an update. đ As many of you already know, I am currently working on a diagnosis for systemic lupus. I have already been diagnosed with discoid lupus (of the skin), and an official systemic diagnosis can take up to some months. đ Back in February, I started losing my hair. For months, I attributed it only to birth control and that blow dryer phase I had the month prior, until late May when the joint pain kicked in. After it didn't go away for a couple weeks, I started taking round-the-clock Advil until my doc put me on arthritis meds. đ Fast forward to now: I have lesions on my face, ears, and other parts of my body. I've lost most of my hair, probably permanently, and I have scabs and scars all over my scalp. Getting out of bed, getting out of chairs, and walking up stairs is difficult, due to fatigue and joint stiffness. I have to avoid sunlight. My black behind is wearing SPF 70 and a sweater in Florida-degree weather, shielding myself with an umbrella anytime I'm outside. I'm tired literally all the time (except, miraculously, for this very moment that I am very awake and alive). And this is apparently the beginning of my spinning wheel of symptoms~ đ Right now I'm on a few meds, including some very pricey skin creams. I have yet to see a rheumatologist and start the big guns. I'm slowly easing into changing my diet and at some point I have to finally start working out (cue existential dread) since immunosuppressants are in my future and blah, blah, blah, sicky sickity sick I'll quit rambling. đ But don't be sad! This is not fatal. I am not dying. I thank you for your continued love, prayers, and support, for both me and Stephen cuz you know HE'S dealing with the most. I'll keep ya posted, most likely in the form of very brief IG story posts. . â¨đâđ⨠#lupus #sle #dle
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