I’ve now been on Ajovy for 3 years and my feelings are still decidedly mixed. I’m still at the 12/30 migraine days a month that I was at last year, and the Rimegepant has decreased the severity of those migraines even if it seemingly hasn’t decreased the number. So there’s some improvement, and I am so grateful to have as much relief as I have. Recently, I’ve even been able to start a (part time, online) training course which will hopefully get me a (part time, online) job at some point, which feels like a huge step.
However, it is frustrating that the progress I was having seems to have stalled here. The consultant at my annual review was surprised that I thought 12/30 migraine days was a good enough situation, but she said the reduction was still enough from my baseline to keep me on the medication, if I wanted to. I said, this is the only thing that’s ever worked for me, even a little, of course I want to stay on it. Since then I’ve been wondering if I should have been more pushy about asking what else there is to try. The trouble is, I don’t really think there is anything. This is the best we migraine medication we’ve got, and even if it wasn’t, I’ve tried basically everything else. But maybe I should have asked anyway, maybe I will next year.
I haven’t been posting on this blog that much in the last year, partly because the migraines are not as all consuming as they once were, but also partly because I don’t really know where I’m at with it all. There’s a certainty to being in pain that there isn’t to being sort of half recovered. I’ve also been dealing with other health things that I don’t currently have all the words for (peripheral neuropathy/parasthesia of as yet unknown cause), which is making the idea of ‘recovery’ even more murky. I’m sure I’ll come back when I’ve figured out how to talk about any of it
