Dec 14, 2025
I guess the preventative mastectomy I have coming up in January, right before my birthday, is my AO3 curse indeed.
Here's to hoping the MRI beforehand comes back normal and that the curse ain't that bad. 💀
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I guess the preventative mastectomy I have coming up in January, right before my birthday, is my AO3 curse indeed.
Here's to hoping the MRI beforehand comes back normal and that the curse ain't that bad. 💀
De voorbije periode is heel wat geweest… liefde, gezelschap, zoeken naar een evenwicht tussen herstel en actief zijn. Het is geen gemakkelijk evenwicht en soms ga ik over mijn grenzen en moet ik het later bekopen en rusten… maar ik ben op zoek en heb het gevoel dat het wel lukt.
Er is heel veel dat rondom ons gebeurt, nieuws bij vrienden en familie, goed en slecht nieuws… het goede nieuws en nieuw leven geeft energie en vreugde, slecht nieuws zijn dompers die ook binnenkomen en waardoor ik merk dat ik gelukkig nog ruimte heb (niet veel maar hopelijk genoeg) om er ook te zijn voor de mensen rondom me.
De drukte laat me soms niet toe om helemaal overal aanwezig te zijn zoals ik zou willen, maar ook daar probeer ik een beetje een evenwicht te vinden. Daarbij hoop ik op begrip van iedereen en hoop ik dat ik niemand vergeet…
In elk geval, ik ben bezig geweest. Ik kreeg fantastische hulp en hielp mijn collega bij het schilderen van onze logeerkamer, mocht met de kindjes naar een museum en werd uitgenodigd voor een aantal dagen Ardennen… daartussen plande ik mijn Onco-revalidatie etc… en probeer ik mijn tijd te vullen zodat ik me niet eenzaam voel.
Ik wilde alvast enkele fijne beelden delen van de voorbije periode. Daarnaast probeer ik er verder te zijn voor mezelf, mijn gezin, vrienden, familie… maar laat niet na om zelf contact te nemen, want dat help sowieso!
Hou jullie goed en draag zorg voor elkaar!
😘
I’m just so angry now.
I don’t know how to not be angry all the time.
Today I sent a 21 year old home with hospice. Merry fucking Christmas.
For anyone who has been with me for the long haul and maybe, potentially remembers some of the gynecological issues I have gone through - endometriosis and adenomyosis officially rendered me infertile and in constant pain. My uterus was a war zone, completely unable to support life.
I had genetic testing done and found that I am positive for a BRCA 1 genetic mutation.
I had a partial hysterectomy about a month ago. I was able to keep both of my ovaries despite a large endometrioma on one, for the time being, with the intent being to heavily monitor changes going forward.
I am struggling mentally, to be honest. I am so lucky to have had my daughter when I did. Three different doctors told me that I never would. Many women dealing with the same diseases aren't so fortunate. It feels greedy to mourn over the lost potential of another miracle baby, but I am, no less. I wanted to be able to give her all of me, without pain or the cancer timebomb that was; I will keep telling myself this was the best choice given the data.
I don't expect a response and this post is not meant to come across as self-pitying. More or less just wanted to type it out for the universe. I'm going to be fine.
For any of you that are dealing with the same or similar - I am sorry and i understand. I see you. I hear you. Please never feel guilt or regret.
Obesity-Cancer Link
A person carrying a mutation in either of the tumour suppressor proteins BRCA1 or BRCA2 is at increased risk of developing breast cancer. So too are people with obesity and diabetes. But whether obesity could exacerbate the risk in people with BRCA mutations was unknown. Recent research suggests that indeed metabolic and genetic risk can be cumulative. The image shows nuclei (blue) of milk duct cells from a person with a BRCA mutation with evidence of DNA damage shown in red. A study of such cells revealed the extent of DNA damage in BRCA mutation carriers positively correlated with body mass index. And blocking obesity related hormone signals in these cells could lessen such damage. The new findings suggest that while maintaining a low body weight is no guarantee of preventing breast cancer, addressing lifestyle, diet and metabolic health may be especially important for people already at increased genetic risk.
Written by Ruth Williams
Image from work by Priya Bhardwaj and colleagues
Department of Medicine, Weill Cornell Medicine, New York, NY, USA
Image copyright held by the original authors
Research published in Science Translational Medicine, February 2023
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Genetic testing detects BRCA gene mutations in individuals with high risk of breast cancer which helps the patient in taking informed medical decisions.
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