seen from United States
seen from France
seen from Israel
seen from Vietnam
seen from United States
seen from United States
seen from France
seen from China
seen from China
seen from United States
seen from T1
seen from T1
seen from China
seen from China
seen from Jordan
seen from Iraq
seen from China
seen from Saudi Arabia
seen from Türkiye
seen from United States
Here are some things which make me smile…..my daughter Emily, movie nights, spending time with family and friends, being outside in the sun, laying on a beach listening to the sound of the waves and doing fun exhilarating things like the zip wire at the Lily adult weekend 😁 xx
Www.leighnetwork.org.uk
Www.gofundme.com/zuvrp-leigh-network-family-mito-meetings
Jane Peers 31, who has Leigh’s painted these stones in the sun with her mum.
https://www.gofundme.com/f/zuvrp-leigh-network-family-mito-meetings?pc=fb_co_campmgmt_w&rcid=r01-159222686199-d4dc2c9d452e43d6&utm_source=facebook&utm_medium=social&utm_campaign=p_lico%2Bshare-sheet%2BexpWdV
Week 12 - Finally, we have reached the third month! Time to unlock the front door as freedom awaits... Unless you have mito... Different patients have been told different things - some informed they can, since the government changed their mind on the vulnerable wave and chat to loved ones 2 metres away through a window, but not for a long social exposure, others have been permitted an hours exercise out of the house, with 1 other person whilst maintaining a 2 metre distance, many with medically vulnerable children have been told not to leave the house or see people and remain in social isolation until at least 30th of June. This puts extra pressure on families who are struggling without a care team. I haven't heard anything, so am assuming I am in until 30th June. I really miss my P.A's - the laughs, conversations, the companionship... I can only think that doctors have looked at each, individual case, and evaluated the risks to both mental and physical health, and made a judgement based on that.
Lockdown is hard. It is lonely. I can only hope that one day soon, the death and infection rates go down, people continue to wash their hands and one day soon all those on the medically vulnerable list, like me, can leave the house and see friends and family, who we miss so much.
To try and help ease the isolation felt by our mito families, we held a zoom meeting. Although definitely different to our usual face-to face gatherings, it was wonderful to be able to hear their voices and we hope the families found it helpful.
Hours 3 and 4 of the pedal dash challenge!
Today, I powered my emotions into the cycling, allowing frustrated energy to pound the pedals and increase the speed.
My dog encouragee me to rest by snuggling up on my knee, which meant i had to stagger todays sessions, but who can resist those big, beautiful brown eyes of a cavalier king charled spaniel? (not i!)... Instead of doing 2 blocks of 1 hour sessions, I completed 40 mins, 20 mins, 45 mins and 15 min stints of pedalling = 2 hrs, which means i have surpassed 4 hrs! The halfay point is in sight! .
I feel proud of how far I have come these last 11 days.
Tonight I shall rest my aching body and cuddle my snoring dogs as I prepare foe tomorrows installment!
Day 10....
So, the pedal dash challenge has begun!
I started off slow and steady gradually gaining speed as I neared the halfway point, and winding down as the first hour came to an end.
As I peddled, I imagined the outside world - bumpy pavements I catch my blind cane on as i drive the powerchair along the seafront. I imagined feeling the wind whoosh in my ears, the chatter as I catch a glimpse of other peoples garbled conversation, the whistle as kettles boil and kitchen utensils clatter in cafes , restaurants...
After the first hour, I sat out in the garden. It was both warm warm and cool. every time I pushed my sleeves up, a cool breeze flutteres by.
I completed the second hour as I thought of all the friendships formed at our leigh network events, from meetings for our mito families, to fundraisers that have brought together so many
Day 4 of training.
I was feeling a bit fatigued today, so when one of our mito mums shared a photo of her girls at our SEA LIFE centre Manchester meeting, the eldest of whom sadly lost her fight, the memories, her words and photo stirred within me gave me the motivation and inspiration I needed to complete 40 mins training!
