#dysautonomiacourage

[chronicallypos-blog]

#Repost @adelaadeela (@get_repost) ・・・ DYSAUTONOMIA AWARENESS MONTH 💙 Dysautonomia is a chronic condition with no cure and no confirmed cause. For many patients, myself included, the average time for accurate diagnosis is over six years and by then, there is often no return.👩🏽‍⚕️ My neurologist thinks that my probable cause might be Mitochondrial disease or a genetic mutation. If patients don’t have a diagnosis, they can’t start managing their symptoms that become more and more debilitating. “Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control. People living with various forms of dysautonomia have trouble regulating these systems, which can result in lightheadedness, fainting, unstable blood pressure, abnormal heart rates, malnutrition, and in severe cases, death." (http://www.dysautonomiainternational.org) Feel free to share this post and spread awareness. 👏🏼💙 #dysautonomia #autonomicdysfunction #dysautonomiaawarenessmonth #dysautonomiaawareness #thedysautonomiaproject #dysautonomiacourage #invisibleillness #chronicillness #glassbodysteelsoul #peoplehopetribe #spreadawareness #inappropriatesinustachycardia #invisibledisability #disability #spoonie #czechrepublic #mydysstory #myawarenessstory #dsn #dyssupport #turn6into15

[love-sing-smile]

As October comes to a close, I wanted to share a little bit more about POTS, the type of dysautonomia I have. • The best way I can describe what POTS feels like for me is this; Imagine that moment when you stand up too fast and get a head rush, but times about a thousand, and it's constant. Laying down can help sometimes, but only if you're laying perfectly still. • The average time between onset of POTS and diagnosis is 6 years. I was lucky to get diagnosed very quickly, within 3 months. But most doctors don't know the symptoms of POTS or how to diagnose it. And so many POTS symptoms can appear to be something else at first. • There is no official treatment. Infusions to increase blood volume can be helpful, but it can only help for so long. • POTS can be incredibly debilitating. My POTS comes in waves, but on a bad day I can barely move. If I do, my heart rate skyrockets and my blood pressure drops. This often leads to near passing out or passing out. Over the last 2 years, it hasn't gotten easier. I've gotten used to the every day, low level dizziness and shifts in blood pressure and heart rate, but I still struggle with it big time. • Please help me raise awareness for POTS and dysautonomia as October ends. @thedysautonomiaproject is a great place to learn more. #pots #dysautonomia #dysautonomiaawarenessmonth #dysautonomiacourage #spoonie #chronicillness