The caregivers who push cure the hardest are the ones who take care of nonverbal autistic people who need lots of daily help and can’t make their communications understood.
Autistic people who have extreme behaviors and can’t be left alone for more than a few seconds.
Autistic people who need diapers.
Autistic people who can’t feed or clothe themselves.
Autistic people who are very aggressive or very self-injurious.
Autistic people with comorbid conditions that complicate their behaviors.
Where is their choice? When do they get a say in their lives? Who listens to them. Clearly not YOU, caregivers.
Caregivers wanting to get rid of autism want to get rid of the “burden” of having to take care of somebody. If they have complex comorbid conditions, they will still be there and they will still feel miserable. You’re not going to cure their pain by curing autism.
What the world needs is better, more affordable respite care for autistic people who need it.
Create better in-home care for autistic people who need 2 to 1 and 3 to 1 support.
Create better in-home care for autistic people with complex medical needs that require nursing care.
Autistic people who have their needs met have less behavior issues and are more open to learning more understandable communication methods like typing on iPads, ASL, PECS boards, facilitated communication and just pointing to yes or no.
But caregivers won’t listen. They never do. They would rather exploit, dehumanize, ignore and dismiss us.
