yall are so fucking weird about gnc people. a woman wears a suit and she's "conforming to the patriarchy". a man wears a skirt and he's Secretly A Trans Egg. have you considered It's Fabric

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Mike Driver
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macklin celebrini has autism
Not today Justin
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@celsius451
yall are so fucking weird about gnc people. a woman wears a suit and she's "conforming to the patriarchy". a man wears a skirt and he's Secretly A Trans Egg. have you considered It's Fabric
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the-universe-at-large
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how’s everyone doin tonight i just broke tumblr
YES YOU DID
high-saffron
the more you reblog this the more it breaks
the-universe-at-large
WHAT THE FUCK DID YOU DO
dangergays
literally what is happening @staff you dun goofd
i tried to reblog this and the stupid app just crashed
If you’re seeing this, I managed to reblog this post.
I must. The voices command it. FOR VALHALLA-
*ded*
Oh yeah, i think i’ve reposted this before.
There are no ducks in this post.
*sigh~* Alrighty lets see..
There should be an app thats like TikTok except its all just infinite shortform content of whatever game or anime im currently hyperfixated on
petition for a disability pride flag on the like button when there are disability tags
@staff
@tumblr
You're not gonna take down those ads that aggravate photophobic conditions, could you at least do this for disability pride month?
before you go out parroting something being a symptom of hypermobile ehlers danlos syndrome I would strongly recommend looking for some sort of actual scientific journal paper or article from a reputable source that agrees with the claim you are planning on making. forums and blogs don't count. I'd even exclude doctor's social media accounts. (any reputable doctor sharing information like this would be more than happy to link some actual research backing up their claim)
if you got that information directly from your doctor I would still put a little disclaimer on it if you can't find some sort of scientific source talking about your symptom being part of hEDS.
right now the perception of hEDS on social media is shifting as people have been attributing a wide number of symptoms to hEDS without any science actually backing up that connection. often these symptom associations are based on incorrect understandings of how collagen works and where it is present in the body.
we have studied the connections between many different symptoms and comorbidities. even where we don't have a specific understanding of the reason for those connections we have data on their increased prevalence in hEDS patients that goes beyond "I see a lot of people on social media with these things together" or worse "someone on social media said these things go together therefore they must go together."
people are attributing every random body quirk to hEDS and it's leading to a large number of people to suspect hEDS based on the traits people are ascribing to hEDS that actually have nothing to do with the disorder.
and if you're trying to find information on hEDS online you have to be super careful while wading through the vast amounts of medical misinformation being circulated online right now.
my main thing is that it's mega FUCKING frustrating when black people vent about our experiences with antiblackness in left leaning spaces only to get ignored because non black people genuinely think they're being a nuisance but yall only become annoying if you derail our points or speak over us.
and it's more frustrating when a white person basically repeats our points and have people feel more comfortable interacting with them because they are scared of the angry negro. black people only matter as a hypothetical and when it comes time to really listen to us we are talked over and ignored.
i genuinely try to stay compose and not tweak out over it but it's so discouraging that people only want to interact with us black people and our issues from a 10 ft pole while claiming to be our allies. it's performativity like that that gets us put in danger + drowns our voices out, it's why I keep asking y'all to boost black voices. not just mine, but the black people around you. especially your friends or family.
I'm sorry but you need to hear that the ability to mask is a privilege. Autistics who can't mask are in the most danger. Yes masking sucks and it's awful and exhausting but at least you CAN do it. What do you think happens when someone can't?
here's the best way of answering any question you may have about this:
Why do you feel the need to mask?
What would happen to you if you couldn't do it?
Adding on:
The best way to reach a world where you no longer need to mask?
Would be to improve how low/no masking autistic people are treated first.
dont talk to me or my clone or my shadow self or my reflection or my me ever again
For disability pride, think I want to focus on this one thing that been bothering me
Been very frustrated lately by lack of phone call accessibility as someone who lacks speech but needs a lot of resources to stay healthy.
