a comic about verbal words :3
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a comic about verbal words :3
next comic
For disability pride, think I want to focus on this one thing that been bothering me
Been very frustrated lately by lack of phone call accessibility as someone who lacks speech but needs a lot of resources to stay healthy.
With rise of AI, it's only getting worse and worse.
More places changing their systems to incorporate AI answering machines.
Thing is...
Whenever I hear most people ranting about this change, it's usually about how annoying it is from an abled-person perspective or environmental or ethical impact.
Which are important valid reasons to be upset. I share those sentiments too.
But feel like disability is once again forgotten about within important discussion about change.
AI creates terrible language accessibility issues.
In fact, that's why it so annoying to deal with it.
In the past, if a place didn't have a call center or desk person to answer calls, they use extentions.
That meant you had to press a few numbers to get the right person.
Now with AI, you're expected to have a full conversation with a robot.
Tell them why you're calling, who you need to speak to, verify your info so the humans don't have to later, etc.
These bots can be bad at understanding what able-people are saying, so imagine how they handle these disabled callers:
People who use AAC (speech aids/devices)
People who slur, stutter, have "strange" voice or pronunciation
People with rapid or disorganized speech
People who use poor grammar & who don't speak full words or sentences
People who mix up similar common words
People with "deaf accent"
(i don't know if there is a different preferred term for this. Im sorry if I sound offensive. Please Lmk)
People with non-communicative speech such as vocal tics, echolalia, or babbling
Anyone who uses speech or language in a way that needs a human mind to interpret
Anyone whose voice sounds notably different
Ability to understand what AI is saying can be harder too:
d/Deaf people and other hearing differences
Auditory processing disorder
Receptive language disorder
Developmental disability, especially intellectual and learning disabilities
(AI can't help people who need things explained a certain way. AI unreliable and fails to adapt a lot.)
Anyone who frequently can't make out sounds and/or speech
Anyone who frequently has trouble with meanings in conversation
The problems I often face with AI answering machines (and that I'm sure many other disabled people have faced as well):
AI slightly mishearing me/my device
AI mishearing so badly that it basically makes up a fake conversation
AI not hearing me/my device at all
AI registering tics and stims as answers
AI "explaining" an instruction by repeating the same instruction again word-for-word
AI directing me to the wrong person without trying to confirm what I said
AI sometimes just... hanging up on me right after I speak my first answer...
These are the machines being put in front of
hospitals
doctors offices
mental health centers
pharmacies
transportation and in-home care
health insurance member services
medical supply companies
government resource agencies
non-profit organizations
advocacy groups
justice centers & other legal resources
customer service lines
many other places disabled people often need to access from home
It's another example of some of the most vulnerable being pushed away from the things we need, and we're also being forgotten in these discussions about things that can affect us a lot
Next time someone is ranting about AI job interviewers, please also remember:
the AI pharmacy assistants that make it impossible for someone with a speech disorder to sort out their meds
the AI scheduler that won't allow a D/deaf person to access the right extension of the clinic to set up an appointment
the AI agent that confuses an intellectually disabled person into anger and tears
the AI answerer that hangs up on a mentally ill person seeking help in crisis because they aren't speaking coherently enough
Human beings need to be at the forefront of human resources and issues for disabled people especially. Please remember us. Please fight.
Happy disability pride ♡
Okay, I just learned we got the worlds first nonverbal voice actor, and as a semi verbal person who has wanted to see more AAC users in media FRIGGIN FINALLY. Seriously, I’m just happy people understand that the statement ‘nonverbal voice actor’ is not an oxymoron.
Edit: People kept bringing up Madison Bandy, who played Renee in the Pixar short film ‘Loops.’ She is indeed earlier. Some news articles were misrepresenting Odin Frost. However, he is the first nonverbal voice actor in a kids show, and Paulo, the character he portrays, is the first full time AAC user in a kids show, as far as I’m aware.
Little nonverbal/semiverbal one, drawing on a little whiteboard.
Taking a while to tap buttons on a text to speech app, asking for juice or cuddles.
Watching cg or friends and just laying over laps and feeling content.
Rambling with markers on paper, babbling with spirals between sentences and cg reading over your shoulder and answering.
Pointing and making noises! Whining or meowing or going babababa or doing the throat raspy thing.
Making little secret gestures with friends or cg so you can communicate easily across rooms or in crowded places.
Stimming by repeatedly tapping the same symbol on text to speech app - meow meow meow meow
Borderline doing pantomimw when not understood immediately and your people slowly getting better and better at knowing what you mean.
People reading to you and you listen and tap things in the book .
Playing videogames with someone and them being okay with you using ingame chat or not talking or pausing the game so you can type or sign or write etc.
Quiet parallel play dates, maybe listening to cds together while doing stuff!
i dont like the disabling part of autism being erased by ableists so heres some of the bad parts! ദ്ദി(ᵔᗜᵔ)
i ignore everything and everyone if im doing something, even emergencies!
i get frustrated very easily and throw things!
one unmet expectation can send me into a shutdown. if even more happens (which is common) it turns into a meltdown!
i push people and yell when i have meltdowns! i hit myself! i run away!
i cant have my house keys at night because nobody would be awake to catch me if i elope!
i need someone to walk me over every single step for certain tasks!
i cant speak in full sentences like you see here and i take a long time to type them out!
in school i couldnt do any of my assignments because they werent related to my special interest! i needed them modified.
i cant wash dishes by hand but i cant stand dishes that arent squeaky clean (as in, literally squeaks)
im very sensitive to temperature, but can only tell that its upsetting me when im already super super angry!
i cant handle finances on my own!
i cant remember how long ago things were so i need everything to be written down and set on a clock! even eating!
i need someone to give me food so i dont get malnutritioned!
i cant tell directions and get easily disoriented, so even if i have a map i might get lost!
i elope without my walker which means i end up in a lot of pain after!
i cant tell time correctly so i end up super early or super late!
i need my mom to wash my hair for me!
i need picture guides so i dont get overwhelmed by basic things like showering and getting dressed!
“no!! dont use your aac device or your cane! youre gonna look disabled!!!!”
im gonna hold your hand when I tell you this-
I genuinely believe if you just hate talking and want to never speak again, that's fine. If you decide you want to use AAC for the rest of your life for any reason, that's your prerogative.
If you wake up one day and think "I don't feel like speaking", you deserve access to AAC and accommodation. If you wake up one day and think "I'd like to speak today", you deserve to not be questioned. If you want to switch between speaking and AAC in the middle of the day, you deserve that choice.
We put such a weird emphasis on the idea that speech should always be the end goal and everyone should have this and that amount of speech. It doesn't matter. Do what makes you feel comfortable and happy.