#neurogenicbladder

[disabled-and-cute]

If all you managed to do today is exist, I’m proud of you. Because honestly, that’s all I could do today. My day was spent largely in bed, sleeping. And that was the most I could do. And that’s completely okay. However you spent your day, it was valid. You are valid. And I see you.

[disabled-and-cute]

I love having other people in my circle who have similar disabilities as me or who have children with similar disabilities that I can talk to about certain things that only they understand. That circle is small, but I really appreciate every one of them.

[disabled-and-cute]

Can my leg just not with the muscle spasms tonight?

It’s like “oh, you’re in the middle of something important? Let me just screw that up real quick.”

I hate my leg sometimes.

[disabled-and-cute]

I’m so used to chronic pain that I forgot what a pain free moment feels like. Today just might be a good day. A lazy Saturday spent reading maybe? Creating art? Who knows? 🤷‍♀️

[disabled-and-cute]

I am so done with this day. I cannot stand when people chew and I can hear it. If the people in the room with me right now don’t stop chewing on their chips, I might do or say something I’ll regret. I. Can’t. Do. This. Right. Now.

[honeybeedebby]

I’m back in hospital . I’m septic again and on ice to get temp. Down. They’ve started 3 antibiotics and treating wonky vitals. PRAY for my family at home. I am discouraged but glad caught it again. This is the 3rd Sepsis infection since October. Lord show them how to prevent. All is well. Thank you #sarcoidosisawareness #sepsis #neurogenicbladder #pray #prayerworks #alliswell (at Lehigh Valley Hospital - Cedar Crest) https://www.instagram.com/p/CKF2SkYFpJ7/?igshid=vj9sj8fh3aw2

[honeybeedebby]

Christmas Cheer to fear. How does that happen with these rare illnesses, like Sarcoidosis? I ended up going into a serious Sepsis infection within hours. My second Sepsis one in two months. I’m grateful to be a survivor and back on Homecare and only a few days inpatient antibiotics ! To God to be the glory. Hard to bounce back. So glad to be pioneering on, living out the miracles of Hid grace. #sarcoidosis #neurosarcoidosis #sarcoidosiswarrior #neurogenicbladder #autoimmunedisease #invisibledisability #sepsissurvivor #sepsis #godissogood https://www.instagram.com/p/CJZ6uNflHtg/?igshid=1f8i7dql5lg82

[brightorangerain]

For the first time in 4.5 months I am clear of a UTI/Kidney infection!! #spinabifida #uti #kidneyinfection #neurogenicbladder #chronicuti #urology #actuallydisabled #chronicillness #lifewithchronicillness #spoonie #spoonies #chronicpain https://www.instagram.com/p/Byp3pVLJV-r/?igshid=1fyco87wbyqgw