Turning off my ask box because I am so flipping tired of these scam accounts messaging me every day. Nobody asks me anything anyway so nobody is gonna be missing me.
RMH
d e v o n
noise dept.

Janaina Medeiros
Lint Roller? I Barely Know Her

titsay

shark vs the universe

pixel skylines
occasionally subtle
we're not kids anymore.

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ellievsbear

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DEAR READER
Stranger Things

Discoholic šŖ©
h

JBB: An Artblog!
Alisa U Zemlji Chuda

Andulka
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@spoonfulofjesus
Turning off my ask box because I am so flipping tired of these scam accounts messaging me every day. Nobody asks me anything anyway so nobody is gonna be missing me.
if you are a parent, or may become one, or you are otherwise likely to arrive in the situation of caring for a child while they eat, promise me this: if a child doesn't like a certain food or food group, you will ask them WHY. and specifically, you will pay attention to either confirming or ruling out "it makes my mouth itch" or "it makes my stomach hurt," both of which are medically important info that children may not provide unprompted. which i know because this PSA has been brought to you by "i spent my entire childhood and much of my early teens eating peas and lentils while wondering why everyone else liked the Violently Itchy Mouth Sensation so much, like were they a bunch of legume masochists or something, before i finally realized that Violently Itchy Mouth Sensation was in fact a sinister demon appearing only to me, and her true demonic name was: Legume Allergy"
descriptive transcript:
Haben, a Black woman in her thirties with long dark hair, speaks to the camera, a vibrant blue wall behind her.
Haben: If you're a creator, add transcripts to your videos. I can't see videos, I can't hear videos, but I can read transcripts.
Pins on a Braillenote Touch pop up and down in their Braille cells. Each cell has eight pins that are either positioned up or down depending on the specific Braille letter.
Haben: Braille displays connect to phones and laptops, allowing Braille readers to access the internet this way. Descriptive transcripts should have both the visuals of what's happening on screen and speech and key sounds for the video. Really good descriptive transcripts captivate readers just like the best novels.
The Braille display disappears and the video shows Haben in the same room.
Haben: Once we have widespread accessibility, it'll be easier for deafblind people to share our stories and also participate in conversations. I love learning from lives different from mine and in order for me to do that, I need transcripts. I look forward to reading all your transcripts!
end transcript.
sharing for people who aren't aware this is a thing & can put it into practice, video transcript copied from haben's instagram (please let me know if the format needs to be adjusted in some way šš»)
[Additional description: the original video is credited to @ Haben.Girma on TikTok.]
I will never understand why movies will demonstrate sign languages and not bother to actually use the language they are demonstrating. Like that isnt done for any spoken language?? A movie doesnāt go ālook theyāre speaking German: Entschuldigung Gesundheit Schmetterling kalt!ā Or ālook theyāre speaking Korean: awhfodwncyeqk fwhdbeurciwbfcue dhwieticbwhfā
maybe Iām wrong and they do it for spoken languages too but I havenāt seen it talked about.
If you're comfortable accusing anyone of faking disability, you're not a real ally to disabled people
One time when I was a kid a group of girls and I had to treat another student for hypothermia by ourselves because she had so many invisible health issues that the adults we asked for help didn't believe us. The student in question was actively hallucinating. When I finally ran for help the people I grabbed were slow as shit to respond, casually joking about how "dramatic" the person in question was.
The kid was picked up by an ambulance 30 minutes later.
Now as an adult working in security I get SO MANY folks- upper-middle aged mostly- coming to me to 'rat out' people they think are faking it.
I was once sent into a bathroom because a client demanded that the "fucker won't get out, so go drag them out"- I was NEVER going to do that, so I did a wellness check instead. You know who it was? A person recently released from the hospital after a car accident. They had a hole in their skull and major hearing loss. They couldn't answer the owner because they couldn't HEAR the owner.
