I just want to let you all know that my health still isn’t good: I spent awareness week struggling with insomnia (not to mention before and now after) and trying to cope with making content for it while operating on almost no sleep just about broke me. I’m glad I did it, but I’ve spent this week trying to recover from it, and I struggle to find the energy needed to talk to people when I’m that worn out.
Right now, I’m trying to figure out more about transition options and support as a queer, transgender person, since it’s been made clear to me that my current environment is not ever going to be truly supportive. This week I had a really good conversation with my GP so my new pronouns are as officially on the system as they can be (with a system that doesn’t really support it, but at least referrals will correctly refer to me) and a conversation about my queerness that was summed up as “sexual attraction irrespective of gender, romantic attraction to nobody, no gender”. It’s not completely accurate because you all know I’m abrosexual, but given that I mostly use queer like a safety blanket in offline conversations, it’s as accurate as I get to someone who doesn’t already know me. I’m looking for a new psychologist, and there’s a few queer-centred clinics in my state’s capital (Melbourne, Australia) I’ll be checking out.
The extreme degree of lack of sleep is almost certainty a response to everything that’s happened this year with regards the incredible invalidation from my former psychologist and family, but it’s making it hard. If autism makes a lot of the above difficult, insomniac autistic cranks the playing level right up!
I’ve been thinking about the direction of this blog, since I would like to open up the ask box again. The problem is that this blog was becoming a little more community-conversation-support-and-validation than is easy for me to handle. It takes a lot of spoons to be available to provide that kind of response and support, and there is always going to be a greater need for it than I am able to provide. To be frank, it’s overwhelming to me to constantly see it in my inbox and my messages, and that’s not something I well handle as an autistic.
I’m a creative. I write, I sew, I scrapbook, I design, I make. I’m hampered by my disabilities and an inability to have or afford real workarounds in terms of accessibility aids, but as much as I am able to, I make things. I was quietly proud of myself during awareness week for being able to get past the “I can’t do it perfectly so why do it at all” tendency of mine to make pride-related pieces that weren’t perfect (lack of tape, time, editing, fabric, marker pens) but still existed, as that’s something hard for me. And it meant the world to me to see some of those pieces get likes and reblogs!
My highest shape of activism is always going to be creative media, yet this blog, combined with the limitations of my disabilities, was making it harder for me to do that. It’s not coincidental that I’m able to write more stories with the ask box closed!
The other problem is that a lot of the conversations I was getting more concerned aro-ace folks, aro-ace experiences and aro-ace relationships to the aro-spec, ace-spec and a-spec communities. I’m not saying that you don’t need or deserve the support, and it is by no means wrong that anyone sought this out, but I felt like I was providing more reassurance to folks with issues that don’t impact me in quite the same way, without the time to talk about my own needs (because I am disabled, my spoons are limited and I never had the ability to do both the way I wanted). That felt like I was working more to support other people than I was to support myself; my activism slowly moved further and further away from my own needs in the aro-spec and a-spec communities.
I hope folks appreciate that providing reassurance, validation and support to fellow community members is a lot of work--something that takes a lot of time, a lot of physical ability, a lot of physical energy, a lot of emotional ability, and a lot of emotional energy. It’s work, it’s skilled work, and it’s hard work--something I don’t think we always stop and acknowledge in activist spaces where the need of people to be supported is sometimes pushed ahead of the ability for people to provide it. Particularly when the people who are doing this work are unpaid, often unsupported in their providing of this work while at the same time being applauded for it, and have to face a never-ending need for it should they begin to offer it.
I’ve had asks that have distressed and triggered me, asks that need all the empathy and validation I can provide but at the same time distress me to the point where I can’t cope myself. Where do I go to talk about that? Where do I go to find help? I can’t write a post about it here; that would hurt the person who needs help and has done nothing wrong in seeking it. Psychologists see other psychologists for support, but we have a grassroots situation where folks are providing nearly the same sort of work on an untrained, volunteer basis, for a community in incredibly desperate need of it and can’t actually go to a psychologist who doesn’t understand aromanticism, without any kind of support network ourselves.
Without that, it’s very difficult not to succumb to overwhelm and burnout ... and for much the same reasons folks came to my ask box, I can’t easily see a psychologist myself for coping with this, or afford to do so as frequently as I need even if/when I do find someone supportive.
I think a good thing for the aro-spec community to discuss would be the ways we can support other community members in their community-support-and-community-building activities, in terms of making sure that the people who are working to build our communities are physically and emotionally safe, have spaces where we can discuss the challenges and problems in providing community support--in the same way psychologists also have these support networks--and have their labour acknowledged in the sense of our promoting their PayPal, Ko-fi and Patreon accounts (it’s hard to manage the emotional work of providing deserved support for our own when we’re panicking over having $5 in our bank accounts and a $100 bill to pay next month). We shouldn’t be taking it for granted that the people who are helping prop us up can do so unaided, not when we all know the struggles we face in a capitalist, amatonormative world. Let’s please acknowledge this, not just for me but for every other aro-spec who is putting their works out in posts, answering asks and creating the content we need and appreciate.
Let’s do our best to support the people who are supporting us and have open conversations about the struggles and stresses of activism, because I honestly feel that the only options for me include shutting down the inbox forever, being seen as selfish and demanding if I talk about the problems of being a source of support because I’m supposed to be helping people, quitting the blog entirely, or struggling through it all until I shatter.
In the meantime, though, as a disabled aro-spec, I have to draw a line.
For me, this comes back to what I want to do--run a blog about aro-spec creativity while making more original aro-spec creative content--and activism that directly concerns and impacts me. That means, specifically, allo-aro activism, because I’m increasingly finding a disconnect between general aro-spec approaches and my own needs. Activism for aro generally isn’t resulting in a-spec spaces that feel safe for me, and that’s where I want to direct my conversations.
For this blog, @aroworlds, I’d like the ask box to be an easy way folks can recommend media, discuss content, squee about something cool they read/saw/heard/found, share pride merch, give their thoughts on something with regards representation or creativity. I won’t say that I won’t make my own posts about activism here and there, but I’d like to get back to a focus on creativity. I am asking, therefore, that people please keep messages, submissions and asks to topics of aro-spec creativity and creative media. I am no longer taking support-providing asks, community information asks or community terminology asks on this blog.
For my other blog, @alloaroworlds, I’m happy to have more conversations about aro-spec community issues, identity experiences and creative media as concerns allo-aros. This is where I want to focus my activism outside of creative media, and this is where I want to have community-issue conversations. I’m not yet at a point where I’m really able to provide much in the way of emotional support, but if I ever get my life to a point where I can, that’s where I’ll be providing it. In the meantime, though, let’s talk the aro-spec and a-spec communities and where allo-aros fit into them--and anything else allo-aros want to talk about.
Thank you so much for reading this monster of a post, my lovely followers. I won’t be opening up the ask box here today or even this week, but I will hope to be soon. Because I really do miss folks telling me about something cool they’ve found, and I hope we can get back to that and other projects and discussions focusing on aro-spec creativity.
In the meantime, if folks could wish for me a week where I sleep every night, I would be exceptionally grateful!