I'm so exhausted lately. No matter how much I sleep, most days I wake up even more tired than when I went to bed. I don't know why it's so extremely bad lately, maybe it is the brain surgery, maybe the port a cath surgery, maybe just from being under general anesthesia twice within 5 weeks, maybe it's the bilateral pulmonary embolisms, maybe it's the hypokalemia and hypophosphatemia (dangerously low potassium and phosphate levels in my blood).. I just don't know. I just know I'm feeling more exhausted lately than my usual exhausted. I'm so utterly exhausted it's just not funny anymore. I have trouble falling asleep, because most days my head hurts so bad and it hurts to breathe (and I still haven't mastered sleeping in an almost upright position). When I fall asleep I sleep for about an hour and than I wake up and I'm wide awake, not being able to sleep for a few hours. And when I do fall asleep again, most days i sleep for about 8-10 hours and wake up even more tired and exhausted than when I went to bed/sleep. I never feel refreshed or anything, I feel like a good night sleep.. 😩 /\•/\-/\•/\-/\•/\-/\•/\-/\•/\-/\•/\-/\•/\-/\•/\-/\•/\ Well, enough about being exhausted. Had a nice weekend (hubby had an extra day of, here in the Netherlands we have 2 days of Pentecost/Whitsunday, just like we have 2 days of Christmas and 2 days of Easter 🐣). Friday was my birthday, went out for lunch and dinner, enjoyed it very much. Saturday I've competed in my first swim meet 🏊🏻♀️since my Broström ligament reconstruction in September 2014 (ankle surgery). My lungs and head didn't like it, but I've had a great time. Yesterday I celebrated my birthday for friends and family (my birthday was June 2nd) and today was just relaxing and trying to get some rest after this weekend. ▪️▫️▪️▫️▪️▫️▪️▫️▪️▫️▪️▫️▪️▫️▪️▫️ #portacath #chronicpain #chronicfatigue #chronichope #chronicheadache #chronicillness #invisibleillness #intracranialhypertension #incurabledisease #butyoudontlooksick #brainsurgerysurvivor #brainsurgery #portacathsurgery #portsurgery #shuntlife #shuntproblems #shuntrevision #spoonielife #pulmonaryembolism #brostrom #brostromprocedure #swimmerforlife #ineedanap