Another time about a homeless man who got around town by kicking the ground from his wheelchair. "You know he doesn't actually need that thing, his legs work fine, it's just for pity points"- Oh, so he's not paralyzed, his wheelchair is performative? Funny story Dale, I actually know that guy, he was backed over by a truck and has chronic pain from his shattered pelvis. But sure, let's make him stand up and walk everywhere so nobody feels too bad for him and tries to help him or something.
"She doesn't need that scooter, I've seen her get out of it."
"Look how fat he is, because he just rides around and refuses to get up."
"She doesn't really need that cane- she comes here without it all the time"
Sincerely, truly, from the bottom of my heart- as someone who isn't physically disabled but hears this shit all the time- fuck off
you should get a second evening for reading fan fiction. And you should get an extra day in the week to do arts and crafts.
Biannual reminder that Fetal Alcohol Spectrum Disorder (FASD) / Fetal Alcohol Syndrome and Neonatal Opioid Withdrawal Syndrome / Neonatal Abstinence Syndrome (NAS) are not acceptable jokes or insults for people you don't like. We don't exist to be demonized, belittled, or mocked. People with these issues exist in every space you're a part of. Some don't even know it. Some do and hear you say the things you do and they will not forget you.
faceblind culture is i moved across the country like 3 months ago and i still see people almost daily thinking they are people i know before remembering that i moved three months ago
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I donāt know if youāre the right person to ask, but maybe someone in the comments can help. My younger brother lives in a group home and has various disabilities (autism, OCD, intellectual delays, lots of uncategorized things, and some physical stuff as well). Heās super smart, but struggles with verbalizing things. His speech gets jumbled and it can be hard to parse out what he means so sometimes he gives up. He can read decently well and has an iPad that he mostly uses to watch YouTube videos about his special interests. I want to get him more apps. Last month we went out for dinner for his birthday and it was too loud for me to decipher what he was trying to say, so I passed him my phone with the Notes App open so he could type it out and that actually seemed to work really well but⦠thereās gotta be something better out there, right? Iām picking him up this weekend and just found out that while he receives and reads my texts he doesnāt know how to SEND texts so weāre going to work on that (he does know how to FaceTime, but again, the verbalizing bit is tricky so thatās not always effective) and Iād like to get him set up with some more sophisticated things if anybody has any suggestions! Most of my the articles online about āautism appsā are focused on children but heās a 33 y/o man and I donāt want to infantilize him, I want to empower him.
I know there are lots of different types of communication apps out there. I only use them very occasionally (like every few months) and just use a very basic text to speech app.
I will throw this out there to other people who know more!
(tired so clippy answer)
high tech AAC:
if typing work best (good motor, know how to spell, not struggle too much w language like grammar or aphasia etc):
ios live speech feature (free w ios device)
notes app text to speech (free)
gotta be various free / cheap text to speech app somewhere
proloquo4text (paid expensive - but can presave phrases + lots voices choose from which can be affirming)
if struggle with language, canāt type, canāt read so need pictures, need preexisting words choose from, struggle w motor, or various reasons make easier - symbol based AAC app
there dedicated speech generating device out there but also lot be just ipad (or any smart tablet) + AAC app
may or may not find symbols infantilizing (bc developed for intellectual & developmentally disabled who learning language typically children. adults can use but different ppl diff opinion abt look of symbols.) different app may use different symbols
most of these app support typing one way or another but some use device built in keyboard n some use like app specific buttons which may be finicky
if need language beyond english n spanish need see which program have which
weavechat (free ios. maybe free maybe pay a little android forgot.)
proloquo2go, TD snap, coughdrop, touchchat, avez, etc (expensive. several hundreds. may or may not have free trial)
speak for yourself, LAMP word for life (especially prioritize motor plan. think like similar to touch type where muscle memory)
really struggle with motor:
switches / buttons + scanning
head tracking AAC devices
eye gaze / eye tracking AAC devices
really expensive (thousands+)
if you in US: can ask private insurance or medicaid medicare see if cover. vocational rehab may or may not too depend on state
