#knowsicklecell

[vampireandthecity]

When you decide to show up and show out for #RedSeptember and #SickleCellFridays.... . . Did you know September is #SickleCellAwareness Month. #Sicklecell is a genetic disorder characterized by sickle shaped red blood cells which can cause blockage for red blood cells to move through blood vessels. Blockage can cause extreme pain and severe complications. There is no universal cure. #FightSickleCell #KnowSickleCell #Cellfie #WearRed . . 📸 Photo Cred: @thekeyznyc (at New York, New York)

[sicklecellmn]

⚠️ So you don't think there's risks associated with #SickleCellTrait (SCT)? Tune in this Thu Jun 2 to learn how "What You Don't Know (About SCT) CAN Hurt You!"! Register: 🌐 bit.ly/sicklecellmn-sicklesmart Learn more about our Living #SickleSMART virtual education series: 🌐 sicklecellmn.org/sicklesmart #SickleCellDisease #kNOwSickleCell #SickleStrong #CureSickleCell #strongertogether #SickleCellMN (at ZOOM) https://www.instagram.com/p/CeMQh-HuJFp/?igshid=NGJjMDIxMWI=

[sicklecellmn]

Avascular necrosis (AVN), in individuals with sickle cell disease, results from the temporary or permanent loss of blood supply to the bone in the hip or shoulder joint. This loss of blood causes narrowing of the joint and collapse of the bone. AVN can affect a single joint or more than one joint at the same time. #SickleCellAwareness #SickleStrong #SickleSmart #SickleCellMN #kNOwSickleCell #2020 More info at: https://www.stjude.org/treatment/patient-resources/caregiver-resources/patient-family-education-sheets/hematology/avascular-necrosis-and-sickle-cell-disease.html https://www.instagram.com/p/CFDR8drj239/?igshid=1mtfy15pqirvd

[sicklecellmn]

“The annual awareness of #SickleCell Awareness Month began in 1975 when the National Association for Sickle Cell Disease (NASCD) now known as SCDAA today and its member organizations hosted month long events to raise awareness about the condition. In 1983 the Congressional Black Caucus within the House of Representatives unanimously passed a resolution asking then President Ronald Reagan to issue a proclamation declaring September as “National Sickle Cell Anemia Awareness Month.” Proclamation 5102 was signed in September 1983.” Source: Chicago Defender “Sickle Cell Disease: What We Should Know” Repost from @sicklecell101 #SickleCellAwareness #kNOwSickleCell #SickleStrong #SickleSmart https://www.instagram.com/p/CE-wKY7DD-L/?igshid=1m7bzk0xkfxkf

[sicklecellmn]

The cold weather months have arrived and many #SickleCell #warrior families in colder climates begin to think about moving someplace warmer for the sake of their or their child's health. Being in Minnesota, we definitely understand this challenge. If you choose to move to a warmer climate, please be sure that wherever you may choose to go has adequate knowledge of sickle cell disease and compassionate medical providers in the clinics, hospitals and the EDs. It probably won't be perfect, but it shouldn't be sub standard care either. Whenever possible, find the sickle cell community organization(s) in the area, speak with other sickle cell families in the area, and get referrals to good doctors and clinics who have a reputation for good care. #SickleCellMN #kNOwSickleCell #SickleSmart #ConquerSCD #CureSCD https://www.instagram.com/p/B5eD_eMgpqB/?igshid=wmazdzov2izv

[sicklecellmn]

The cold weather months have arrived and many #SickleCell #warrior families in colder climates begin to think about moving someplace warmer for the sake of their or their child's health. Being in Minnesota, we definitely understand this challenge. If you choose to move to a warmer climate, please be sure that wherever you may choose to go has adequate knowledge of sickle cell disease and compassionate medical providers in the clinics, hospitals and the EDs. It probably won't be perfect, but it shouldn't be sub standard care either. Whenever possible, find the sickle cell community organization(s) in the area, speak with other sickle cell families in the area, and get referrals to good doctors and clinics who have a reputation for good care. #SickleCellMN #kNOwSickleCell #SickleSmart #ConquerSCD #CureSCD https://www.instagram.com/p/B5eD_eMgpqB/?igshid=mixe95w49daz

[sicklecellmn]

Thank you @bluebird_bio for being a BRONZE sponsor, in support of our upcoming Sickle Cell-ebration of Hope Gala. ⭐⭐⭐ Online ticket sales end today (9/26) at noon! Don't miss out on this event, purchase your tickets soon! ⭐⭐⭐ http://bidpal.net/2019sicklecellgala ⭐⭐⭐ Visit www.sicklecellmn.org for more info! #bluebirdbio #CureSCD #SickleCellMN #kNOwSickleCell #2019SickleCellebrationOfHope https://www.instagram.com/p/B24BIXDg4js/?igshid=13hx9i1iq4aip

[sicklecellmn]

3 days and counting until the 2nd Annual Sickle Cell-ebration of Hope Gala on Fri Sept. 27th st at the Science Museum of Minnesota! Come on out and celebrate life, love, and laughter. It'll be an experience you won't forget. Tickets still available at bidpal.net/2019sicklecellgala Can't attend but want to support? Go to the event website, register, and participate in online bidding to win some amazing items. There's something for everyone, with categories such as: * Travel packages * Food and dining * Sports and Entertainment * Kids and family packages * Beauty packages * Health and Body packages * Signed Sports Memorabilia * Tons of Theme Bbaskets, and so much more Come for the cause, stay for the fun! #SickleCellMN #CureSCD #SickleCellWarriors #SickleCellChampions #kNOwSickleCell https://www.instagram.com/p/B2yqprTAfMW/?igshid=1pi4fstnnsb0y