#livingwithepilepsy

[aidinha]

Healing and recovery, especially from seizures, is a discipline. My bff who is also living with a chronic illness got me this pin to remind me of all the things I can do and will do, despite illness. That includes taking care of myself as best as I can.

[mamashaysaid]

MORNING THOUGHTS:

I'm going to ask you something heavy and you don't have to answer out loud...

How much do you really love yourself? No really, aside from the physical shiit, how much are you supportive of your cells (yourself, in other words) and your spirit?

Medical Moms/Special Needs Parents/Siblings/Family/etc., this question is especially for you:

If you had the condition your family member, son, daughter, etc. had, would you still love and treat yourself, more or less, or would you feel angry and neglect yourself, more or less? Would you ACCEPT yourself the same or would it be different? Would you not have the same spirit, if you lost your ability to express yourself, or be independent, if that's what you're used to, or would you find contentment? (just an example of the severity I'm referencing)

There's no wrong answer here. There is no shame in talking about this either. This is some heavy stuff.

The reason I'm asking, is because I had this thought, that if I were any different, physically or mentally, lost a leg or arm, an eye, my vision, my hearing, my intellect or cognitive ability, I'd still try to learn to love and accept myself

.....and if you really think about it, there are some health conditions that cannot be healed or aided, so in some cases, I'd have no other choice😶

That is so hard to think about, isn't it?

That's why I asked the question.

....because a lot of folks dont think outside their comfort zone. It's hard to imagine, right? But it can happen. It's the realest question you might ask yourself, with all the privilege you might have.

There are still plenty of parents and/or family who have a hard time accepting these type of situations. I like to reiterate the "what if it were you?" question.

If it were you, and your life was born with a special condition, that was out of your control, would you still do what you could, in order to live your best life?? Because as a human being, did you know it's your nature to do so?! How lovely is it that it is nature way to love ourselves unconditionally, in order to survive and thrive in this life.

I know for a fact that's all my little Zaza is trying to do, if I don't know anything else.

We are all just working with what we have.

[smalltowninertia]

#smalltowninertia Prayer reading in Simon’s living room with Missionary sisters from the local Mormon church. I visited Simon last week to work some more on the ‘Living with Epilepsy’ series. Simon’s had some tough months to endure, hospitalised multiple times as a result of repeated head traumas, a result of sudden Atonic ‘drop’ seizures, his beloved Mother passed away and Simon was unable to attend her funeral in person as he was in Hospital and his sister is battling cancer. Stress is often the cause of epileptic seizures, so the volume of Simon’s seizures has skyrocketed.  Through all these trials, Simon fights on, unwilling to be kept down by his illness or the injuries sustained as a result of it, he’s moved into a new apartment, tends to his garden and has found solace in attending and being visited by the local Mormon church. Full story coming soon.  Previous stories with Simon, here : http://smalltowninertia.co.uk/tag/simon

[calibrebooks]

🧠 Navigating life with epilepsy can be complex and overwhelming. This book serves as a practical guide tailored for adults in the UK facing epilepsy, whether diagnosed later in life or those experiencing a resurgence of childhood symptoms. It delves into essential topics, including the various types of seizures, the intricacies of medication management, and the vital DVLA driving regulations. Plus, it addresses the crucial aspects of work, relationships, and the social and mental health impacts associated with living with epilepsy. Written for individuals seeking clarity and support, this resource stands out by combining expert insights with real-life challenges. It provides clear strategies for managing epilepsy in day-to-day situations, aiming to empower readers with knowledge and practical advice that resonates on a personal level. Take a browse if you're looking for guidance and understanding. 📖 https://calibrebooks.com/go/bvz7?utm_source=tumblr&utm_medium=social&utm_campaign=video_trailer

[jeszmo]

Today is epilepsy awareness day, time to reflect and share the journey with you. What I have learned from the last two years: having a safe lifestyle helps, keeping up with healthy routine, set boundaries, communicate and know your limits. The new world we live in added some obstacles from some of us, access to treatment, immunization, anxiety, and people’s lack of knowledge and empathy. I am very lucky to have a treatment that works, over 26 years living with epilepsy, I have been under the three generations of treatments and experienced different side effects and changes. And still, I am in the lucky ones. Some of us don’t have access or cannot afford treatments. Some policies regarding working or learning with epilepsy are discriminating some of us. The stigma surrounding us is heavy but don’t define us or abilities. All of us can make a difference in our field: Communicate, educate, support, and inspire. If you would have asked me 25 years ago his I see future, I would never imagine I would be able to achieve what I did or dreams that size. But thanks to my family, friends and my will to overcome, this is where I am. I don’t define myself sick and never will. A diagnosis cannot define our life, actions have more power. Thank you for reading. J. • • #purpleday #livingwithepilepsy #epilepsyawareness #epilepsywarrior #epilepsypositivity #artistportrait #march2022 #helloyou #balanceisthekey #findyourpeople #thisiswhoiam (at Tel Aviv, Israel) https://www.instagram.com/p/CbkNWlUKxXT/?utm_medium=tumblr

[incurableoptimistest1994]

Usual post seizure nap? 30 minutes. Today’s post seizure nap? 3 hours. Spent my afternoon snoring and drooling on the sofa cushions whilst someone periodically checked I was still alive 👍🏻 #thatpalliativecarelife #livingwithepilepsy https://www.instagram.com/p/CQo4Bt5t9F7/?utm_medium=tumblr

[incurableoptimistest1994]

This is possibly the only time Al will ever let my epileptic ass behind the wheel of a car 😂 #livingwithepilepsy #imneverthedesignateddriver https://www.instagram.com/p/CPy3VSsNXSU/?utm_medium=tumblr

[incurableoptimistest1994]

Post seizure cwtches are the best medicine tbh 💊🥰💖 #postseizurecwtches #postseizurerecovery #livingwithepilepsy #palliativecarewarrior #myauntieisamazing https://www.instagram.com/p/CPaIRxItYI5/?utm_medium=tumblr