#chronie

[anactualmole]

Chronic illnesses are such bullshit.

Wake up after a great 8 hours of sleep and you haven't had any caffeine or lactose or anything tasty in a week because anything with even a remote dusting of spice will fuck up your stomach.

well fuck you, enjoy diarrhoea, stomach cramps and weird foot pain for the rest of the day

also no there's nothing you can pin point as the reason, it just happened cuz fuck you that's why

[bass-alien]

people wonder why people with chronic illnesses go into debt.. literally each of my infusions cost 14k before insurance so if you have a chronic illness and not so great insurance you’re looking at paying thousands of dollars for just a single infusion 😅

[plantahmane]

The world you live in. Credit: chronie

[jagarsjora]

People in class today talked about the “fact” that when we reach our physical limit we’ve actually only used 40% of our body’s capacity. And not only does that fuel the dangerous constant grind working mentality America loves so much but it completely leaves chronically ill people behind. I believe there is some validity to that fact because I often push myself past my physical limits not because of some workers fetish but because if I admit where my physical limit actually is I’ll be seen as lazy and entitled or faking it to avoid work. Trust me that limit is there for a reason. I have both worked my body to the bone and worked passed the number of spoons I had. I can see the appeal in powering through and being in awe at what your body is capable of but I also know what my body is capable of in the worst possible way. Our society’s need to cause actual damage to our bodies to prove we’re working harder than anyone else to prove we deserve any amount of success is so damaging.

[thecozy]

8 Gifts for People with Chronic Illness

This post should actually be called 8 Gifts for People with Chronic Illness, pain, anxiety, and anyone else experiencing WTF moments. I love to give gifts, it is how I show affection. When those around me suffer, I give my time, gifts, and meditations to them.

These are all gifts I have received and given. They are not single use, they are not disposable.

1.  Glassybaby

I love glassybabys because you are gifting something handmade, beautiful, charitable and personal. They highlight different charities for different illnesses and causes so you can easily match your gift to the recipient through the cause, theme, or color.

2. Warmth

This will be a recurring theme but the format can vary in meaningful ways.

The hottest hot pad I’ve ever found.

3. Cozy Toes

In the hospital between the lack of circulation and the single pane windows, my feet were always cold. I was also suffering from extreme anxiety. My Auntie sent me these awesome slippers. You simply microwave the insoles and they stay warm for hours.

4. Robes

A robe is always a good idea. Winter, summer, after showers, while working from home, give the gift of cozy. Honestly, not a terry cloth fan, you can do better.

For after showers and springtime: Waffle Texture Robe

Cozy warmth for winter: Teddybear Realness

The softest of soft: Total Comfort @ Target

5. Warmies

For the kiddos or the young at heart, super soft stuffed animals that you can heat up, with lavender scent.

WARNING: It's a little creepy watching them go around in the microwave.

6. Food Delivery Giftcards

Postmates, PrimeNow, Caviar, UberEats, the list is endless. Did you know they deliver to the hospital? Right to your room!

7. App Store Giftcards or even better, Apps

I didn’t have the energy or the state of mind to read, even music was too harsh. I found some soothing apps/games that helped me pass the time.

Key features:

Calm colors

No time limits

Low visual requirements

Some soothing options:

Zen Koi

Prune

PAUSE

Calm

8. Candles

Something I missed while spending so much time in sterile environments was pleasant smells.

I suggest researching some local candle companies (they’re everywhere) to add some personalization.

Here are my favorites:

Good & Well Supply Co.

PNW, great scents for men and women

Isle of Skye Candle Company

Scotland, truly unique and beautiful

But don’t forget, your time and communication are the most valuable gifts. Make specific offers to help. Keep reaching out even if you don’t get a reply back, suffering is busy work.

[starcrossed-turtle]

Beginning of September I got an abscess and a hemarroid, yup, on my butt. Hurt like a bitch. Made everything uncomfortable. Had some antibiotics, made me feel like shit and, few weeks later everything is worse.

Doc thinks it’s developed into a fistula, but I need more tests. For now it’s more antibiotics and just, well, being in pain. Also means I can’t have my infliximab dose so here’s hoping my UC stays chill for a bit.

Fuck I am so exhausted and done with all this bullshit. I’m trying to learn how to start a business and eat better to have more energy and I just get this shit dumped on me and I am fucking sick of it!

[aurorarebeka]

[glowinthedark-me]

It is physically and mentally draining if you are sick all the time.