With rise of AI, it's only getting worse and worse.
More places changing their systems to incorporate AI answering machines.
Thing is...
Whenever I hear most people ranting about this change, it's usually about how annoying it is from an abled-person perspective or environmental or ethical impact.
Which are important valid reasons to be upset. I share those sentiments too.
But feel like disability is once again forgotten about within important discussion about change.
AI creates terrible language accessibility issues.
In fact, that's why it so annoying to deal with it.
In the past, if a place didn't have a call center or desk person to answer calls, they use extentions.
That meant you had to press a few numbers to get the right person.
Now with AI, you're expected to have a full conversation with a robot.
Tell them why you're calling, who you need to speak to, verify your info so the humans don't have to later, etc.
These bots can be bad at understanding what able-people are saying, so imagine how they handle these disabled callers:
People who use AAC (speech aids/devices)
People who slur, stutter, have "strange" voice or pronunciation
People with rapid or disorganized speech
People who use poor grammar & who don't speak full words or sentences
People who mix up similar common words
People with "deaf accent"
(i don't know if there is a different preferred term for this. Im sorry if I sound offensive. Please Lmk)
People with non-communicative speech such as vocal tics, echolalia, or babbling
Anyone who uses speech or language in a way that needs a human mind to interpret
Anyone whose voice sounds notably different
Ability to understand what AI is saying can be harder too:
d/Deaf people and other hearing differences
Auditory processing disorder
Receptive language disorder
Developmental disability, especially intellectual and learning disabilities
(AI can't help people who need things explained a certain way. AI unreliable and fails to adapt a lot.)
Anyone who frequently can't make out sounds and/or speech
Anyone who frequently has trouble with meanings in conversation
The problems I often face with AI answering machines (and that I'm sure many other disabled people have faced as well):
AI slightly mishearing me/my device
AI mishearing so badly that it basically makes up a fake conversation
AI not hearing me/my device at all
AI registering tics and stims as answers
AI "explaining" an instruction by repeating the same instruction again word-for-word
AI directing me to the wrong person without trying to confirm what I said
AI sometimes just... hanging up on me right after I speak my first answer...
These are the machines being put in front of
hospitals
doctors offices
mental health centers
pharmacies
transportation and in-home care
health insurance member services
medical supply companies
government resource agencies
non-profit organizations
advocacy groups
justice centers & other legal resources
customer service lines
many other places disabled people often need to access from home
It's another example of some of the most vulnerable being pushed away from the things we need, and we're also being forgotten in these discussions about things that can affect us a lot
Next time someone is ranting about AI job interviewers, please also remember:
the AI pharmacy assistants that make it impossible for someone with a speech disorder to sort out their meds
the AI scheduler that won't allow a D/deaf person to access the right extension of the clinic to set up an appointment
the AI agent that confuses an intellectually disabled person into anger and tears
the AI answerer that hangs up on a mentally ill person seeking help in crisis because they aren't speaking coherently enough
Human beings need to be at the forefront of human resources and issues for disabled people especially. Please remember us. Please fight.
Happy disability pride ♡
10 reminders for disability pride month.
1. there will always be someone more severely affected by their disability than you are, this does not mean you aren't disabled, or that your struggles aren't real. these disabled people are not your enemy.
2. visibly disabled people are not treated better than invisibly disabled people, there are different struggles to both.
3. visibly & severely disabled people are not lucky for being visibly disabled or severely disabled. this belief is ableist.
4. we all need to keep the more severely disabled people in mind, they are the most vulnerable & this is disability justice 101.
5. there will always be severely disabled people in public, you absolutely need to work on your discomforts about the conditions/aids/symptoms/behaviours they might have; drooling, incontinence, "odd" behaviours, visible differences, use of AAC etc. this is a you problem, not a them problem.
