizing it?
Did you actually read and internalize the post or did you only focus on adding your point of view.
Who is the intended audience for the post? Is it you? Are you listening or arguing?
Are you using their language for yourself?
Could the addition stand on its own as a separate post? (If so it probably should)
Think about how you would feel if someone did that to your post and everyone only talked about their problems and ignored your original statement. Think about how angry you'd be if they then said "you're not allowed to get mad cuz I said I wasn't derailing! I love you people!"
Also these questions can and should apply to other posts made by people who are frequently talked over (people of color, fat people, etc.) No your adhd autism does not count. There is a long history on this site of neurodivergent people talking over and taking over entire disability spaces and the problem persists today. This problem is why cripplepunk was created in the first place.
Yes mental illness deserves to be talked about. I'm proudly neurodivergent and often reblog posts from neurodivergent blogs. But you are able to make your own posts, you don't need to take over ours, especially when we are specifically pointing out how our physical disabilities differ from mental disabilities.
Also respect when someone asks you to please delete your addition. Mistakes happen what matters is how you respond to them. Learn from it and move on. Don't cry about the meanie cripples "censoring" you.
Screw it.
I got dressed today and I’m fucking proud of myself. I brushed my teeth and I’m proud of myself. I got out of bed and I’m proud of myself. No achievement is insignificant. Things people so often take for granted are accomplishments on their own especially when you can’t take them for granted anymore.
Another Autism Thing I don’t see mentioned outside the community is how fucking *tired* you get.
I was just telling my partner it feels like it takes 110% of my energy to do what should, I feel, only take 60%.
Like it takes a good chunk of my mental and emotional energy to get to the level of “functionality” that, for allistics, is their baseline.
Like I’m starting a few flights of stairs down from the ground floor every day. Except nobody seems to know how to fix it aside from “run faster,” or “get up earlier.”
(Note: I know the term “functional” is erroneous and largely driven by capitalism. I use the word to describe what seems to be needed to participate, even while I know it’s bullshit)
And the thing is, I can’t always pinpoint what exactly is draining me so!
Does anyone else experience this? If so, what are your thoughts?
I love you disabled people who should really use mobility aids but don’t yet have the money or confidence to do so
