Intracranial Hypertension (IH) is a rare neurological disorder that results in increased cerebrospinal fluid pressure within the skull. Doctors used to call it āPseudotumor Cerebriā (aka fake tumor), because those with brain tumors also have elevated intracranial pressureācausing the same symptoms and presentation. Life with IH varies greatly from patient to patient, but is a serious condition that can greatly impact quality of life. Having severe headaches, nausea, vertigo, loud ringing in your ears, and even vision loss every single day sounds like a nightmare. But itās reality for those with Intracranial Hypertension. Not every patient experiences all of these symptoms, but they are all very typical with IH. Some have āgood daysā and others do not. Many patients are unable to work or go to school because of their health. To put it bluntlyāthis condition is difficult to live with. Just because you see us smiling, laughing, or out doing something doesnāt always mean weāre feeling betterāit means weāre trying to enjoy our lives despite our illness. Treatment options are unfortunately not great. Medication to treat IH is very harsh on the body (particularly your kidneys) and has many undesirable side effects. Those that donāt respond to medication often resort to brain shunt or stent surgeries. There is no cure or āquick fixā for IH and itās accompanying symptoms. #iihsucks #iihawareness #invisibleillness #intracranialhypertension #headachefromhell #myheadhurts #chronicpain #chronicfatigue #chronicillness #chronichope #iih #pseudotumorcerebri #pressureheadache #vpshunt #lpshunt #butyoudontlooksick #weneedacure #blurredvision #paralysed #tinnitus #iihawarenessmonth #spoonie #spoonielife #lumbarpuncture #ineedaspinaltap #totiredtofunction https://www.instagram.com/p/BntSHddCFk0/?utm_source=ig_tumblr_share&igshid=1ud9ojtv8mt82