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Mitochondrial disease affects approximately 1 in 200 babies that are born (Mitochondrial Research)
The current outcome of this diagnosis is a life time of living with a debilitating disease, there is no cure.
Leigh Network helps to raises funds for a Medical Research Centre at Newcastle University, as they search for a cure💛
Please share!
Here are some things which make me smile…..my daughter Emily, movie nights, spending time with family and friends, being outside in the sun, laying on a beach listening to the sound of the waves and doing fun exhilarating things like the zip wire at the Lily adult weekend 😁 xx
Www.leighnetwork.org.uk
Www.gofundme.com/zuvrp-leigh-network-family-mito-meetings
As lockdown restrictions are easing we are seeing more and more people out and about and mixing after such a long time apart.
We know for some people the prospect of this is so exciting and getting back to some kind of normal is amazing but for others they may not feel comfortable or safe stepping back into shops, pubs, restaurants and just meeting with people in general after such a long time of being apart and being told we shouldn’t mix. Covid has not only affected people’s physical health, it has taken a toll on their mental health. Here are some tips for easing back into socialising, and getting back into your community if you are finding it difficult.
Firstly do things at your own pace and when you feel comfortable – there is no time scale.
Know that being anxious about socialising is normal, its ok to feel scared.
Ease back into it slowly – start small with your closest family and friends and when your ready reach out to a bigger circle of people
Mentally plan situations in your head – where your going, who you are meeting so you can feel comfortable when you get there.
Socialise at your comfort level, you don’t have to do anything you don’t want to.
We hope this helps!
Take a Chance Challenge
We thought we’d give you a cheeky taster of the challenges others are taking a chance on to tantalise your tastebuds…
Hi, I am Fayes mum, Mandy. As part of my Take a Chance Challenge, I have given up alcohol. Usually, i enjoy glass of presseco or 2 with dinner, so have replaced it with water or a cup of tea. I am donating what I would have spent on alcohol to Leigh Network. What challenge will you Take a Chance on?
https://uk.gofundme.com/f/zuvrp-leigh-network-family-mito-meetings
Take a Chance for Leigh Network Challenge.
When my cousin, 17 year old Isaac Kneen, announced he’d take on the challenge of running a mile an hour for 24-hours, I was so overwhelmed, I almost cried. I could hardly believe it.
From the minute he started his challenge the donations began to come in. I was overwhelmed at peoples generosity.
Isaac began his 24 hour run at midnight when it was cold and dark, sprinting from his home often through bouts of rain.
The support and encouragement of friends, family, schoolteachers and sports buddies, some of whom even ran alongside him, gave Isaac the courage to keep going.

With sore feet, aching muscles, Isaac completed the last mile with his mum, Samantha. We are so unbelievably proud of Isaac and the kind selflessness he has shown in this massive challenge.
We at Leigh Network are so, thankful to every single individual who have taken the time to sponsor. The amount raised so far is around £2,000.00.
https://www.leaderlive.co.uk/news/19103967.flintshire-teen-runs-24-miles-24-hours-leigh-network-charity/?ref=fbshr
“It means so much.“ Faye Wylie, Leigh Network founder said.
isaac quote. “ I’m overwhelmed by the generosity of the community”
If Isaac has inspired you to take a Chance On a Challenge, be it big or small, get in touch.
You can log your progress on our Facebook page. Share with your friends and get them involved too!
Www.gofundme.com/zuvrp-leigh-network-family-mito-meetings
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Neuromuscular Centre wellbeing course Session 3
Lead by Bryn, focussing on self-management.
After a brief recap of the previous sessions, the first half focused on goal-setting and how having an aim to work towards is a great motivation.
Self management of physical activity recommendations
Aerobic
Strength
Balance
Flexibility
Setting goals
Assessments
See where you are
Motivation
Tracking / monitor
Be specific – if you are clear on your goal you can be clear on how to reach it
Measurable - see if you are getting closer to achieving your goal
Challenge yourself
And be realistic
Set a beginning and end date
*pic collage saying: make your goals Smart:
S - specific.
M - measured.
A- achievable.
R - realistic.
T - time frame.'*
Personally, I do find that having goals, big or small, has helped me get through almost an entire year of shielding. Having that aim to work towards can be so motivational, as it gives you a purpose to reach, a reason to get up in the morning.
Bryn asked us to think of a goal personal to us.
As those of you who follow the Leigh Network on social media will know, we have just launched the Take a Chance for Leigh Network Challenge. The idea is to encourage lots of you to make a positive change in your life for our mito warriors. You could give up a negative influence in your life, such as alcohol, cigarettes or biscuits, and donate what you would've spent on it to our charity, so that we can continue supporting families affected by mito and the research project at the Wellcome Centre for Mitochondrial Research in Newcastle.
For my own challenge, I will take on fitness with the intention of doing various Zoom exercise classes that are suitable for all abilities. The goal was inspired by this course.
Bryn spoke of the importance of having a plan and a time frame.
Our Take a chance for Leigh Network challenge is great, as you can Join in from now up until 1 April. We just ask you to share your journey on our Facebook event page https://www.facebook.com/203975279619098/posts/4401568439859740/?sfnsn=scwspmo or email us.
Take a Chance for Leigh Network Challenge! We have had to create a new event as the last one had incorrect dates and we were unable to edi
I'll keep you updated on our progress in a separate blog post.
The session was concluded by Paul. Discussing how social interaction improves mental health whether it’s taking part in a (zoom) course, calling a friend or seeking professional help. Mental health may not be visible, but may show itself on the physical body.
One of the great quotes from Paul: 'Here, there are no limitations to what you can do’
For instance I am blind, have poor mobility and dystonia. In pre-covid days, I’d cycle on both the hand and leg bikes, a cross-trainer that mechanically stands you up. A fellow Mito warrior who has limited movement, finds the hydrotherapy pool very relaxing and freeing, proving that whatever your perceived limitations, you must always make the best of your abilities .
To find out more about the NMC services, go to: http://www.nmcentre.com/
Even stretching your arms as high as you can is good as it encourages fluidity of the myofascia. Moving and stretching becoming looser and more relaxed, easing movement helps muscles.
The world Health Organisation advises various time scales of exercising for healthy people, the recommendation for those with other health needs is the same as a non affected population. The general consensus from Bryn and Paul was to do as much as your body is able to and gradually try to increase over time.
Paul then moved onto pain. He said rather than jumping back into the deep end of your exercise routine, after an injury, it’s best to start small and gradually build your stamina and strength back up. As going headfirst into a high intensity exercise at the deep end may relapse your progress and cause stress and pain to your body.
There are 2 types of pain:
*acute - a short-term pain that will heal.
*chronic - a long-term pain lasting months or years and often affects a persons quality of life.
Paul explained about the NMC holistic approach to pain-relief.
As well as exercises, hydrotherapy can be highly beneficial as the warm water comforts the muscles, while the water elements of bouyancy (encouraging the body to float) and the water's natural resistance, all gets the muscles to work hard.
