#pete frates

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Emily Bett Rickards & Colton Haynes appear in TODAY’s “A Life Well-Lived”  tribute to Pete Frates, who inspired the ice bucket challenge.

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Remembering ~ Peter Frates December 28, 1984 - December 9, 2019 Pete Frates was a former college baseball player whose participation in the social media phenomenon known as the Ice Bucket Challenge helped raise more than $100 million toward fighting amyotrophic lateral sclerosis, commonly known as A.L.S. or Lou Gehrig’s disease. A.L.S. attacks the body’s nerve cells and leads to full paralysis. Patients are typically expected to live for two to five years from the time of diagnosis. Mr. Frates learned he had the disease in 2012.  

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guys, the ice bucket challenge post is 4 years old. pete frates has passed and the donate link is broken. the pete frates foundation assists ALS patients with the cost of home health care if you'd like somewhere to donate.

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In this bonus episode we want to call attention to a loss that the ALS community and really the world suffered this week when Pete Frates died at the age of 34, seven years after his ALS diagnosis. Pete altered the landscape of ALS so greatly, we felt it was necessary to take a few minutes to discuss his impact. In this brief discussion with our Chapter’s Executive Director, Jennifer Hjelle, we talk about Pete’s legacy and the massive impact he had on the ALS community. Read more about his life and legacy at https://alsadotorg.wordpress.com/2019/12/09/remembering-pete-frates-co-founder-of-the-als-ice-bucket-challenge/

This segment is excerpted from episode 8. Find the full episode in your favorite podcast app or on our site at: https://www.connectingals.org/episodes/remembering-pete-frates-preparing-for-the-holidays-and-a-moment-with-jan

This episode was produced by Garrett Tiedemann and is brought to you by the Connectivity Center at the ALS Association MN/ND/SD Chapter.

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Ve lo ricordate l’’Ice Bucket Challenge? 

Era il 2014 e molti di noi passarono l’estate facendosi gettare addosso una bacinella di acqua ghiacciata postando poi il video online e sfidando altri cinque amici a fare lo stesso. 

Fu un fenomeno globale che coinvolse tutti, dalla gente comune ai Vip, cantanti, sportivi ed anche qualche politico. 

Pochi però sanno che quella che sembrava una semplice bravata estiva nasceva per sostenere una nobile causa: raccogliere fondi per ricerca sulla SLA. L’idea venne a Pete Frates, un giocatore amatoriale di baseball che dopo un infortunio la cui guarigione era durata ben più del previsto aveva deciso di fare esami più approfonditi scoprendo così di essere affetto da sclerosi laterale amiotrofica, una malattia degenerativa che porta alla paralisi e per cui, al momento, non esiste cura. 

Pete non si era perso d’animo ed aveva deciso di trasformare quella doccia gelata che una notizia come questa può rappresentare in un volano per raccogliere fondi. Già perché una volta nominati l’unico modo per sfuggire alle bacinelle era donare per la ricerca (anche se poi molte persone fecero entrambe le cose). Risultato? In un mese si raccolse quanto si raccoglie di solito in un anno. 

Ve ne parlo oggi perché Pete ci ha lasciato pochi giorni fa lasciandoci in eredità 220 milioni di dollari per la ricerca ed un fantastico esempio di come usando in maniera furba i social si possano raggiungere grandi risultati. 

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Pete Frates, A Driving Force Behind The Viral Ice Bucket Challenge, Dies At 34

The former Boston College baseball star was diagnosed with ALS when he was 27. He turned a fundraising challenge into a national story and h

"Pete Frates, the former Boston College baseball star whose battle with amyotrophic lateral sclerosis inspired the viral Ice Bucket Challenge and raised millions for ALS research, died Monday at age 34."

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Pete Frates, A Driving Force Behind The Viral Ice Bucket Challenge, Dies At 34

Pete Frates, A Driving Force Behind The Viral Ice Bucket Challenge, Dies At 34

Pete Frates, (seated, center) participates in the Ice Bucket Challenge with Massachusetts Gov. Charlie Baker to raise money for ALS research at the Statehouse in Boston in 2015. Charles Krupa/AP Pete Frates, the former Boston College baseball star whose battle with amyotrophic lateral sclerosis inspired the viral Ice Bucket Challenge and raised millions for ALS research, died Monday at age 34.

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Pete Frates Story Is Headed To Netflix