#ampyra

[calmwithkari]

Trying Ampyra

Since I also want to use my blog to share my own personal experiences (and I've benefited greatly from reading about others'), I wanted to share my journey with my first symptom treating medication, Ampyra.

Now that I’ve been on a disease modifying therapy (DMT) for a few months and had my first follow-up MRI, which was stable, it was time to start trying to treat some of my symptoms. I made a list before my neurologist appointment of the three things I felt were having the biggest impact on my quality of life — heat sensitivity, fatigue, and dysthesia (tingling, burning, basically sensations that…

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[bethybright]

It's been awhile since our last drug scandal

It’s been awhile since our last drug scandal

In my early days after diagnosis with MS, it seemed like I was always accidentally stumbling across strange and unbelievable drug situations that at the time felt like they were just too crazy to be true.

There was the time I found out that you could get crazy cheap Modafinil at Costco (spoiler: it ended up being too good to be true). Or the time I learned that even though cannabis wasn’t…

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[bethybright]

I've decided to start adventure hiking

I’ve decided to start adventure hiking

I’ll be sure to post photos from my first hike in the Himalayas. Here’s the thing. I keep sitting down to write some inspirational prose about how to overcome adversity, see the bright side of life and wrap myself in silver linings made of actual silk. Then I think about the last few days and all of that happy horseshit flies out the window because here’s the simple truth. This MS thing sucks. I…

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[bethybright]

Random thoughts while waiting for my car to de-ice

Random thoughts while waiting for my car to de-ice

My actual face after sitting in my actual car for literally 43 minutes. You know my constant debate… Go to the outside world, play the Old Me (who walks really funny but I don’t walk that much or that far, so it’s cool) and visit with some of my favorite normals in my downtown office? Or stay home and be uber productive in the relative safety of my home. It’s never easy, this whole game I play…

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[bethybright]

Life is made up of a whole lot of steps

Life is made up of a whole lot of steps

Think about the average day. From the time you put your feet on the floor beside your bed in the morning to the time you lift them off that same floor again when you finally lay down to sleep. Whether you’re a person who wears a tiny computer to tick off your ten thousand steps or whether you’re just an average under achiever like me (before MS) and you hovered more around 5,000 – in any case,…

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[bethybright]

Relapse: Part Deaux

If this keeps up, I’m gonna need a bigger nightstand.He called me. He actually called me himself. He didn’t sic Evil Nurse Carol on me, The Great Scott all powerful and good called me back his very own self.  I explained more about my situation. The intense pain. The inability to stand for very long (like less than ten minutes). The weird numbness in my hands. My fatigue hasn’t been bad at all…

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[loveflipout4ms-blog]

#CMSC17: news sui farmaci SM Lemtrada & Fampyra

#CMSC17: news sui farmaci SM Lemtrada & Fampyra

Cari lettori, oggi torniamo a parlare di farmaci per la SM, con altri due articoli pubblicati recentemente a proposito di Lemtrada e Fampyra, discussi al meeting internazionale #CMSC17, tenutosi a New Orleans lo scorso 24-27 Maggio.

Una recidiva dopo il primo ciclo di Lemtrada non indica un insuccesso a lungo termine del trattamento

Secondo uno studio clinico di fase 3, i pazienti con sclerosi…

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[bethybright]

Meet my little friend

Meet my little friend

These things are supposed to be good luck, right? *shivers* My post-Ocrevus experience continues this week in the days leading up to my next half dose on May 23 and I have to tell you, it’s been full of interesting little experiences. I started out feeling pretty fantastic. I feel I should thank my good friend and reliable juice, Solumedrol. It makes some people feel like they’re possessed of a…

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