if you elsewhere: am less familiar but hopefully something similar. UK have NHS, australia have NDIS? idk
- nonverbal person AAC user
it's so wild to me that you absolutely cannot force a hyperfixation to happen. like you'll watch the most perfectly tailor-made-for-you content that everyone says you'll love and feel absolutely nothing, and then the thing you watch on a whim to fill time will reach through the screen and put its damn fingers in your brain and start rearranging the neurons right in front of you and every single time you're like THIS??? THIS??????? and this happens like every 6-12 months forever
Today I woke up at 2 AM. Instead of falling back asleep my brain decided to conjure up these images which haunted my mind palace until properly expelled
This is about Sci-Hub. yeah we get it.. gatekeep knowledge and protect the interests of capitalā¦
Listen, this is serious.
Do not use the website called Sci-Hub!
It lets people access scientific articles for free. This is dangerous. It helps the free flow of knowledge and reduces the competitive edge of all the people who worked really hard to have been born into a wealth.
Like, itās literally a website where you can type in the DOI of an article and read it, without ever having to pay the publisher who exploited the author.
So, again, do not, under any circumstance, use Sci-Hub. I mean, can you imagine a world where knowledge is free and easily accessible to everyone? Even, y'know, poor people?
Libgen also has many books online, including textbooks, searchable by name, author, and ISBN. Can you imagine textbook companies not getting their hard-earned income from poor college students? Here is the link just so you make sure that you never accidentally stumble across this horrible, unethical website.
Oh, and while weāre talking about books, if youāve managed to stay clear from Libgen, definitely donāt go to zlibrary, where you can also find a lot of textbooks, but unfortunately theyāre completely free.
Reblogging so you know which sites to totally avoid
Another inside tip from academia: Those papers in really expensive journals that are effectively inaccessible to anyone not in a university network? Depending on the discipline itās very likely that same paper is on a āpreprintā server somewhere, with no access restrictions.
Like if you want to read basically any physics, math, or CS paper, arXiv.org will have you covered, because everyone uploads their papers there before submitting to a journal (and generally updates it after peer review). I know all of my papers are on there. This is such common practice that journals have it baked into their licensing agreements that authors retain the right to upload their work to these places.
So the next time you get hit with that paywall, you may not even need sci-hub, just click the arxiv link on google scholar instead.
if for some reason none of this works, the old āsend a email nicely asking for the paper to the authorā is always a good trick. remember most scientists hate the commercialisation of scientific knowledge
Donāt mind me, just gotta share this with my bf so that he knows what websites to avoid
Many authors of papers are on ResearchGate! You can ask for papers there, if they donāt just post a copy to download. If theyāre associated with a college, you can usually find their email addresses in the department directory, also.
Always reblog.
I need to keep this in mind
Got a new cushion for my chair that is contoured to help with my hip and knee position and oh my god I didnāt realize how much something like this would help me until I tried it. Didnāt even notice that my posture has been so much better until I had to use my other wheelchair yesterday for an appointment in a place that canāt accommodate how long my main one is and I was back in the weird posture and uncomfortable.
Not a lot of people talk about chronic discomfort, probably because at least in my opinion chronic pain is worse and usually overshadows other sensory issues, I didnāt even notice how uncomfortable I was until my pain management was effective and I could feel the other sensations in my body. But chronic discomfort is still an issue, and I think it adds a lot to my issues with being easily agitated. Being uncomfortable and unregulated is of course going to cause someone to act like they are.
your powerchair does not take up too much space!
Powerchairs can easily be snazzy or beautiful or cool colours. People who use powerchairs are not taking up too much space. you don't need to be smaller or tucked out of the way for others' convenience. Powerchairs can do so much that manual chairs can't (even with a power assist) and that's a good thing! So many people are supported by their powerchairs, and the world has been changed many times by someone living their life using a powerchair.
