This is just so true. Even though I'm really happy with how the appointment with my new neurosurgeon went yesterday, today I'm having a very bad day. My head is pounding, having vision and strength loss, throwing up all day and pulsating tinnitus. If I wasn't on blood thinners I might have considered going to the ER and beg for a lumbar puncture (to get one of those bad boys in my spine/back just to get some relief from this headache that's trying to kill me). For now I just can hope this neurosurgeon will email me soon with his action plan (and hopefully a date for the lumbar infusion test, pressure monitoring and to lower the pressure, because at this point I don't know how long I can wait before getting worse and having no other options left than going to the ER. --------------------------- #invisibleillness #chronicillness #chronicpain #intracranialhypertension #pseudotumorcerebri #lumbarpuncture #spinaltap #headachefromhell #myheadhurts #painrelievers #painrelief #livingwithiih #spoonielife #spoonieproblems #shuntlife #shuntproblems #lpshunt #vpshunt #lumbarinfusiontest #iihsucks #totiredtofunction #sinusthrombosis #sickandtiredofbeingsickandtired #butyoudontlooksick #brainsurgerysurvivor #pulsatiletinnitus #nursingstudent #futurenurse #miracleshappen #sickbutstrong