#cf problems

[normallife7-blog]

The one thing I hate about airway clearance, is that I feel so ill afterwards. I feel it makes me more poorly like I’ve catch something. I know it’s just fatigue as my body has had to do a lot of work to get the mucus up but I feel so rotten after that I have no energy to do anything. I don’t know if it’s a sign of something brewing, as I’ve felt tight the pasts few weeks even with increased exercise and improved adherence to treatment........ I don’t know I’m abit like Jon Snow “ I know nothing” and CF plays mysterious games. One day your good the other........ ☹️

[the-w0rld-is-flat]

i tried to exercise today and after literally 4 minutes i coughed so hard i puked.

[the-sixtyfifth-rose]

oh boy i love coughing up blood.

[ghibliprincess]

It seems my body will never function properly again

[love-does-not-envy]

My dad is the bomb dot com. I haven't been able to wash my hair since being in the hospital because it takes too much energy to do by myself and its hard to keep the port and central line dry. So today he washed my hair while I just lay there like a newborn baby. But, like, wearing clothes. Cuz that would be weird. It felt really good though.

[tacitus-morgan]

I need outta this funk

I haven't had any improvement after being on IV antibiotics this past week My mood has been absolutely god awful the entire time, and I've been super tired as well. My port won't return blood drawback, although it works fine otherwise, and this is an issue I have nearly every time I go on IVs I'm just generally frustrated and meh.

[presentmoon-blog]

okay so i am sick yes, but because of cystic fibrosis. i don't have a cold, i don't have the flu, i am actually not contagious at all unless you have cf. if you are my friend and you know this please note: it isn't funny to flinch away or move away when i cough because you think it'll annoy me. it actually really hurts. i just want to be able to hang with you and forget about all that shit. please don't “tease” me about being sick “oh ew your so sick lyndall get away i might get sick hahAha” Its not funny.

[tacitus-morgan]

Current life goal

Convince my mother and my cf team that I can wait to do start a round of ivs until after I get back from my Ireland trip