#possibly narcoleptic

[mossyspaceboi]

After suddenly falling asleep for what feels like the billionth time yesterday out of nowhere, being unable to wake up no matter how hard I tried and a slew of other things, I called my pcm and told him something needed to be done because this is starting to be dangerous. It's been dangerous for a while. I don't drive anymore, I'm afraid I'll just fall asleep. Nothing seems to help, caffeine, Adderall, nothing. I tried Vyvanse, both that and Adderall were for adhd technically but Vyvanse caused anxiety and irritability out the ass and still did nothing to help. I can't sleep at night though. I keep waking up, in a lot of pain from other issues. It's not that I can't go back to sleep, I can, but even when I randomly fall asleep it's never good sleep. The nights I do sleep the entire night I don't feel rested. Ever. It doesn't seem to actually matter honestly. I feel the same either way. I keep dropping shit. I have a wired tic, idk what else to call it unfortunately.

I get the panicked call back (had to leave a msg because they were busy) First thing I'm told is I can get a referral to mental health. I've been seeing a psychiatrist for years and he's at a loss too. It sounded robotic, the team knows my situation pretty well. Then I get to hear at least three people talking together about where to send me to finally get officially tested for narcolepsy. My pcm, his head nurse, and I think another nurse I really like I'm not sure. It was less than 30 seconds, a quick question about of course a cpap, and I've got the referral.

I've been dealing with this shit since I was 14 or 15. Maybe earlier, but for sure then. Begging for anyone to listen to me. It's always been reduced to mental health, weight, either gaining or losing of course, can't ever be the right weight, and I've never got help.

Because I've never received help, I've lost friends, been treated like shit from family, cut ties, been in horrible situations just to survive, lost something soul crushing.

So yeah. My pcm and his team believe me. My wife sees it every day. My /kid/ sees it every day. But I don't have high hopes for the referral. Why should I when no ones believed me for 20 years.

[disagigglebilities]

Aldjkajflj I know I refer to my weird sleepiness episodes as "nap attacks", but surely that doesn't mean I genuinely have narcolepsy, right? Like surely narcolepsy is different then whatever I'm experiencing, right?

[disagigglebilities]

The real sleepy bitch is having an appointment to discuss your sleepiness and struggling not to fall asleep while waiting for your blood draw

[rosesandthorns44]

That Feeling When...

you are pretty sure you have narcolepsy, but every time you bring up your concerns to anyone around you they tell you you’re wrong because you don’t fall asleep mid-sentence or whatever.

That’s not how it works! Everyone gets their ideas of what narcolepsy looks like from films like Moulin Rouge and Rat Race. That is not what it actually looks like. 

I would really like to be able to stay awake and feel productive most days, but I can’t. It feels like I have been hit by a tranquilizer dart and then I am physically incapable of staying awake no matter what I try. 

I would really like to actually get refreshing sleep, instead of just having disturbingly realistic dreams that leave me confused when I wake up.

I would like to finally go to college, but I know I will just fall asleep in classes and not be able to keep up.

I would also like to stay awake and alert through a game of DnD with my best friends, long enough to read a book, or enough to finish a sewing project. 

[nine-times-blue]

My insurance finally approved my MSLT, so now I just have to wait to hear back from my sleep doctor about when they'll be doing the next set of those, which should be some time next month. Getting closer and closer to answers.

[nine-times-blue]

My insurance approved my prescription and it got filled 3 days ago and NOBODY told me, so I didn't have to be such a sleepo beepo this week but I was because NOBODY told me.

[nine-times-blue]

Hi, I've napped at work almost every day since I changed insurance providers and have to have my stimulants reapproved before I can get a refill.