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Emotionally Nurturing Yourself During These Stressful Times By Elyse Elconin Goldberg 61 years with CF
This beautiful, kind, sweet, funny, goofy, and amazing girl got called home today and my heart is completely broken. Your momma begged god to save her baby's life and he did. He knew what Libby needed and she's not in pain anymore. I wish there was something I could have done or said but there isn't, I just know your new purple wings are beautiful on you. You and your raspy little voice will be so so missed.
We made a video that shares a bit about Cystic Fibrosis and Great Strides. Please share and help spread awareness for Cystic Fibrosis!
Hello followers, this Sunday November 9th I will be participating in the Cystic Fibrosis Climb. I will be climbing 58 flights of stairs in honor of my best friend who passed away October 24, 2013. I will be climbing with friends in tutus of course in honor of Colleen Lusk, Erin her older sister, and those still fighting. I would greatly appreciate it if you would donate to me, any amount is welcome. Every penny is another cent closer to a cure for this horrible disease 💜
Donate here: http://bit.ly/1lWVtgc
In pictures: A little boy's experience at the cystic fibrosis clinic
In pictures: A little boy’s experience at the cystic fibrosis clinic
Today marked Eli’s appointment at the cystic fibrosis clinic. He sees his pulmonologist every three months.
Eli has developed strong opinions on just about everything. He says just a few words these days, but I’ll let the pictures show what one little boy had to say about his experience at the doctor’s office:
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Sent someone a snapchat while doing my lung treatment. They sent back "Fuck CF" Those are the kind of people I like.
Sometimes I feel annoying with all my CF posts but I just want people to understand. There was a group in front of me at The Great Strides Walk walking in honor of a person who died this year at 20. 20! Like imagine only living for two more years from today. Seeing that made it worth being there and knowing that maybe others won't die that young. Some things you just can't explain.
