Resource recommendation for folks with CRPS: https://www.burningnightscrps.org
They are an absolutely incredible website that has Actually Useful Information on CRPS.
99% of websites with CRPS info will repeat the same limited info (bad pain, starts after injury, do physio) but Burning Nights has information on everything we currently know about this disease (what causes it, symptoms, treatments, etc) AND they have citations for everything, so next time someone says “that’s not possible, CRPS doesn’t cause ___” you can say “here are three medical papers that say otherwise”.
While we still know very little about CRPS, this website made me realize we know a whole lot more than most resources let on.
It baffles me that Mayo Clinic and other hospital websites have such limited info on this disease, we shouldn’t have to rely on a website run by CRPS patients, but I am nevertheless grateful for their dedication. I raised money for them with a lemonade stand a couple years ago!
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