It will never be a bad thing for disabled people to have access to their homes and their communities. Using a powerchair isn't a "lesser option" to a manual chair, it isn't "giving up", and it is never taking up too much space. You're taking up exactly as much space as belongs to you already. It's great to see you around š
this blog loves all the mobility equipment disabled people may need, and I think people using group 3/CRT powerchairs don't get enough positivity about their mobility aids.
If you tell neurodivergent people they need to "get comfortable with being uncomfortable" I am putting gravel in your shoes. No you can't take the gravel out. You have to deal with it. Dealing with it makes you a better person. What do you mean "pointless suffering".
The FBI cut the phone lines during the 1977 disability rights sit-in. Then they turned off the hot water.
They locked the doors from the outside. One hundred and fifty people were trapped on the fourth floor. Half of them used wheelchairs. The government assumed they would leave.
Kitty Cone was thirty-three. She had muscular dystrophy. Her muscles were failing, but her logistics were flawless. She knew how to organize people.
The federal government had promised to sign regulations protecting disabled Americans from discrimination. The policy was known as Section 504. They printed the promise on paper. Then they stalled. Without a signature, it was just typography.
The protesters entered the regional Health, Education, and Welfare building in San Francisco on a Tuesday morning. They took the elevators to the director's office. They brought sleeping bags and catheters. They informed the staff they were not leaving until the law was signed.
By sunset, the police surrounded the exits. Kitty sat near the windows. She organized the floor plan. She assigned committees for security and sanitation. She kept her medication in a small cooler.
According to federal memorandums released decades later, the strategy to end the occupation relied on medical attrition. The building was not equipped for long-term habitation. The FBI calculated that a population requiring ventilators, specialized diets, and daily medical aides would voluntarily evacuate if the environment became sufficiently hostile. They instituted a blockade.
The blockade went into effect immediately. No food deliveries allowed. No medical supplies permitted through the lobby. Guards stood at the main doors checking identification.
Kitty's muscles deteriorated faster under the physical strain. She couldn't walk. When the phone lines went dead, the fourth floor lost contact with the press. The government waited for the quiet.
Kitty dropped to the floor. She realized the barricades were designed for standing adults. The police had blocked the hallways at waist height. They hadn't blocked the linoleum.
The floors were covered in cigarette ash and spilled coffee. She dragged her body through it. She crawled under the barricades to reach the restricted elevator shafts and unguarded offices.
She carried notes in her pockets. She found a single working payphone the FBI missed. She called the local news desks. She called the mayor's office.
She crawled back. When her arms failed, someone pulled her by her ankles. The Black Panthers heard the news reports. They crossed the police lines with hot meals. The FBI could not stop them without a riot.
They shut off the elevators, so she crawled.
The occupation lasted twenty-five days. It remains the longest non-violent occupation of a federal building in American history. On April 28, the Secretary of HEW signed the regulations without a single alteration.
The protesters left the building the next morning. They went back to their apartments. The Rehabilitation Act regulations laid the groundwork for every accessibility law that followed. The HEW building still stands on United Nations Plaza. The elevators run on a schedule. The doors are heavy glass.
Kitty Cone: the woman who crawled under the barricades.
Source: Kitty Cone's oral history, Bancroft Library.
Verified via: National Museum of American History.
(Some details summarized for brevity.)
[id: black n white picture of Kitty Cone. text read āThe FBI shut off the water. The elevators were locked. She dropped to the floor.ā end id]
kind of a vent
[ID: An illustration of a person with scars on their arms and legs. There is handwritten text in all caps that reads āsometimes I forget I have scars, but helpfully people always trigger tag my photos and self portraits to warn others of the way my body permanently exists. I think it should go even farther actually. If you see someone with scars in real life, push them into a river or manhole to protect the public from the way their bodies survivedā./ End ID]