#cfsrecovery

[mortallycrispygardener]

I think I'd like to start doing some "fibromyalgia recovery" content because that's currently my whole life and I'm good at finding answers about it. It could probably help a lot of people.

Fibromyalgia tip #1:

Drink plenty of water. I drink 3 or 4 liters a day. Water is a very basic way that you can help your body function. First, measure how much water you normally drink in a day. Then, gradually increase your water intake goal. Pay attention to your body's signals to help you know what is the right amount of water for you to drink. I bought a cute water bottle that I like drinking out of to encourage me.

[sparkles-and-trash]

someone recently asked how cfs recovery is, and I’m at that stage where I’m getting better, but still struggle, so here, have a day in the life:

I wake up, after 12-14 hours of sleep, and I’m freezing to the point of shivering, have to take a scolding shower to be able to move properly because of joint and muscle pains from shivering all night

I get out of the shower, hurry to dress before I get just as cold and get seated under a heating blanket, drink some tea to warm up some more, then maybe I’m ready for stuff like the stable etc

About halfway trough what I need to do that day I start to freeze again, have to over dress, then I get horribly warm, and have to choose between freezing or sweating

Hurry up and get home, get in the shower again, same rutine as the in the morning, cold, cold, cold

Maybe a nap, with heating blanket and normal blanket, still wake up freezing, need tea to warm up a little

Go to bed, need a freezing room to not get horrible night sweat, get warm under the blankets and sleep well for maybe four or five hours

then get warm and cold and warm and cold over and over again all tru the night, sleeping badly for maybe 8-10 more hours

repeat

[inkwellsandmagicspells]

Haven't been to my boyfriend's family dinner since I started working 😅 After hangouts for a friend's birthday on Friday, I'm hoping it won't take too much out of me 🤞🤞🤞#cfsrecovery #merecovery #mecfs #mecfsrecovery #canadianthanksgiving #thanksgiving

[sparkles-and-trash]

I need some advice, and I’m hoping you can help

So, as some of you may now, I have an illness called CFS/ME, which basically means I’m chronically tired, have joint pains, need about 18-20 hours of sleep a day, have trouble focusing and a bunch of other stuff, lol.

The worst part tho, is that there’s no cure. The only thing to do is to wait, chill, and hope for the best. Some get better, some don’t.

Last year I was offered a place at a clinic for people with CFS, for a month. I really wanted to go, but got a huge infection when I was supposed to, and had to wait. The next time, I dislocated me knee, aaand had to wait again. So, now I’n supposed to go next week.

But now I’m very unsure of what to do. You see, I have struggled with migraine since I was a kid, but lately it has become worse, so now I’m on new meds. These meds make my mood unstable, makes my muscles cramp up, I’m groggy, I loose focus and so on.

So, I’m worried I’ll just get worse if I go. The thing is, I know I won’t get better by going, but I might get some new information and such, and some tips on how to live with this condition the best.

If I go, I risk getting worse, and taking the spot from somebody who needs it and could actually use it, plus it’s a two hour drive every friday and sunday, which costs me a lot.

If I don’t, I feel very ungreatful. I’m also very scared of regretting it, and I feel like I just give up all the time.

Ugh. I need to decide by tomorrow, so if anyone had ANY input at all, please talk to me. I’ll be forever greatful, seriously, and I’ll do basically anything for you in return!

Within reason, hah.

[inkwellsandmagicspells]

Get you a partner who will bring you home a smoothie when you're stuck working on Sunday 👍💪🙌 #passionpotion #petessmoothie #petes #smoothie #spooniestrong #cfsrecovery

[inkwellsandmagicspells]

I've become a little superstitious in my illness and have been afraid to share more in case the universe decides to take it back -- but I was hired and started a new job this week!!! 🙌😄 After a little over two years of unemployment, it's a huge adjustment, so right now I work from bed -- but my ultimate goal is to be able to work all my hours sitting at my desk. I don't know how long that will take and I honestly don't care. I HAVE A JOB! 😊 #cfs #cfsme #cfsrecovery #disability #workfromhome #spooniestrong #chronicfatiguesyndrome #myalgicencephalomyelitis #ontopoftheworld

[hospitalservices]

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Constant tiredness can affect every part of your day. Dr. Girish Nair offers specialized Myalgic Encephalomyelitis therapies to manage Chronic Fatigue Syndrome. By understanding the types of fatigue and offering personalized treatment, the goal is to help you regain strength and feel more active again. Reach out today to start your path toward more energy and vitality.

[sparkles-and-trash]

A way too long post about requests, imagines, and expectations

If you’ve requested anything here, or read my writings, I hope you’ll take the time to read this! It’s kind of scary for me to write this, but I don’t want anyone to sit around and wait for something that may not happen when they think. 

So, as you know if you follow me, I’ve been back to writing fandom stuff lately, mostly Sweet Pea and Southside Serpent stuff! And, a while back, I did open up for requests, and I have done some, but I still have quite a lot of them in my drafts and inbox, and it’s tearing on me.

The thing is, it’s a lot harder for me to write these pieces, not because your requests are bad or boring or anything like that, rather the opposite. When something is requested I feel way more pressured when writing it, like it has to live up to some expectation I can never seem to reach, at least in my head. When I just get an idea myself and write it, I mainly write it for me, and every note, every kind message and ever person who enjoy it, is a (huge!!) bonus, not something that I feel like I need to write and post. 

The thing is, I am ill with CFS/ME, and even though I’m doing rather well lately, I still have a lot of stuff to... idk, get used to? I’ve been ill for 4 years now, and in that time I have not gone to school, just done some courses online, and with that I haven’t had to perform or focus on anything else than getting better, and when I’ve been in good enough health to create things, I did it for me, and usually never showed it to anyone. What I’m trying to say is that I’m not used to worrying about letting people down with the things I make.

I feel like this comes off like I just want recognition, which is not the case at all, but I don’t know how else to explain this situation. The thing is that I want to keep writing, including your requests, but I can’t promise when I’ll have those posted. I currently feel guilty every time I post something that isn’t requested, and that’s not... good? 

So, bottom line is, I’ll keep writing stuff I have in mind, and I’ll work on the requests, but in my own time I guess? I get that it might be disappointing, and if you want to unfollow me, I get it. But, I hope most of you stay, because, as cliché it might be, I do appreciate every single one of my followers, readers and commenters!