#chronicallyconnor

[itchyandglitchy]

FIBROMYALGIA AWARENESS DAY

Its fibromyalgia awareness day i dont own any purple so i cant post any pictures showing my colors but i can make a ppst about fibro! Fibromyalgia is a chronic disorder characterized by widespread musculoskeletal pain, fatigue, and tenderness in localized areas. But those are just some of the symptoms! Most days i can hardly handle touch from people or clothing because my skin is so sensitive and everything hurts. My fibro effects my daily functions. Sometimes my brain is so foggy ..i put things where they dont belong like peanut butter in the fridge or cereal in the freezer. I forget what im going to say 9/10 times. I can be in the middle of a sentence and boom its gone. My joints hurt constantly. Im always changing position, leaning on something, or rocking while standing to relieve pressure off of them. I swell. Like crazy in my hands and feet and knees. I have insomnia. All of these from fibro. Im sure there is more but ya know...brain fog creeping in. There is NO cure for fibro. There is limited treatments. And most people.. They dont believe its real. Well im here to tell you. IT IS REAL and i battle it every day.

[itchyandglitchy]

At this point.. Breathing takes spoons

[itchyandglitchy]

Accomplishments

1. Ate a piece of toast.

2. Showered.

Climbing my Mount Everest is hard but i can do this

[itchyandglitchy]

Red/white/blue?

My ears are so freaking red and hot rn. It starts in my cheeks and spreads. I feel cold in my hands and feet. Im always somewhere in the ranges of flush (red) , pale and dizzy (white) ,and cold in my extremities(blue). Who knew chronic illness was patriotic?!

[itchyandglitchy]

Pcp for the win

My primary care dr is honestly the best. So she came into the room and i was already having a hard time breathing with my heart rate being fast. She listened. She took everything i said and told me how she felt. She thinks i could have POTS. She did an ekg. Set me up to get a holter monitor. She shes doing lab work and setting me up with a pots specialist. ALSO! She set me up to get evaluated for a custom wheelchair!! Ahhh progress finally.

[itchyandglitchy]

When traveling i have to take into account

1. Showering/getting ready

2. Traffic

3. Time to actually fucking breathe because any amount of movement is like climbing a mountain in 90° weather

[itchyandglitchy]

Back at it again

Back at the hospital. Symptoms got too bad again. Got here and my heart rate was 170 sitting down. Like how is that normal?!

[itchyandglitchy]

Hospital trip

Ended up in the ER with tachycardia, flushing, nausea, hard to breathe feeling dizzy and lightheaded Its slammed . i feel like shit. This is gonna take a while but im hoping to get an answer.