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I'm tired of being the one with the disease who needs to work on myself for others while they don't have to do a damn thing to bridge their end of the gap. It's a radical expectation, asking me to change and rid the inner-workings of my brain for them. It's such an audacious request, yet they don't even see it because in the end, I'm the one who isn't normal, and I will always be the one who isn't normal to them
This is about physical disability not mental, please do not derail or i will smite ‼️ ⚠️
Progression is a sad and scary thing, especially when it's in the form of issues becoming more widespread. I've been having more and more trouble with my shoulders, thumbs, and wrists to the point where I've been losing function (having trouble pushing my manual chair, failing to open things without tools, needing help to push, pull, tighten, loosen, lift, move things I used to be able to do by myself) and it makes me worry about what will happen when I'm no longer able to use my lower or upper body sufficiently
I know the answer is that i will just adapt the same way i did when I lost the ability to walk, but change like this is not any less upsetting. It's still hard to continue losing independence and abilities, even if you continue to find tools and help and adapt your life around it all.
Between the increasing upper body pain and instability and the fact that my doctor prescribed a powerchair without me even asking for it, I've started thinking about it a lot more and becoming sad and scared about being more sick and also getting sad when I realized that most of the very normal, very light stuff I do every day causes at least a small amount of pain. Even holding up a phone. Even typing to post online. Even holding up my head to watch videos on the couch. it's sad that that's my experience, that there's not much in life that I can do painlessly and that it'll only get worse the more my joints deteriorate.
So frusterate every 30 day of autism question is actually 5 question disgised as 1 question. Want easy version, so tired of word and frusterated. Wanted to do it but fall behind and make bad
Can make easy questions someone?
"You have speech or hearing problem and need help? Call this number to not speak to anyone!"
#$^##^*&$#%#%$##
🔪🔪🔪
Ive not talked more than 6 words long since my meltdown last Wednesday. I have a referral to speech from my doctor, not any appointment scheduled yet so will see, but hopefully is just a temporary speech loss. I've never had it last this long before so a bit worried. I got a LDC tablet to write on so I can write it faster than scanning and typing with my phone AAC, but hopefully speech doctor will give me a device because my regular therapist says I need one anyway. Having lots of burnout from appointments and managing own dishes and groceries. Hopefully this is only the temporary side effect of that and not permanent
Me and the weather really have it out for each other
Wheelchair broken
@staff @support the flashing doordash ad is back, take it tge fick down