6. there will always be symptoms of disabilities that you don't approve of; zero social awareness, cognitive impairments, violent meltdowns, strong smells & loud noises, being nonverbal/semiverbal etc. no one can force you to like it, but you cannot be cruel to them regardless of your opinions, again, this is a you problem & not a them problem.
7. you can still be ableist even if you yourself are disabled, this isn't always internalised, it can also be outright ableism.
8. caregivers of severely disabled people often play an important role in disability spaces, try not to *immediately* discount their experiences, unless they're truly over stepping, are being factually incorrect/uneducated or ableist. (caregivers can come with unique problems in disability spaces, 100%, but they are not inherently bad)
9. severely disabled people will have experiences you do not have, it is not an attack on you when these experiences are talked about.
10. “people wouldn’t say [ableist thing] to a wheelchair user” yes they would and yes they do.
and yes, some of these things that i've mentioned still applies to less severely disabled people, but goes especially for severely disabled people who often experience these things the most. be kind, be compassionate.
the notion that autistic people with "stereotypical" presentations of autism have ever been respected in society or are no longer in need of advocacy or representation would be laughable if it weren't so harmful
It's ridicilus that I can be on both medicare and partial medicaid and still have 3 separate debt collectors sent to me over less than $400 in collective medical bills
At that point just fucking cover it or forgive it, like oh my fickung god. its not even a money thing at that point, Theyr literally just being violent
"Patient's responsibility" my fucking ass. Im not supposed to have co-pays. Was told it's not even supposed to be legal for them to bill me with the plan im on because it's for poverty people like me
(I dont have $400 by the end of yhe month but they fucminkg have way more than a thousand)
Okay so update: this is illegal apparently
They aren't allowed to bill someone with QMB
Was pretty sure knew that, but got confirmed today by program guy
Have been getting set up with home care and they help me with some things that have been getting ignored by people
Good action but now now tired. I need to food
Ngl I'm getting kinda sick of looking for disability related pins and stickers and stuff and ONLY finding things like "not all disabilities are visible!" and "invisible disability squad!" and maybe a disability pride flag or two. Like yes visibility can be important for invisibly disabled people, but you're not the only people here. Abled people don't really acknowledge visibly disabled people either btw, they just pretend they don't see us unless they can do something ableist
Being visibly disabled in the current community is a fascinating experience. Somehow you get to be the most visible part of the community and yet simultaneously completely invisible. People will tell you you're seen as the default and yet even spaces that call themselves "accessible" seemingly forget entirely that wheeled mobility aid users might need to use them too, or treat you as an afterthought. Disability related gatherings will be absolutely shocked if you turn up with a bulky mobility aid like a power chair or have a particularly noticeable visible difference, as if they never thought that people like you actually existed in the real world and might share a space with them. Disability related merch will be plastered in invisible disability slogans but people will look at you like you're from outer space if you ask if they have anything about disabilities that aren't invisible. They tell you about how they saw someone with a disability vaguely similar to yours on TV once, so you don't need more awareness.
All the while abled people just continue to act like you don't exist unless you can be "inspirational", or you're inconvenient to them, or you look so different that they think they can get away with treating you like an animal.
some people - even some wheelchair users - have this false dichotomy (?) in head abt wheelchair & wheelchair users
for example idea that powerchair / their users always worse off disability wise than manual wheelchair / their users. or that powerchair = easy use.
am full time wheelchair user & rn use my custom manual wheelchair with power assist all time. but in past used group 1 / 2 powerchair (a non custom powerchair w big base & big plastic leather seat that technically cushioned. mine be technically group 1 bc need the transportability n take apart (bc know eventually need get it to literal other side of globe) but it closer to group 2 powerchairs than those rly small collapsable 50 lb folding power chairs) & that manual wheelchair at same time. so have enough experience say that idea above, simply not true.
bc of my disability & seating positioning needs, sitting in that kind of powerchair be really uncomfortable n painful n exhausting.
