I hate it it’s so frustrating having to take medication that rights off your whole day so you can’t leave the house. It essentially poisons your body creating a mass purge you feel like 💩 and you can’t leave the house or do anything in case you 💩 your pants. Your day is written off between 🚽 and drinking water you feel nauseous have stomach cramps and get very little ‘warning’ you can’t risk wearing jeans in case you can’t get them undone in time. But you have to do it to stay well to prevent toxins building up in your body, to make yourself ‘better’ for a little while you just have to get on with it because the risks of not doing it are life threatening. This is the reality of my chronic illness I had to just accept these days on my journey. Why am I sharing this? Because it’s totally invisible people can’t see it because I can’t leave the house (I’m not sure any one would want to see it though... lol). It’s also really taboo to talk about 🚽 and 💩. - @dysautonomiaintl #dysautonomia #ehlersdanlossyndrome @ehlersdanlosuk @ehlers.danlos #bowel #bowelcare #bowelcareday #toilettalk #💩 #chronicillness #youdontlooksick #chronicpain #badday #writeoff #acceptance #reallife #thisismylife #thisismynormal #disabilitypride #thetoiletismybestfriend #lifegoeson #justkeepswimming @invisibledisabilities #invisabledisabilities #getworsebeforeitgetsbetter #hiddendisability (at Weston, Southampton)