So tomorrow is my super important, super scary hospital appointment with my Neuro-urologist; yup, the guy who thinks we should remove my bladder entirely. I last saw him four months ago; I was given this time to think about what I wanted to do. And my honest answer? I don’t know. I’m still not 100% committed to a particular course of action. Right now, it feels as if there’s no good choice. Every option on the table comes with risks, with pain, with uncertainty. I’m just trying to pick the option that will give me the best quality of life for as long as possible. I’m incredibly grateful that LMC’s lead nurse, Mari, and my amazing mum @caroline.davies350 will be coming along to support me. This has been an especially difficult journey for my mumma and me, because we don’t necessarily agree on what the right course of action is... but at the end of the day, it’s my body, and I’m the one that has to live in it, so I’m the one who has to decide. I respect (and love) my mum immensely for supporting me even whilst she disagrees with me. I can’t tell you what the outcome of tomorrow will be, because I don’t know. I feel like there’s a lot I don’t know right now, tbh. Please send photos of cute animals and try to be especially kind and patient over the next few days. They are likely to be very hard ones for The Davies Clam, and the multitude of wonderful who we love, and who love us. I’d like to finish by just saying this; I didn’t come this far to only come this far. I have fought, tooth and nail, to create this wonderful life for myself. And I will continue to fight, every day. Even on the really, really difficult ones. #ididntcomethisfaronlytocomethisfar #palliativecarewarrior #cystoscopy #gallbladderremoval #mybladdersucksatbeingabladder #nogoodchoice #honestly #thissucks #luckytohavesuchamazingpeopleinmylife (at Cardiff) https://www.instagram.com/p/BvrlwqxHPib/?utm_source=ig_tumblr_share&igshid=6z339rxnrxkk
