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[id: a thread of tweets from coffee spoonie @coffeespoonie:

As a person with a chronic illness I am constantly worried about people using my good days against me.

My Good Days™ are not my standard; they’re the exception. They don’t give you permission to raise the bar on what you expect from me and to then act disappointed because I don’t meet that standard of “health” you’ve set the next day and the day after.

I don’t want to spend my good days worrying people are going to be either disappointed in me or, maybe worse, accuse me of not trying hard enough or something the next day. My good days are a gift and they’re not to be wasted. Just appreciate them with me and let them be, please.

Please don’t sue my good days against me. What I can do one day I might not be able to do the next. That’s just the nature of chronic illness. Please trust me to know what my needs are day-to-day.

end id]