mine have medium height backrest, which be not enough for me. even if it do have higher backrest & headrest would not be able sit in for long because it simply not supportive enough. it not keep body in place. it not designed keep off pressure on my skin n muscles n bony spots.
it also incredibly bumpy, every vibration be transport into feet n leg n rest of body to neck etc.
all these reasons mean actually need spend more energy n effort in those kind of powerchairs to keep body up n sitting, not to mention properly sitting w right posture that not give pain or worsen disability or bad pressure.
because of that, can only tolerate use it for 1-3 hours at time max.
n the collapsing easy transport 50 lb type folding powerchair, which glad help some people, simply would not work for me, even with one with technically backrest that cover entire back + headrest that be going around disability influencer instagram rn. it does not n will not work for same reason - except more intense because it even less supportive on body.
versus. my custom manual wheelchair, which not meet all my disability needs, n give me pain n symptoms, n complain abt it lots, but even with that!! it infinitely better than my powerchair n **is actually usable**.
because it built for me, the backrest high enough to support body + shaped n contoured in way that keep body in better place, including on two sides / left n right. n same for headrest!
my cushion not put as much pressure on my skin, esp bony places am prone getting pressure sores on, n (mine rn not do this well, which be bad on my body, but there options that do) shape in way that keep butt & thighs in place so not slide n friction (which can also create pressure sores) or not need significant energy keep in right place.
my wheels also be designed to keep ride as smooth as possible (sth special abt spokes), so my body not suffer as much from all the vibration.
(n even with these, still exhausted n in pain n need be in bed lots to recover from, yes, “just sitting” in wheelchair. my non ambulatory friends w complex disabilities who use custom group 3 powerchairs, aka those fancy complex rehab ones that do tilt n recline n lift etc, say same abt theirs too! being in wheelchair can be very exhausting!! especially because some of our disabilities that make us need wheelchairs.)
n yes, am someone who cant rly push self for much in manual wheelchair. need power assist and/or someone push me (often both!! bc my power assist be exhausting n heavy!) to properly get around or else not able leave house at all (not exaggerate). even with this!!! my manual chair still work better for me than power chair.
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sometimes it not just manual vs power, sometimes it also about (or sometimes more about!) custom vs non custom!
some people functionally cannot use non custom wheelchairs, some people cannot use non custom wheelchairs at! all! (people have literally died directly bc airlines broke their custom group 3 powerchairs n not replaced in time!)
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like, in general, wheelchair users be different, our needs be different, our disabilities be different. for some people it may be more straightforward, but also a lot of us wheelchair users have complex nuanced disability/disabilities that complicate things.
Refused to give up their prescription medications that staff would have taken to prevent "med sharing" (which is super rare).
Couldn't make it back to the shelter by lights out because they have a job that goes past 8pm
Shelter is tied to a religious institution that mandated specific prayer and weekly church services in exchange for a bunk. Not everyone can lie or violate their own religious beliefs for a cot for the night.
Got yelled at or abused by staff
Has medical/injury or accessibility needs that the shelter can't or refuses to provide or accommodate for.
[ID: tweet by Yell in a War (@/jelenawoehr) that reads:
When you hear that an unhoused person "refused services" that includes...
– refused to give up their pet to get a short-term hotel room
– the shelter they were offered a space in wasn't safe for their gender/sexuality
– couldn't consolidate all their belongings into two bags
/end ID]
Ones I've personally experienced:
Was instructed to throw away all my perfectly clean clothes and blankets to prevent bringing in filth
Have been in ones that would try to force interactions between people regardless of social, emotional, or trauma issues
Some shelters have notorious issues with theft and assault
Many shelters have stairs to their only entrance with the only offer of accessibility being that they can "carry you up"
Has you wake up at 6 AM every day to be out by 7 which is like. yeah at that point I might as well just sleep in my car so that I can actually sleep
Most of the shelters in my area are winter shelters, so there's hardly anywhere to go during the rest of the year
parking lots should only have disability spaces im sick of the rest of you