It’s still so odd whenever people ask the question of “well if you can’t get to the bathroom on your own what do you do”
this was when I was a bit worse off. What I did was waited almost four hours until I could have someone help me move. When you don’t get help, you don’t get care. When you don’t get care, you get worse. What do you really think happens? That we gain the ability to suddenly be able to do things for ourself solely because we have to wait? That we just gain the determination to push through if no one is there? It literally does not get done until someone is there to help. Something as basic as *peeing* too. And don’t forget how much it’ll take it out of you.
If you’re hungry and no one can help, you don’t eat. If you’re hungry and what someone served you won’t work for your GI system, you don’t eat, or you get fucked up. Your choice. How hungry are you? If you’re thirsty and no one answers a text to get you water, you don’t drink. You lay there, you wait, and you wait. When someone’s available, then you get your needs met too. If you’re lucky, it’s done right.
Btw, just thirty BPM increase is also one of the factors for POTS. Mine goes anywhere from 50-70BPM, and my bathroom is ten steps from my bed. This is one of my realities as a severely disabled person. Could you live this? Could this be your life too?
